Marten J. Poley - Erasmus Universiteit Rotterdam

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96Chapter 6Table 6.5 CareQol Compared with the EQ-VASCareQol versusEQ-VASParents of patientswith ARM (n)Parents of patientswith CDH (n)Females Males Females MalesAll parents(n)CareQol > EQ-VAS 24% (26) 11% (11) 13% (6) 10% (4) 16% (47)CareQol = EQ-VAS 64% (70) 82% (80) 84% (38) 83% (34) 76% (222)CareQol < EQ-VAS 13% (14) 7% (7) 2% (1) 7% (3) 9% (25)Mean CareQol 74.15 (111) 81.64 (98) 83.60 (45) 84.32 (41) 79.49 (295)Mean EQ-VAS 74.91 (114) 81.78 (101) 83.47 (45) 84.10 (41) 79.75 (301)Table 6.6Regression AnalysisIndependent variables,standardized regression coefficients(Bêta) †Dependent variableFemale parentsDifferenceEQ-VASand EQ-VAS gpDifferenceEQ-5D andEQ-5D gpMale parentsDifferenceEQ-VASand EQ-VAS gp1) Congenital anomaly -0.21 ** -0.01 -0.05 0.02DifferenceEQ-5D andEQ-5D gp2) Child's age -0.03 0.01 -0.06 0.003) ARM symptom score -0.13 -0.09 -0.02 -0.134) CDH symptom score 0.03 -0.10 -0.05 -0.18 *5) Taking care alone or with a partner 0.02 -0.00 -0.10 -0.076) Having given up paid work 0.07 0.01 0.02 0.067) Unpaid activities to spend less time on -0.04 -0.08 0.02 -0.028) Gross income 0.11 0.20 * 0.15 0.179) Child's health-related quality of life 0.28 ** 0.08 0.24 ** 0.04Adjusted R 2 0.12 0.04 0.03 0.03***†GP = general population.Significant at the 0.05 level.Significant at the 0.01 level.Besides a constant. Forced entry (tolerance: 0.0001).Construct validity of the combination of EQ-VAS and CareQol. While the CareQolscore appeared not to differ significantly from the current health state asindicated on the EQ-VAS, this appeared however not to be the case for somesubgroups (Table 6.7). This verified the construct validity of the combination ofthe EQ-VAS and the CareQol. All 294 parents were divided into three groups. Ourhypotheses were largely confirmed. Generally, female parents, parents that hadto forgo paid work or unpaid activities, parents of children suffering manysymptoms and with a relatively low HRQoL (as reported by the parents) andparents with a relatively low HRQoL themselves (according to the EQ-VAS) wereover-represented in the subgroup of people who claimed that their health statewould increase in the CareQol scenario.
Informal Care for Children Born with Major Congenital Anomalies 97Table 6.7 CareQol Compared with the EQ-VAS (Both Female and Male Parents)CareQol >EQ-VAS (n)CareQol =EQ-VAS (n)CareQol
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COST-EFFECTIVENESS OF NEONATAL SURG
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DOCTORAL COMMITTEEPromotors:Prof.dr
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PUBLICATIONSChapters 2 to 7 are bas
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6ChapterINFORMAL CARE FOR CHILDREN
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2Chapter 11.1 BACKGROUND AND MOTIVA
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4Chapter 1provides a good overview
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6Chapter 1disability, and death of
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Introduction 9particular equity pri
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Introduction 1320. Oostenbrink JB,
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Introduction 1554. Heyman MB, Harma
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THE COST-EFFECTIVENESS OFTREATMENT
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Cost-Effectiveness of Treatment for
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36Chapter 3ABSTRACTBackground/Purpo
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38Chapter 33.2 MATERIALS AND METHOD
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40Chapter 3child's date of birth) a
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42Chapter 3diaphragm was closed (Ta
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44Chapter 3Total costs of treatment
Page 58 and 59: 46Chapter 3Regarding the treatment
Page 60 and 61: 48Chapter 3REFERENCES1. Stolk EA, P
Page 62 and 63: 50Chapter 332. Jaillard S, Pierrat
Page 64 and 65: 52Chapter 4ABSTRACTAims:To examine
Page 66 and 67: 54Chapter 4Outcome measuresThe pati
Page 68 and 69: 56Chapter 4Clearly, the symptoms st
Page 70 and 71: 58Chapter 4The respondents did not
Page 72 and 73: 60Chapter 4Table 4.4TAIQOL Scores o
Page 74 and 75: 62Chapter 44.4 DISCUSSIONIn this pa
Page 76 and 77: 64Chapter 4ACKNOWLEDGMENTSWe are in
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Page 88 and 89: 76Chapter 5Table 5.3 Direct Medical
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Page 92 and 93: 80Chapter 5severely ill newborns—
Page 94 and 95: 82Chapter 5REFERENCES1. Bartlett RH
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Page 100 and 101: 88Chapter 6ABSTRACTObjective:To inv
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Page 106 and 107: 94Chapter 6that caregiving for thei
Page 110 and 111: 98Chapter 6children with a disabili
Page 112 and 113: 100Chapter 6This study was of impor
Page 114 and 115: 102Chapter 618. Poley MJ, Stolk EA,
Page 116 and 117: 104Chapter 654. Boman KK, Viksten J
Page 118 and 119: 106Chapter 7ABSTRACTMortality rates
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Page 122 and 123: 110Chapter 7In the early 2000s, our
Page 124 and 125: 112Chapter 7Table 7.1 Economic Eval
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Page 128 and 129: 116Chapter 7also expect that life-s
Page 130 and 131: 118Chapter 7entirely justified, for
Page 132 and 133: 120Chapter 723. Sydorak RM, Nijagal
Page 134 and 135: 122Chapter 765. Glaser AW, Davies K
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Page 156 and 157: 144Glossaryefficient one. We are th
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SUMMARY
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Summary 149mortality. Finally, it i
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Summary 151neonatal surgery. It is
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SAMENVATTING
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Samenvatting 155zoals directe niet-
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Samenvatting 157Hoofdstuk 6 gaat ve
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Samenvatting 159vereisen, waarvoor
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162AcknowledgmentsAlthough I am ind
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About the AuthorBorn in De Meern (N
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Marten J. Poley - Erasmus Universiteit Rotterdam

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