86Chapter 568. Hui TT, Danielson PD, Anderson KD,Stein JE: The impact of changingneonatal respiratory management onextracorporeal membrane oxygenationutilization. J Pediatr Surg 2002; 37(5):703-705.69. Arensman RM, Statter MB, BastawrousAL, Madonna MB: Modern treatmentmodalities for neonatal and pediatricrespiratory failure. Am J Surg 1996;172(1): 41-47.70. Cornish JD: The changing pattern ofneonatal ECMO. Do we really need it? InTibboel D, Voort Evd (eds): Intensivecare in childhood: a challenge to thefuture (Update in intensive care andemergency medicine; 25). Berlin:Springer-Verlag; 1996.71. McGettigan MC, Adolph VR, GinsbergHG, Goldsmith JP: New ways to ventilatenewborns in acute respiratory failure.Pediatr Clin North Am 1998; 45(3): 475-509.72. Schumacher RE: Extracorporealmembrane oxygenation. Will thistherapy continue to be as efficacious inthe future? Pediatr Clin North Am 1993;40(5): 1005-1022.73. Goddard-Finegold J: Neurologicaloutcome after extracorporeal membraneoxygenation therapy in the newborn. InWright LL (eds): Report of the workshopon diffusion of ECMO technology. NIHpublication no. 93-3399. Washington,D.C.: U.S. Department of Health andHuman Services; 1993.74. Rais-Bahrami K, Wagner AE, Coffman C,Glass P, Short BL: Neurodevelopmentaloutcome in ECMO vs near-miss ECMOpatients at 5 years of age. Clin Pediatr(Phila) 2000; 39(3): 145-152.76. Bennett CC, Johnson A, Field DJ,Elbourne D: UK collaborative randomisedtrial of neonatal extracorporealmembrane oxygenation: follow-up toage 4 years. Lancet 2001; 357(9262):1094-1096.77. Bernbaum J, Schwartz IP, Gerdes M,D'Agostino JA, Coburn CE, Polin RA:Survivors of extracorporeal membraneoxygenation at 1 year of age: therelationship of primary diagnosis withhealth and neurodevelopmentalsequelae. Pediatrics 1995; 96(5): 907-913.78. Jaillard S, Pierrat V, Truffert P, Métois D,Riou Y, Wurtz A, et al: Two years' followupof newborn infants afterextracorporeal membrane oxygenation(ECMO). Eur J Cardiothorac Surg 2000;18(3): 328-333.79. Wilson IB, Cleary PD: Linking clinicalvariables with health-related quality oflife. A conceptual model of patientoutcomes. JAMA 1995; 273(1): 59-65.80. Davis PJ, Firmin RK, Manktelow B,Goldman AP, Davis CF, Smith JH, et al:Long-term outcome followingextracorporeal membrane oxygenationfor congenital diaphragmatic hernia: theUK experience. J Pediatr 2004; 144(3):309-315.81. Glass P, Wagner AE, Papero PH,Rajasingham SR, Civitello LA, Kjaer MS,et al: Neurodevelopmental status at agefive years of neonates treated withextracorporeal membrane oxygenation. JPediatr 1995; 127(3): 447-457.82. Kanto WP, Bunyapen C: Extracorporealmembrane oxygenation. Controversies inselection of patients and management.Clin Perinatol 1998; 25(1): 123-135.75. Beardsmore C, Dundas I, Poole K, EnockK, Stocks J: Respiratory function insurvivors of the United KingdomExtracorporeal Membrane OxygenationTrial. Am J Respir Crit Care Med 2000;161(4 Pt 1): 1129-1135.
INFORMAL CARE FORCHILDREN BORN WITHMAJOR CONGENITALANOMALIES: WHAT DOESIT ASK AND WHAT DOESIT DO TO PARENTS'HEALTH-RELATEDQUALITY OF LIFE?
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DOCTORAL COMMITTEEPromotors:Prof.dr
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2Chapter 11.1 BACKGROUND AND MOTIVA
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6Chapter 1disability, and death of
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Introduction 9particular equity pri
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Introduction 1554. Heyman MB, Harma
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THE COST-EFFECTIVENESS OFTREATMENT
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Cost-Effectiveness of Treatment for
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Cost-Effectiveness of Treatment for
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Cost-Effectiveness of Treatment for
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Cost-Effectiveness of Treatment for
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Cost-Effectiveness of Treatment for
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Cost-Effectiveness of Treatment for
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Cost-Effectiveness of Treatment for
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- Page 116 and 117: 104Chapter 654. Boman KK, Viksten J
- Page 118 and 119: 106Chapter 7ABSTRACTMortality rates
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142GlossaryCharge (or: tariff)A pri
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144Glossaryefficient one. We are th
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SUMMARY
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Summary 149mortality. Finally, it i
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Summary 151neonatal surgery. It is
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SAMENVATTING
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Samenvatting 155zoals directe niet-
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Samenvatting 157Hoofdstuk 6 gaat ve
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Samenvatting 159vereisen, waarvoor
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162AcknowledgmentsAlthough I am ind
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About the AuthorBorn in De Meern (N