48Rovner, 2006). SDM is explicitly person-centered with<strong>in</strong> a goal of promot<strong>in</strong>g theideal conditions for effective decision-mak<strong>in</strong>g to occur. 2 This is consistent with nationalpolicy objectives to <strong>in</strong>corporate preferences <strong>in</strong> <strong>in</strong>dividualiz<strong>in</strong>g person-centeredcare. The values aspect of decisions, <strong>in</strong>clud<strong>in</strong>g identify<strong>in</strong>g preferences, is especiallyrelevant <strong>in</strong> decisions for which preferences do (or should) significantly guide decision-mak<strong>in</strong>gand for situations <strong>in</strong> which an equal balance of pros and cons exists forat least two different alternative choices (i.e., <strong>in</strong> which there is more than one reasonableoption as def<strong>in</strong>ed by the key partners <strong>in</strong> the decision-mak<strong>in</strong>g process) (Elwyn etal., 2000; Whitney, McGuire, & McCullough, 2004; Wills & Holmes-Rovner, 2006).These types of preference decisions constitute the large majority of mental healthtreatment decision-mak<strong>in</strong>g.Self-directed <strong>Care</strong>, Self-determ<strong>in</strong>ation, and Person-centered Plann<strong>in</strong>gOne of the more challeng<strong>in</strong>g aspects of mental health recovery-oriented services andthe adoption of <strong>in</strong>novative practices is the establishment of work<strong>in</strong>g def<strong>in</strong>itions foran evolv<strong>in</strong>g language. This is even more the case when one is attempt<strong>in</strong>g to ref<strong>in</strong>epolicy-provok<strong>in</strong>g nuances and societal implications. With<strong>in</strong> the context of SDM,particularly as it relates to mental health, there are specific terms and jargon thatshould be considered. A few of these are: self-directed care, self-determ<strong>in</strong>ation, andperson-centered plann<strong>in</strong>g. It is important to note that each of these terms orig<strong>in</strong>atedoutside the context of mental health, but are deeply rooted <strong>in</strong> the larger crossdisabilitymovement. A l<strong>in</strong>guistic task that is before the stakeholders is to flesh outthe nuance of yet another “foreign language” <strong>in</strong> order to adequately assess both theadaptability of the language and the application of the practice of SDM.Free To Choose: Transform<strong>in</strong>g Behavioral <strong>Health</strong> <strong>Care</strong> to Self-Direction, a 2005publication of the Center for <strong>Mental</strong> <strong>Health</strong> Services (<strong>SAMHSA</strong>, 2005), identifiedthe follow<strong>in</strong>g def<strong>in</strong>itions for self-directed care and self-determ<strong>in</strong>ation.Self-directed care is closely related, although not identical, to both a recoveryorientation and self-determ<strong>in</strong>ation. The term self-directed care has beendef<strong>in</strong>ed as a system that is “<strong>in</strong>tended to allow <strong>in</strong>formed consumers to assesstheir own needs. . . determ<strong>in</strong>e how and by whom these needs should be met,and monitor the quality of services they receive” (Dougherty, 2003). Selfdeterm<strong>in</strong>ationis a philosophy designed to help persons “build [mean<strong>in</strong>gfullives] with effective opportunities to develop and reach valued life goals”(Cook et al., 2004). It “focuses on the degree to which human behaviors arevolitional. . . that is, the extent to which people. . . engage <strong>in</strong> [their] actionswith a full sense of choice” (Cook et al., 2004). As Nerney (2001) states, selfdeterm<strong>in</strong>ationis based on five pr<strong>in</strong>ciples:2Effective decisions are <strong>in</strong>formed, consistent with personal values, implemented, and associated with an<strong>in</strong>creased likelihood of positive outcomes (O’Connor, 1995).<strong>Shared</strong> <strong>Decision</strong>-<strong>Mak<strong>in</strong>g</strong> <strong>in</strong> <strong>Mental</strong> <strong>Health</strong> <strong>Care</strong>:Practice, Research, and Future Directions
49• Freedom to live <strong>in</strong> the community;• Authority over the funds needed for one’s own care;• Support for participants’ efforts to make the choices that are best forthem;• Responsibility for manag<strong>in</strong>g f<strong>in</strong>ances, choos<strong>in</strong>g services, and handl<strong>in</strong>gthe tasks of daily liv<strong>in</strong>g, and for the appropriate use of public funds; and• Confirmation or Participation, that is, the opportunity for service recipientsto participate <strong>in</strong> decision mak<strong>in</strong>g about the care delivery system.. . . self-directed care represents one method for achiev<strong>in</strong>g the goals of selfdeterm<strong>in</strong>ationand ultimately of a recovery-oriented system through changes<strong>in</strong> f<strong>in</strong>anc<strong>in</strong>g and the elim<strong>in</strong>ation of third parties <strong>in</strong> the health care system(pp. 3-4).Neal Adams, M.D., M.P.H., and Diane Grieder, M.Ed., who authored the text,Treatment Plann<strong>in</strong>g for