76Barriers to Rout<strong>in</strong>e Use of DAsWhile DAs appear to function well <strong>in</strong> experimental sett<strong>in</strong>gs, gett<strong>in</strong>g them rout<strong>in</strong>elyused <strong>in</strong> everyday practice is challeng<strong>in</strong>g. An early observational study of DA adoptionby enthusiastic providers found that they were rarely used (Holmes-Rovneret al., 2000). SDM multimedia videos for prostate cancer, breast cancer, and ischemicheart disease were judged by physicians and nurses to be clear and accurate,and to present about the right amount of <strong>in</strong>formation <strong>in</strong> an appropriate amount oftime. Programs were judged to be <strong>in</strong>formative and appropriate for patients to seebefore mak<strong>in</strong>g a decision. However, the study revealed that cl<strong>in</strong>icians were unconv<strong>in</strong>cedabout patients’ desire to participate <strong>in</strong> treatment decision-mak<strong>in</strong>g, and referralvolume to the programs was lower than expected. In seven months across threemedium-sized hospitals, 34 physicians and nurses referred a total of 24 patients tothe programs.A more recent pilot study conducted <strong>in</strong> the United K<strong>in</strong>gdom <strong>in</strong> outpatient sett<strong>in</strong>gsfound similar difficulties. In 2004, four National <strong>Health</strong> Services Hospital Trustsimplemented two SDM videos (benign prostatic hypertrophy [BPH] and early stageprostate cancer) <strong>in</strong> outpatient urology practices. The <strong>in</strong>tervention consisted of nursetra<strong>in</strong><strong>in</strong>g for counsel<strong>in</strong>g about SDM and decision support, the videos, and decisionquality assessment (DQA) (Wirrmann & Askham, 2006). However, dur<strong>in</strong>g 12months <strong>in</strong> four trusts, only 86 patients answered questions on the DQA, <strong>in</strong>dicat<strong>in</strong>guse of either video. Interviews with patients and health professionals showed thathealth professionals felt a need to carefully screen the patients for whom the <strong>in</strong>formationwas considered appropriate, reflect<strong>in</strong>g a somewhat narrow vision of whenpatient choice might be appropriate. In addition, f<strong>in</strong>d<strong>in</strong>g a mechanism for reliablygett<strong>in</strong>g the videos to patients before the consultation was problematic, as was thecase <strong>in</strong> the prior study. In this particular approach to implementation, specialistnurses were the ma<strong>in</strong> counselors and DA implementation staff had an <strong>in</strong>formationand support role. The adm<strong>in</strong>istrative burden on an already overworked staff was aserious threat to program susta<strong>in</strong>ability.As <strong>in</strong> the U.S. study, not all patients accepted the decision support program. Ironically,<strong>in</strong> the U.S. program, when physicians were especially thorough and supportive<strong>in</strong> their discussions with patients, patients were not <strong>in</strong>terested <strong>in</strong> spend<strong>in</strong>g an hourgett<strong>in</strong>g further education. Only the physician who did not provide extensive <strong>in</strong>formation,and who required the patients to view the video before their visits to receivebiopsy results, was able to get consistent patient participation <strong>in</strong> see<strong>in</strong>g the video.These studies suggest that physician referral is unlikely to be a reliable mechanismfor patient access to DAs. Better <strong>in</strong>formation systems may help with timely and helpfuldelivery of <strong>in</strong>formation to both consumers and providers. However, f<strong>in</strong>d<strong>in</strong>g theright triggers to such timely support has been elusive to date. In addition, the UnitedK<strong>in</strong>gdom study found what has been found previously <strong>in</strong> guidel<strong>in</strong>es studies, thatmost providers want a say <strong>in</strong> design<strong>in</strong>g materials for their local sett<strong>in</strong>gs. Materials<strong>Shared</strong> <strong>Decision</strong>-<strong>Mak<strong>in</strong>g</strong> <strong>in</strong> <strong>Mental</strong> <strong>Health</strong> <strong>Care</strong>: Practice, Research, and Future Directions
77that were produced <strong>in</strong> the U.S., with video clips of people speak<strong>in</strong>g with Boston accents,were found to be off-putt<strong>in</strong>g <strong>in</strong> London.The United K<strong>in</strong>gdom results, like those reported by Légaré et al. (2006), suggest thataccessibility needs to be smooth, automatic, and timely, and that DAs need to becompatible with practitioners’ practices and personal beliefs, up-to-date, attractive,easy to use, and not require additional cost, time, or equipment. F<strong>in</strong>d<strong>in</strong>gs also suggestthat providers need to feel motivated to use DAs by factors such as time sav<strong>in</strong>g,avoidance of repetition, the potential to decrease liability, and improved decisionquality. In the example of prostate cancer, it became difficult to make the DAs an<strong>in</strong>tegral part of the communication and support process between the time of biopsyand the consultation to make a treatment choice. In BPH, where treatment was feltto be more truly elective, it seemed more possible to deliver the DA outside of thecontext of the medical encounter. Given that the <strong>in</strong>novation literature <strong>in</strong> general suggestsonly a 10 to 12 percent adoption rate <strong>in</strong> early stages, adoption of SDM can beexpected to be slow, and <strong>in</strong> need of substantial <strong>in</strong>stitutional support and <strong>in</strong>centives.Barriers to SDM from ConsumersIt is well established that <strong>in</strong>dividuals liv<strong>in</strong>g with mental health problems need morethan medical treatment from their health care providers. Individuals pursu<strong>in</strong>g recoveryoften need a range of services and supports to manage their own lives and be ashealthy as possible. Although now <strong>in</strong> the midst of multiple reform efforts, the mentalhealth system has historically been built on the model that the consumer was “broken”and needed to be “fixed.” Some mental health service models are steeped <strong>in</strong> themedical tradition of diagnosis, focus on symptoms, and physician-directed prescriptionof medications for amelioration if not cure.While there may be <strong>in</strong>stances where the medical management model is appropriateand effective, for many it has not worked. Us<strong>in</strong>g this approach, the experienceof the consumer has often been characterized as “learned helplessness,” though ithas been argued that it can more accurately be described as a realistic defensivenessborn of past experience with mental health services. Similarly, experience with providerprejudice <strong>in</strong> mental health care creates an expectation that can set up barriersto SDM implementation. The situational analysis prepared for <strong>SAMHSA</strong>’s Elim<strong>in</strong>ationof Barriers Initiative, an eight-State pilot to test public education approaches toreduce prejudice and discrim<strong>in</strong>ation, found through focus groups of mental healthconsumers that mental health care providers were among those who most stigmatizedmental health consumers (Schauer, Everett, del Vecchio, & Anderson, 2007).<strong>Mental</strong> health consumers often report feel<strong>in</strong>g disempowered and hav<strong>in</strong>g little <strong>in</strong>put<strong>in</strong>to treatment choices and care plans because of provider assumptions that they arenot able to make decisions <strong>in</strong> their best <strong>in</strong>terests. Experienced mental health serviceusers often feel that programs to improve adherence can quickly translate <strong>in</strong>to<strong>Shared</strong> <strong>Decision</strong>-<strong>Mak<strong>in</strong>g</strong> <strong>in</strong> <strong>Mental</strong> <strong>Health</strong> <strong>Care</strong>: Practice, Research, and Future Directions
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iiContentsIntroduction ............
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5outpatient commitment (Holmes-Rovn
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7Advantages• Practitioners can be
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9Section 2The Practice of SharedDec
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16Section 3SDM ResearchCurrent rese
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18Mental health care providers are
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21want mental health treatment or d
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23Some participants raised concerns
- Page 37 and 38: 31Section 6ConclusionsShared decisi
- Page 39 and 40: 33Fellowes, D., Wilkinson, S., & Mo
- Page 41 and 42: 35Power, A. Kathryn. (July 10, 2007
- Page 43 and 44: 37Appendix AResourcesThis list is p
- Page 45 and 46: 39Appendix BShared Decision-MakingM
- Page 47 and 48: 41Annelle Primm, M.D., M.P.H.Direct
- Page 49 and 50: 43Supplement 1Shared Decision-Makin
- Page 51 and 52: 45IntroductionThe consumer-driven r
- Page 53 and 54: 47Background: Definitions of SDM an
- Page 55 and 56: 49• Freedom to live in the commun
- Page 57 and 58: 51providers only (Wills & Homes-Rov
- Page 59: 53SDM for Schizophrenia TreatmentBu
- Page 63 and 64: 57I interact with my consumers; I f
- Page 65 and 66: 59ReferencesAdams, J. R., & Drake,
- Page 67 and 68: 61Elwyn, G., Edwards, A., Kinnersle
- Page 69 and 70: 63Murray, E., Pollack, L., White, M
- Page 71 and 72: 65Thistlethwaite, J., Evans, R., Ti
- Page 73 and 74: 67AbstractShared decision-making is
- Page 75 and 76: 69Confronting Critical Challenges:
- Page 77 and 78: 71into treatment should still be in
- Page 79 and 80: 73these approaches, people are more
- Page 81: 75consumers to engage with their pr
- Page 85 and 86: 79a healing partnership and develop
- Page 87 and 88: 81Shared Decision-Making in Mental
- Page 89 and 90: 83However, peer support requires st
- Page 91 and 92: 85ConclusionsImplementation of SDM
- Page 93 and 94: 87Fellowes, D., Wilkinson, S., & Mo
- Page 95 and 96: 89President’s Commission for the
- Page 97 and 98: 91Supplement 3Aids to Assist Shared
- Page 99 and 100: 93IntroductionSignificance of Share
- Page 101 and 102: 95In recent years, a variety of tec
- Page 103 and 104: 97• Provide balanced information,
- Page 105 and 106: 99Form of Access or AdministrationC
- Page 107 and 108: 101ences). Some of these Web-based
- Page 109 and 110: 103video about shared decision-maki
- Page 111 and 112: 105clarify one’s own values and p
- Page 113 and 114: 107potential results, than on quant
- Page 115 and 116: 109Once again, however, it is worth
- Page 117 and 118: 111who belong to minority groups or
- Page 119 and 120: 113Hamann, J., Langer, B., Winkler,
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