Marten J. Poley - Erasmus Universiteit Rotterdam

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64Chapter 4ACKNOWLEDGMENTSWe are indebted to R.A.T.M. Langemeijer for his invaluable assistance in the development ofthe ARM symptoms checklist; T. Vogels for his help in processing and interpreting the TAIQOLand TACQOL data; S.A. Adams and J. Hagoort for editing the manuscript; and F.W.J.Hazebroek and F.F.H. Rutten for their encouragement and support. The financial support of theSwart-Van Essen Foundation is gratefully acknowledged.
Short-Term and Long-Term Health-Related Quality of Life after ARM and CDH 65REFERENCES1. Stolk EA, Post HA, Rutten FFH,Molenaar JC, Busschbach JJV: Costeffectivenessof neonatal surgery: areview. J Pediatr Surg 2000; 35(4):588-592.2. <strong>Poley</strong> MJ, Stolk EA, Langemeijer RATM,Molenaar JC, Busschbach JJV: The costeffectivenessof neonatal surgery andsubsequent treatment for congenitalanorectal malformations. J Pediatr Surg2001; 36(10): 1471-1478.3. <strong>Poley</strong> MJ, Stolk EA, Tibboel D, MolenaarJC, Busschbach JJV: The costeffectivenessof treatment forcongenital diaphragmatic hernia. JPediatr Surg 2002; 37(9): 1245-1252.4. Ravitch MM, Barton BA: The need forpediatric surgeons as determined by thevolume of work and the mode ofdelivery of surgical care. Surgery 1974;76(5): 754-763.5. Chetcuti P, Myers NA, Phelan PD,Beasley SW: Adults who survived repairof congenital oesophageal atresia andtracheo-oesophageal fistula. Br Med J1988; 297(6644): 344-346.6. Hassink EAM, Rieu PNMA, BrugmanATM, Festen C: Quality of life afteroperatively corrected high anorectalmalformation: a long-term follow-upstudy of patients aged 18 years andolder. J Pediatr Surg 1994; 29(6): 773-776.7. Rintala R, Mildh L, Lindahl H: Fecalcontinence and quality of life for adultpatients with an operated high orintermediate anorectal malformation. JPediatr Surg 1994; 29(6): 777-780.8. Ludman L, Spitz L: Psychosocialadjustment of children treated foranorectal anomalies. J Pediatr Surg1995; 30(3): 495-499.9. Peña A: Anorectal malformations.Semin Pediatr Surg 1995; 4(1): 35-47.10. Koot VCM, Bergmeijer JH, Bos AP,Molenaar JC: Incidence andmanagement of gastroesophageal refluxafter repair of congenital diaphragmatichernia. J Pediatr Surg 1993; 28(1): 48-52.11. Nobuhara KK, Lund DP, Mitchell J,Kharasch V, Wilson JM: Long-termoutlook for survivors of congenitaldiaphragmatic hernia. Clin Perinatol1996; 23(4): 873-887.12. IJsselstijn H, Tibboel D, Hop WJC,Molenaar JC, Jongste JCd: Long-termpulmonary sequelae in children withcongenital diaphragmatic hernia. Am JRespir Crit Care Med 1997; 155(1):174-180.13. Wilson IB, Cleary PD: Linking clinicalvariables with health-related quality oflife. A conceptual model of patientoutcomes. JAMA 1995; 273(1): 59-65.14. TNO Prevention and Health, Universityof Leiden Pediatric Department: TheTAIQOL, a quality of life questionnairefor children of 1-4 years [in Dutch].Leiden: TNO/LUMC; 1997.15. Vogels T, Verrips GHW, Verloove-Vanhorick SP, Fekkes M, Kamphuis RP,Koopman HM, et al: Measuring healthrelatedquality of life in children: thedevelopment of the TACQOL parentform. Qual Life Res 1998; 7(5): 457-465.16. Vogels T, Verrips GHW, Koopman HM,Theunissen NCCN, Fekkes M, KamphuisRP: TACQOL parent form and childform; manual (draft). Leiden: LeidenChild Center for Child Health andPaediatrics; 1998.17. Fekkes M, Theunissen NCM, Brugman E,Veen S, Verrips EGH, Koopman HM, etal: Development and psychometricevaluation of the TAPQOL: a healthrelatedquality of life instrument for 1-5-year-old children. Qual Life Res 2000;9(8): 961-972.
