74Netherlands found that while doctors accept the general idea, they feel that their capacityto structure and manage the cl<strong>in</strong>ical encounter is somewhat compromised bycommunication skills guidel<strong>in</strong>es they are required to follow. Veldhuijzen et al. (2007)found that while physicians accepted a positive effect on the quality of medical care,and were aware that communication guidel<strong>in</strong>es def<strong>in</strong>e best practices, actual adherenceto communication guidel<strong>in</strong>es rema<strong>in</strong>s low despite participation <strong>in</strong> <strong>in</strong>tensivecommunication skill tra<strong>in</strong><strong>in</strong>g. Barriers most frequently cited by general practitionersfocused on lack of fit with the workflow <strong>in</strong> their day-to-day practice. They also feltthe guidel<strong>in</strong>es were rigid and <strong>in</strong>efficient, and misconstrued the basic reasons patientsconsult a doctor. Here, as elsewhere, the proposition that patients come to doctorsfor advice and cure was felt to be violated by the drive to SDM.While SDM cont<strong>in</strong>ues to grow <strong>in</strong> use, it rema<strong>in</strong>s difficult for cl<strong>in</strong>icians, tra<strong>in</strong>ed togive advice, to embrace shared decision-mak<strong>in</strong>g <strong>in</strong> a way they feel is appropriateand responsible. Many feel that there is a basic conflict between their duties of beneficenceand of support<strong>in</strong>g patient autonomy. Hammond, Bandak, and Williams(1999), <strong>in</strong> study<strong>in</strong>g perceptions of unilateral versus equalitarian role functions fornurses, physicians, and consumers <strong>in</strong> a psychiatric facility, found concern about reta<strong>in</strong><strong>in</strong>gauthority also contributed to the lack of implementation of collaborativedecision-mak<strong>in</strong>g, even though cl<strong>in</strong>icians supported the general idea.Interventions that teach communication skills to consumers have also been tested.Results show that people taught to ask questions (with and without prompt sheets)and to share <strong>in</strong> decisions, show improved knowledge and recall of what was saiddur<strong>in</strong>g the visit, usually with no <strong>in</strong>crease <strong>in</strong> time spent <strong>in</strong> the encounter. However,the results with regard to patient satisfaction, medication adherence, and treatmentoutcomes are mixed <strong>in</strong> these <strong>in</strong>terventions (Stevenson et al., 2004; Gaston & Mitchell,2005; Harr<strong>in</strong>gton, Noble, & Newman, 2004; Griff<strong>in</strong> et al., 2004; Scott et al.,2003). The most effective <strong>in</strong>terventions have directed <strong>in</strong>tervention simultaneously toboth parties <strong>in</strong> the encounter, and provided external rem<strong>in</strong>ders (Kennedy, Rob<strong>in</strong>son,Hann, Thompson, & Wilk<strong>in</strong>, 2003).Patient <strong>Decision</strong> AidsPatient decision aids (DAs), also called decision support tools, are evidence-based<strong>in</strong>formation tools designed to assist consumers and providers to discuss the pros andcons of treatment or screen<strong>in</strong>g. This <strong>in</strong>cludes consumers’ own personal priorities andvalues for both the amount of ga<strong>in</strong> that can be obta<strong>in</strong>ed from treatment and the cost<strong>in</strong> terms of side effects as well as money. This background <strong>in</strong>formation is designedto encourage a deliberative process <strong>in</strong> the cl<strong>in</strong>ical encounter <strong>in</strong> arriv<strong>in</strong>g at a decisionabout <strong>in</strong>tervention. DAs are focused on specific cl<strong>in</strong>ical problems, synthesiz<strong>in</strong>g thebest available evidence on treatment or screen<strong>in</strong>g options <strong>in</strong> ways that encourage<strong>Shared</strong> <strong>Decision</strong>-<strong>Mak<strong>in</strong>g</strong> <strong>in</strong> <strong>Mental</strong> <strong>Health</strong> <strong>Care</strong>: Practice, Research, and Future Directions
75consumers to engage with their providers <strong>in</strong> mak<strong>in</strong>g a choice that is consistent withthe evidence and with their personal values. DAs are used most often for what havebeen called preference-sensitive health decisions—decisions for which the benefitharmratio is uncerta<strong>in</strong>. These so-called “gray-zone” decisions <strong>in</strong>volve more than onealternative that is reasonable from the standpo<strong>in</strong>t of efficacy, yet the outcomes maybe valued differently by different people. This def<strong>in</strong>ition has been used most for situationswhere surgical and medical options, as well as wait-and-see options, are allreasonable. In mental health, DAs are useful for problems such as depression, wheremedical therapy, talk therapy, and a wait-and-see approach may all be reasonable.DAs are particularly helpful <strong>in</strong> cl<strong>in</strong>ical problems for which there is a small risk of agrave outcome, or when people attach very different levels of importance to a certa<strong>in</strong>outcome. Some DAs <strong>in</strong>clude an explicit strategy to clarify values for outcomes orelicit prelim<strong>in</strong>ary treatment preferences prior to talk<strong>in</strong>g with a cl<strong>in</strong>ician. Many DAsalso provide structured guides for decision-mak<strong>in</strong>g, as well as examples of otherpeople’s decisions, op<strong>in</strong>ions, and experiences.Role of DAs <strong>in</strong> <strong>Health</strong> Service