62Hamann, J., Leucht, S., & Kissl<strong>in</strong>g, W. (2003). <strong>Shared</strong> decision mak<strong>in</strong>g <strong>in</strong> psychiatry.Acta Psychiatrica Scand<strong>in</strong>avica, 107: 403-409.Hook, M. L. (2006). Partner<strong>in</strong>g with patients—a concept ready for action. Journalof Advanced Nurs<strong>in</strong>g, 56(2): 133-143.Institute of Medic<strong>in</strong>e. (2001). Cross<strong>in</strong>g the quality chasm: A new health system forthe 21st century. Wash<strong>in</strong>gton, DC: Institute of Medic<strong>in</strong>e.Institute of Medic<strong>in</strong>e. (2006). Improv<strong>in</strong>g the quality of health care for mental andsubstance-use conditions. Wash<strong>in</strong>gton, DC: Institute of Medic<strong>in</strong>e.Lev<strong>in</strong>son, W., Kao, A., & Kuby, A. (2005). Not all patients want to participate <strong>in</strong>decision mak<strong>in</strong>g: A national survey of public preferences. Journal of GeneralInternal Medic<strong>in</strong>e, 20: 531-535.Lew<strong>in</strong>, S. A., Skea, Z. C., Entwistle, V., Zwarenste<strong>in</strong>, M., & Dick, J. (2001). Interventionsfor providers to promote a patient-centred approach <strong>in</strong> cl<strong>in</strong>ical consultations.Cochrane Database of Systematic Reviews 4, (Art. No. CD003267,DOI: 10.1002/14651858.CD003267).Loh, A., Leonhart, R., Wills, C. E., Simon, D., & Harter, M. (2007). The impact ofpatient participation on adherence and cl<strong>in</strong>ical outcome <strong>in</strong> primary care ofdepression. Patient Education and Counsel<strong>in</strong>g, 65: 69-78.Loh, A., Simon, D., Hennig, K., Hennig, B., Harter, M., & Elwyn, G. (2006). Theassessment of depressive patients’ <strong>in</strong>volvement <strong>in</strong> decision mak<strong>in</strong>g <strong>in</strong> audiotapedprimary care consultations. Patient Education and Counsel<strong>in</strong>g, 63:314-318.Makoul, G., & Clayman, M. L. (2006). An <strong>in</strong>tegrative model of shared decision mak<strong>in</strong>g<strong>in</strong> medical encounters. Patient Education and Counsel<strong>in</strong>g, 60: 301-312.Malm, U., Ivarsson, B., Allebeck, P., & Falloon, I. R. H. (2003). Integrated care <strong>in</strong>schizophrenia: A 2-year randomized controlled study of two communitybasedtreatment programs. Acta Psychiatrica Scand<strong>in</strong>avica, 107: 415-423.Miller, B. J., Paschall, C. B., & Svendsen, D. P. (2006). Mortality and medical comorbidityamong patients with serious mental illness. Psychiatric Services,57: 1482-1487.<strong>Shared</strong> <strong>Decision</strong>-<strong>Mak<strong>in</strong>g</strong> <strong>in</strong> <strong>Mental</strong> <strong>Health</strong> <strong>Care</strong>: Practice, Research, and Future Directions
63Murray, E., Pollack, L., White, M., & Lo, B. (2007a). Cl<strong>in</strong>ical decision-mak<strong>in</strong>g: Patients’preferences and experiences. Patient Education and Counsel<strong>in</strong>g, 65:189-196.Murray, E., Pollack, L., White, M., & Lo, B. (2007b). Cl<strong>in</strong>ical decision-mak<strong>in</strong>g: Physicians’preferences and experiences. BMC Family Practice, 8(10): 1-10.National Institute of <strong>Mental</strong> <strong>Health</strong>. (1999). Bridg<strong>in</strong>g science and service: A reportby the National Advisory <strong>Mental</strong> <strong>Health</strong> Council Cl<strong>in</strong>ical Treatment andServices Research Workgroup. Wash<strong>in</strong>gton, DC: National Institute of <strong>Mental</strong><strong>Health</strong>.Nelson, G., Lord, J., & Ochocka, J. (2001). Shift<strong>in</strong>g the paradigm <strong>in</strong> communitymental health: Towards empowerment and community. Buffalo, NY: Universityof Toronto Press.New Freedom Commission on <strong>Mental</strong> <strong>Health</strong>. (2003). Achiev<strong>in</strong>g the promise: Transform<strong>in</strong>gmental health care <strong>in</strong> America. F<strong>in</strong>al report. (No. SMA-03-3832).Rockville, MD: HHS.O’Connor, A. (2001). Us<strong>in</strong>g patient decision aids to promote evidence-based decisionmak<strong>in</strong>g. ACP Journal Club, 135: A11-A12.O’Connor, A. M., Stacey, D., Entwistle, V., Llewellyn-Thomas, H., Rovner, D., Holmes-Rovner,M., et al. (2003). <strong>Decision</strong> aids for people fac<strong>in</strong>g health treatmentor