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COST-EFFECTIVENESS OF NEONATAL SURG
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DOCTORAL COMMITTEEPromotors:Prof.dr
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PUBLICATIONSChapters 2 to 7 are bas
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6ChapterINFORMAL CARE FOR CHILDREN
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2Chapter 11.1 BACKGROUND AND MOTIVA
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4Chapter 1provides a good overview
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6Chapter 1disability, and death of
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Introduction 9particular equity pri
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Page 27 and 28: Introduction 1554. Heyman MB, Harma
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Page 48 and 49: 36Chapter 3ABSTRACTBackground/Purpo
Page 50 and 51: 38Chapter 33.2 MATERIALS AND METHOD
Page 52 and 53: 40Chapter 3child's date of birth) a
Page 54 and 55: 42Chapter 3diaphragm was closed (Ta
Page 56 and 57: 44Chapter 3Total costs of treatment
Page 58 and 59: 46Chapter 3Regarding the treatment
Page 60 and 61: 48Chapter 3REFERENCES1. Stolk EA, P
Page 62 and 63: 50Chapter 332. Jaillard S, Pierrat
Page 64 and 65: 52Chapter 4ABSTRACTAims:To examine
Page 66 and 67: 54Chapter 4Outcome measuresThe pati
Page 68 and 69: 56Chapter 4Clearly, the symptoms st
Page 70 and 71: 58Chapter 4The respondents did not
Page 72 and 73: 60Chapter 4Table 4.4TAIQOL Scores o
Page 74 and 75: 62Chapter 44.4 DISCUSSIONIn this pa
Page 78 and 79: 66Chapter 418. Coons SJ, Rao S, Kei
Page 80 and 81: 68Chapter 5ABSTRACTObjective:Extrac
Page 82 and 83: 70Chapter 5treatment. 26,27 Finally
Page 84 and 85: 72Chapter 5CostsOnly direct costs w
Page 86 and 87: 74Chapter 5summarized in Table 5.2.
Page 88 and 89: 76Chapter 5Table 5.3 Direct Medical
Page 90 and 91: 78Chapter 5Figure 5.3 illustrates o
Page 92 and 93: 80Chapter 5severely ill newborns—
Page 94 and 95: 82Chapter 5REFERENCES1. Bartlett RH
Page 96 and 97: 84Chapter 533. Meinert CL: Extracor
Page 98 and 99: 86Chapter 568. Hui TT, Danielson PD
Page 100 and 101: 88Chapter 6ABSTRACTObjective:To inv
Page 102 and 103: 90Chapter 6a rule. The health-relat
Page 104 and 105: 92Chapter 6Regression analysis of h
Page 106 and 107: 94Chapter 6that caregiving for thei
Page 108 and 109: 96Chapter 6Table 6.5 CareQol Compar
Page 110 and 111: 98Chapter 6children with a disabili
Page 112 and 113: 100Chapter 6This study was of impor
Page 114 and 115: 102Chapter 618. Poley MJ, Stolk EA,
Page 116 and 117: 104Chapter 654. Boman KK, Viksten J
Page 118 and 119: 106Chapter 7ABSTRACTMortality rates
Page 120 and 121: 108Chapter 77.2 THE RELEVANCE OF CO
Page 122 and 123: 110Chapter 7In the early 2000s, our
Page 124 and 125: 112Chapter 7Table 7.1 Economic Eval
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114Chapter 7More from a policy pers
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116Chapter 7also expect that life-s
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118Chapter 7entirely justified, for
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120Chapter 723. Sydorak RM, Nijagal
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122Chapter 765. Glaser AW, Davies K
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GENERAL DISCUSSION:A GUIDED TOURPRO
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General Discussion: A Guided Tour P
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142GlossaryCharge (or: tariff)A pri
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144Glossaryefficient one. We are th
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SUMMARY
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Summary 149mortality. Finally, it i
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Summary 151neonatal surgery. It is
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SAMENVATTING
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Samenvatting 155zoals directe niet-
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Samenvatting 157Hoofdstuk 6 gaat ve
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Samenvatting 159vereisen, waarvoor
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162AcknowledgmentsAlthough I am ind
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About the AuthorBorn in De Meern (N
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Marten J. Poley - Erasmus Universiteit Rotterdam

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