ReformDAs are designed to improve cl<strong>in</strong>ical decision-mak<strong>in</strong>g, which has frequently beenshown to be suboptimal (Braddock, Fihn, Lev<strong>in</strong>son, Jonsen, & Pearlman, 1997). Inparticular, consumers are often not well <strong>in</strong>formed about treatment options and thebenefits and downsides of each option. Providers rarely assess patient values explicitly,and <strong>in</strong>frequently <strong>in</strong>volve patients <strong>in</strong> SDM. The focus on patients, rather thanproviders, emerged from at least two sources. The health services argument madeby Wennberg, Barnes, and Zubkoff (1982) was that patient self-<strong>in</strong>terest would balanceprovider self-<strong>in</strong>terest, expressed as supplier-<strong>in</strong>duced demand. This argumentwas the logical extension of Wennberg’s work document<strong>in</strong>g practice variation thatclearly was not a function of patient or disease characteristics. At the same time, anethical argument was made by many, propos<strong>in</strong>g that SDM was a higher ethical standardthan simple <strong>in</strong>formed consent (President’s Commission, 1981; Siegler, 1981).Taken together, these two parallel threads of <strong>in</strong>quiry, comb<strong>in</strong>ed with a deep <strong>in</strong>terest<strong>in</strong> support<strong>in</strong>g patient choice, led researchers and developers to create tools to supportpatient participation <strong>in</strong> treatment decision-mak<strong>in</strong>g. From the health servicesperspective, it was hoped that patient participation would improve the quality of decisions,and thereby improve care, cost, and satisfaction. It was anticipated that patientself-<strong>in</strong>terest <strong>in</strong> avoid<strong>in</strong>g unnecessary <strong>in</strong>tervention would elim<strong>in</strong>ate unwarrantedvariation. The ethical rationale focused on SDM as the appropriate moral pr<strong>in</strong>ciple.The goal of DAs is not to suggest “mandatory autonomy,” but rather to encourage<strong>in</strong>formed patients to share <strong>in</strong> decision-mak<strong>in</strong>g as they like, or to defer to their providers(Schneider, 1998). A systematic review of DAs assessed the efficacy of 55 cl<strong>in</strong>icaltrials for a variety of cl<strong>in</strong>ical conditions. Results show that when they are used,DAs appear to modestly <strong>in</strong>crease the utilization of services <strong>in</strong> situations of underuseof services and decrease utilization <strong>in</strong> cases of overuse (O’Connor et al., 2007).<strong>Shared</strong> <strong>Decision</strong>-<strong>Mak<strong>in</strong>g</strong> <strong>in</strong> <strong>Mental</strong> <strong>Health</strong> <strong>Care</strong>: Practice, Research, and Future Directions
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iiContentsIntroduction ............
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5outpatient commitment (Holmes-Rovn
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7Advantages• Practitioners can be
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9Section 2The Practice of SharedDec
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16Section 3SDM ResearchCurrent rese
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18Mental health care providers are
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21want mental health treatment or d
- Page 29: 23Some participants raised concerns
- Page 37 and 38: 31Section 6ConclusionsShared decisi
- Page 39 and 40: 33Fellowes, D., Wilkinson, S., & Mo
- Page 41 and 42: 35Power, A. Kathryn. (July 10, 2007
- Page 43 and 44: 37Appendix AResourcesThis list is p
- Page 45 and 46: 39Appendix BShared Decision-MakingM
- Page 47 and 48: 41Annelle Primm, M.D., M.P.H.Direct
- Page 49 and 50: 43Supplement 1Shared Decision-Makin
- Page 51 and 52: 45IntroductionThe consumer-driven r
- Page 53 and 54: 47Background: Definitions of SDM an
- Page 55 and 56: 49• Freedom to live in the commun
- Page 57 and 58: 51providers only (Wills & Homes-Rov
- Page 59: 53SDM for Schizophrenia TreatmentBu
- Page 63 and 64: 57I interact with my consumers; I f
- Page 65 and 66: 59ReferencesAdams, J. R., & Drake,
- Page 67 and 68: 61Elwyn, G., Edwards, A., Kinnersle
- Page 69 and 70: 63Murray, E., Pollack, L., White, M
- Page 71 and 72: 65Thistlethwaite, J., Evans, R., Ti
- Page 73 and 74: 67AbstractShared decision-making is
- Page 75 and 76: 69Confronting Critical Challenges:
- Page 77 and 78: 71into treatment should still be in
- Page 79: 73these approaches, people are more
- Page 83 and 84: 77that were produced in the U.S., w
- Page 85 and 86: 79a healing partnership and develop
- Page 87 and 88: 81Shared Decision-Making in Mental
- Page 89 and 90: 83However, peer support requires st
- Page 91 and 92: 85ConclusionsImplementation of SDM
- Page 93 and 94: 87Fellowes, D., Wilkinson, S., & Mo
- Page 95 and 96: 89President’s Commission for the
- Page 97 and 98: 91Supplement 3Aids to Assist Shared
- Page 99 and 100: 93IntroductionSignificance of Share
- Page 101 and 102: 95In recent years, a variety of tec
- Page 103 and 104: 97• Provide balanced information,
- Page 105 and 106: 99Form of Access or AdministrationC
- Page 107 and 108: 101ences). Some of these Web-based
- Page 109 and 110: 103video about shared decision-maki
- Page 111 and 112: 105clarify one’s own values and p
- Page 113 and 114: 107potential results, than on quant
- Page 115 and 116: 109Once again, however, it is worth
- Page 117 and 118: 111who belong to minority groups or
- Page 119 and 120: 113Hamann, J., Langer, B., Winkler,
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