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Shared Decision-Making in Mental Health Care - SAMHSA Store ...

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76Barriers to Rout<strong>in</strong>e Use of DAsWhile DAs appear to function well <strong>in</strong> experimental sett<strong>in</strong>gs, gett<strong>in</strong>g them rout<strong>in</strong>elyused <strong>in</strong> everyday practice is challeng<strong>in</strong>g. An early observational study of DA adoptionby enthusiastic providers found that they were rarely used (Holmes-Rovneret al., 2000). SDM multimedia videos for prostate cancer, breast cancer, and ischemicheart disease were judged by physicians and nurses to be clear and accurate,and to present about the right amount of <strong>in</strong>formation <strong>in</strong> an appropriate amount oftime. Programs were judged to be <strong>in</strong>formative and appropriate for patients to seebefore mak<strong>in</strong>g a decision. However, the study revealed that cl<strong>in</strong>icians were unconv<strong>in</strong>cedabout patients’ desire to participate <strong>in</strong> treatment decision-mak<strong>in</strong>g, and referralvolume to the programs was lower than expected. In seven months across threemedium-sized hospitals, 34 physicians and nurses referred a total of 24 patients tothe programs.A more recent pilot study conducted <strong>in</strong> the United K<strong>in</strong>gdom <strong>in</strong> outpatient sett<strong>in</strong>gsfound similar difficulties. In 2004, four National <strong>Health</strong> Services Hospital Trustsimplemented two SDM videos (benign prostatic hypertrophy [BPH] and early stageprostate cancer) <strong>in</strong> outpatient urology practices. The <strong>in</strong>tervention consisted of nursetra<strong>in</strong><strong>in</strong>g for counsel<strong>in</strong>g about SDM and decision support, the videos, and decisionquality assessment (DQA) (Wirrmann & Askham, 2006). However, dur<strong>in</strong>g 12months <strong>in</strong> four trusts, only 86 patients answered questions on the DQA, <strong>in</strong>dicat<strong>in</strong>guse of either video. Interviews with patients and health professionals showed thathealth professionals felt a need to carefully screen the patients for whom the <strong>in</strong>formationwas considered appropriate, reflect<strong>in</strong>g a somewhat narrow vision of whenpatient choice might be appropriate. In addition, f<strong>in</strong>d<strong>in</strong>g a mechanism for reliablygett<strong>in</strong>g the videos to patients before the consultation was problematic, as was thecase <strong>in</strong> the prior study. In this particular approach to implementation, specialistnurses were the ma<strong>in</strong> counselors and DA implementation staff had an <strong>in</strong>formationand support role. The adm<strong>in</strong>istrative burden on an already overworked staff was aserious threat to program susta<strong>in</strong>ability.As <strong>in</strong> the U.S. study, not all patients accepted the decision support program. Ironically,<strong>in</strong> the U.S. program, when physicians were especially thorough and supportive<strong>in</strong> their discussions with patients, patients were not <strong>in</strong>terested <strong>in</strong> spend<strong>in</strong>g an hourgett<strong>in</strong>g further education. Only the physician who did not provide extensive <strong>in</strong>formation,and who required the patients to view the video before their visits to receivebiopsy results, was able to get consistent patient participation <strong>in</strong> see<strong>in</strong>g the video.These studies suggest that physician referral is unlikely to be a reliable mechanismfor patient access to DAs. Better <strong>in</strong>formation systems may help with timely and helpfuldelivery of <strong>in</strong>formation to both consumers and providers. However, f<strong>in</strong>d<strong>in</strong>g theright triggers to such timely support has been elusive to date. In addition, the UnitedK<strong>in</strong>gdom study found what has been found previously <strong>in</strong> guidel<strong>in</strong>es studies, thatmost providers want a say <strong>in</strong> design<strong>in</strong>g materials for their local sett<strong>in</strong>gs. Materials<strong>Shared</strong> <strong>Decision</strong>-<strong>Mak<strong>in</strong>g</strong> <strong>in</strong> <strong>Mental</strong> <strong>Health</strong> <strong>Care</strong>: Practice, Research, and Future Directions

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