screen<strong>in</strong>g decisions. Cochrane Database of Systematic Reviews, 1 (Art.No. CD001431, DOI: 10.1002/14651858.CD001431).O’Connor, A. M., Wennberg, J. E., Legare, F., Llewellyn-Thomas, H. A., Moulton,B. W., Sepucha, K. R., Sodano, A. G., and K<strong>in</strong>g, J. S. (2007). Toward the ‘tipp<strong>in</strong>gpo<strong>in</strong>t’: <strong>Decision</strong> aids and <strong>in</strong>formed patient choice. <strong>Health</strong> Affairs, 26(3): 716-725.O’Neal, E., Adams, J., Drake, R. E., & Bartels, S. (2007). Role preference for <strong>in</strong>volvement<strong>in</strong> shared decision-mak<strong>in</strong>g <strong>in</strong> older adults with severe mental illness:What is the optimal study design? Paper presented at the International<strong>Shared</strong> <strong>Decision</strong> <strong>Mak<strong>in</strong>g</strong> Conference, Freiburg, Germany.Penston, J. (2007). Patients’ preferences shed light on the murky world of guidel<strong>in</strong>ebasedmedic<strong>in</strong>e. Journal of Evaluation <strong>in</strong> Cl<strong>in</strong>ical Practice, 13: 154-159.Pescosolido, B. A., Brooks-Gardner, C., & Lubell, K. M. (1998). How people get <strong>in</strong>tomental health services: Stories of choice, coercion and “muddl<strong>in</strong>g through”from “first-timers.” Social Science and Medic<strong>in</strong>e, 46(2): 275-286.<strong>Shared</strong> <strong>Decision</strong>-<strong>Mak<strong>in</strong>g</strong> <strong>in</strong> <strong>Mental</strong> <strong>Health</strong> <strong>Care</strong>: Practice, Research, and Future Directions
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iiContentsIntroduction ............
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5outpatient commitment (Holmes-Rovn
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7Advantages• Practitioners can be
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9Section 2The Practice of SharedDec
- Page 22 and 23: 16Section 3SDM ResearchCurrent rese
- Page 24: 18Mental health care providers are
- Page 27 and 28: 21want mental health treatment or d
- Page 29: 23Some participants raised concerns
- Page 37 and 38: 31Section 6ConclusionsShared decisi
- Page 39 and 40: 33Fellowes, D., Wilkinson, S., & Mo
- Page 41 and 42: 35Power, A. Kathryn. (July 10, 2007
- Page 43 and 44: 37Appendix AResourcesThis list is p
- Page 45 and 46: 39Appendix BShared Decision-MakingM
- Page 47 and 48: 41Annelle Primm, M.D., M.P.H.Direct
- Page 49 and 50: 43Supplement 1Shared Decision-Makin
- Page 51 and 52: 45IntroductionThe consumer-driven r
- Page 53 and 54: 47Background: Definitions of SDM an
- Page 55 and 56: 49• Freedom to live in the commun
- Page 57 and 58: 51providers only (Wills & Homes-Rov
- Page 59: 53SDM for Schizophrenia TreatmentBu
- Page 63 and 64: 57I interact with my consumers; I f
- Page 65 and 66: 59ReferencesAdams, J. R., & Drake,
- Page 67: 61Elwyn, G., Edwards, A., Kinnersle
- Page 71 and 72: 65Thistlethwaite, J., Evans, R., Ti
- Page 73 and 74: 67AbstractShared decision-making is
- Page 75 and 76: 69Confronting Critical Challenges:
- Page 77 and 78: 71into treatment should still be in
- Page 79 and 80: 73these approaches, people are more
- Page 81 and 82: 75consumers to engage with their pr
- Page 83 and 84: 77that were produced in the U.S., w
- Page 85 and 86: 79a healing partnership and develop
- Page 87 and 88: 81Shared Decision-Making in Mental
- Page 89 and 90: 83However, peer support requires st
- Page 91 and 92: 85ConclusionsImplementation of SDM
- Page 93 and 94: 87Fellowes, D., Wilkinson, S., & Mo
- Page 95 and 96: 89President’s Commission for the
- Page 97 and 98: 91Supplement 3Aids to Assist Shared
- Page 99 and 100: 93IntroductionSignificance of Share
- Page 101 and 102: 95In recent years, a variety of tec
- Page 103 and 104: 97• Provide balanced information,
- Page 105 and 106: 99Form of Access or AdministrationC
- Page 107 and 108: 101ences). Some of these Web-based
- Page 109 and 110: 103video about shared decision-maki
- Page 111 and 112: 105clarify one’s own values and p
- Page 113 and 114: 107potential results, than on quant
- Page 115 and 116: 109Once again, however, it is worth
- Page 117 and 118: 111who belong to minority groups or
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113Hamann, J., Langer, B., Winkler,
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U.S. DEPARTMENT OF HEALTH AND HUMAN