Person-Centered <strong>Care</strong>: The Road to <strong>Mental</strong> <strong>Health</strong> andAddiction Recovery, state that person-centered care is characterized as a partnershipbetween the provider and consumer that establishes mean<strong>in</strong>gful recovery andwellness goals for consumers and a therapeutic relationship that is collaborative,consultative, and mentor<strong>in</strong>g (Adams & Grieder, 2004). The person-centered approachhelps the provider recognize consumers’ strengths and unique cultural backgrounds,and helps consumers to become good problem-solvers on the road to recovery.This process can also help providers to better communicate with payers,document medical necessity, and coord<strong>in</strong>ate services. A thorough discussion of theorig<strong>in</strong>s of person-centered plann<strong>in</strong>g by C. O’Brien and J. O’Brien can be found athttp://thechp.syr.edu/PCP_History.pdf.Models of <strong>Decision</strong>-<strong>Mak<strong>in</strong>g</strong> <strong>in</strong> <strong>Health</strong> <strong>Care</strong><strong>Shared</strong> decision-mak<strong>in</strong>g as a model of care falls between the traditional (paternalistic)medical model and the <strong>in</strong>formed choice model (Charles et al., 1997; Hamann etal., 2003). In the traditional model, the care provider controls <strong>in</strong>formation exchangeand decision-mak<strong>in</strong>g. Consumer values, expertise, and preferences are not necessarilyconsidered, and are not weighed equally with those of the care provider ifconsidered. The ma<strong>in</strong> (passive) consumer role is to be a “good patient” <strong>in</strong> comply<strong>in</strong>gwith the prescribed treatment (Emanuel & Emanuel, 1992). In the <strong>in</strong>formed choicemodel, the care recipient actively controls the <strong>in</strong>formation exchange and decisionmak<strong>in</strong>gabout the options (Hamann et al., 2003), but without necessarily tak<strong>in</strong>gthe provider’s perspective <strong>in</strong>to account or weigh<strong>in</strong>g it equally <strong>in</strong> decision-mak<strong>in</strong>g.<strong>Shared</strong> <strong>Decision</strong>-<strong>Mak<strong>in</strong>g</strong> <strong>in</strong> <strong>Mental</strong> <strong>Health</strong> <strong>Care</strong>:Practice, Research, and Future Directions
- Page 4: iiContentsIntroduction ............
- Page 11 and 12: 5outpatient commitment (Holmes-Rovn
- Page 13 and 14: 7Advantages• Practitioners can be
- Page 15: 9Section 2The Practice of SharedDec
- Page 22 and 23: 16Section 3SDM ResearchCurrent rese
- Page 24: 18Mental health care providers are
- Page 27 and 28: 21want mental health treatment or d
- Page 29: 23Some participants raised concerns
- Page 37 and 38: 31Section 6ConclusionsShared decisi
- Page 39 and 40: 33Fellowes, D., Wilkinson, S., & Mo
- Page 41 and 42: 35Power, A. Kathryn. (July 10, 2007
- Page 43 and 44: 37Appendix AResourcesThis list is p
- Page 45 and 46: 39Appendix BShared Decision-MakingM
- Page 47 and 48: 41Annelle Primm, M.D., M.P.H.Direct
- Page 49 and 50: 43Supplement 1Shared Decision-Makin
- Page 51 and 52: 45IntroductionThe consumer-driven r
- Page 53: 47Background: Definitions of SDM an
- Page 57 and 58: 51providers only (Wills & Homes-Rov
- Page 59: 53SDM for Schizophrenia TreatmentBu
- Page 63 and 64: 57I interact with my consumers; I f
- Page 65 and 66: 59ReferencesAdams, J. R., & Drake,
- Page 67 and 68: 61Elwyn, G., Edwards, A., Kinnersle
- Page 69 and 70: 63Murray, E., Pollack, L., White, M
- Page 71 and 72: 65Thistlethwaite, J., Evans, R., Ti
- Page 73 and 74: 67AbstractShared decision-making is
- Page 75 and 76: 69Confronting Critical Challenges:
- Page 77 and 78: 71into treatment should still be in
- Page 79 and 80: 73these approaches, people are more
- Page 81 and 82: 75consumers to engage with their pr
- Page 83 and 84: 77that were produced in the U.S., w
- Page 85 and 86: 79a healing partnership and develop
- Page 87 and 88: 81Shared Decision-Making in Mental
- Page 89 and 90: 83However, peer support requires st
- Page 91 and 92: 85ConclusionsImplementation of SDM
- Page 93 and 94: 87Fellowes, D., Wilkinson, S., & Mo
- Page 95 and 96: 89President’s Commission for the
- Page 97 and 98: 91Supplement 3Aids to Assist Shared
- Page 99 and 100: 93IntroductionSignificance of Share
- Page 101 and 102: 95In recent years, a variety of tec
- Page 103 and 104: 97• Provide balanced information,
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99Form of Access or AdministrationC
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101ences). Some of these Web-based
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103video about shared decision-maki
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105clarify one’s own values and p
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107potential results, than on quant
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109Once again, however, it is worth
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111who belong to minority groups or
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113Hamann, J., Langer, B., Winkler,
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U.S. DEPARTMENT OF HEALTH AND HUMAN