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Shared Decision-Making in Mental Health Care - SAMHSA Store ...

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75consumers to engage with their providers <strong>in</strong> mak<strong>in</strong>g a choice that is consistent withthe evidence and with their personal values. DAs are used most often for what havebeen called preference-sensitive health decisions—decisions for which the benefitharmratio is uncerta<strong>in</strong>. These so-called “gray-zone” decisions <strong>in</strong>volve more than onealternative that is reasonable from the standpo<strong>in</strong>t of efficacy, yet the outcomes maybe valued differently by different people. This def<strong>in</strong>ition has been used most for situationswhere surgical and medical options, as well as wait-and-see options, are allreasonable. In mental health, DAs are useful for problems such as depression, wheremedical therapy, talk therapy, and a wait-and-see approach may all be reasonable.DAs are particularly helpful <strong>in</strong> cl<strong>in</strong>ical problems for which there is a small risk of agrave outcome, or when people attach very different levels of importance to a certa<strong>in</strong>outcome. Some DAs <strong>in</strong>clude an explicit strategy to clarify values for outcomes orelicit prelim<strong>in</strong>ary treatment preferences prior to talk<strong>in</strong>g with a cl<strong>in</strong>ician. Many DAsalso provide structured guides for decision-mak<strong>in</strong>g, as well as examples of otherpeople’s decisions, op<strong>in</strong>ions, and experiences.Role of DAs <strong>in</strong> <strong>Health</strong> Service ReformDAs are designed to improve cl<strong>in</strong>ical decision-mak<strong>in</strong>g, which has frequently beenshown to be suboptimal (Braddock, Fihn, Lev<strong>in</strong>son, Jonsen, & Pearlman, 1997). Inparticular, consumers are often not well <strong>in</strong>formed about treatment options and thebenefits and downsides of each option. Providers rarely assess patient values explicitly,and <strong>in</strong>frequently <strong>in</strong>volve patients <strong>in</strong> SDM. The focus on patients, rather thanproviders, emerged from at least two sources. The health services argument madeby Wennberg, Barnes, and Zubkoff (1982) was that patient self-<strong>in</strong>terest would balanceprovider self-<strong>in</strong>terest, expressed as supplier-<strong>in</strong>duced demand. This argumentwas the logical extension of Wennberg’s work document<strong>in</strong>g practice variation thatclearly was not a function of patient or disease characteristics. At the same time, anethical argument was made by many, propos<strong>in</strong>g that SDM was a higher ethical standardthan simple <strong>in</strong>formed consent (President’s Commission, 1981; Siegler, 1981).Taken together, these two parallel threads of <strong>in</strong>quiry, comb<strong>in</strong>ed with a deep <strong>in</strong>terest<strong>in</strong> support<strong>in</strong>g patient choice, led researchers and developers to create tools to supportpatient participation <strong>in</strong> treatment decision-mak<strong>in</strong>g. From the health servicesperspective, it was hoped that patient participation would improve the quality of decisions,and thereby improve care, cost, and satisfaction. It was anticipated that patientself-<strong>in</strong>terest <strong>in</strong> avoid<strong>in</strong>g unnecessary <strong>in</strong>tervention would elim<strong>in</strong>ate unwarrantedvariation. The ethical rationale focused on SDM as the appropriate moral pr<strong>in</strong>ciple.The goal of DAs is not to suggest “mandatory autonomy,” but rather to encourage<strong>in</strong>formed patients to share <strong>in</strong> decision-mak<strong>in</strong>g as they like, or to defer to their providers(Schneider, 1998). A systematic review of DAs assessed the efficacy of 55 cl<strong>in</strong>icaltrials for a variety of cl<strong>in</strong>ical conditions. Results show that when they are used,DAs appear to modestly <strong>in</strong>crease the utilization of services <strong>in</strong> situations of underuseof services and decrease utilization <strong>in</strong> cases of overuse (O’Connor et al., 2007).<strong>Shared</strong> <strong>Decision</strong>-<strong>Mak<strong>in</strong>g</strong> <strong>in</strong> <strong>Mental</strong> <strong>Health</strong> <strong>Care</strong>: Practice, Research, and Future Directions

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