122Chapter 765. Glaser AW, Davies K, Walker D, BrazierD: Influence of proxy respondents andmode of administration on health statusassessment following central nervoussystem tumours in childhood. Qual LifeRes 1997; 6(1): 43-53.66. Theunissen NCM, Vogels TGC, KoopmanHM, Verrips GHW, Zwinderman KAH,Verloove-Vanhorick SP, et al: The proxyproblem: child report versus parentreport in health-related quality of liferesearch. Qual Life Res 1998; 7(5): 387-397.67. Fekkes M, Theunissen NCM, Brugman E,Veen S, Verrips EGH, Koopman HM, etal: Development and psychometricevaluation of the TAPQOL: a healthrelatedquality of life instrument for 1-5-year-old children. Qual Life Res 2000;9(8): 961-972.68. Stolk EA, Busschbach JJV, Vogels T:Performance of the EuroQol in childrenwith imperforate anus. Qual Life Res2000; 9(1): 29-38.69. Vogels T, Verrips GHW, Verloove-Vanhorick SP, Fekkes M, Kamphuis RP,Koopman HM, et al: Measuring healthrelatedquality of life in children: thedevelopment of the TACQOL parentform. Qual Life Res 1998; 7(5): 457-465.70. Bilodeau JA: A home parenteral nutritionprogram for infants. J Obstet GynecolNeonatal Nurs 1995; 24(1): 72-76.71. Koehler AN, Yaworski JA, Gardner M,Kocoshis S, Reyes J, Barksdale EM:Coordinated interdisciplinarymanagement of pediatric intestinalfailure: a 2-year review. J Pediatr Surg2000; 35(2): 380-385.72. Likitmaskul S, Wekawanich J, WongarnR, Chaichanwatanakul K, KiattisakthaveeP, Nimkarn S, et al: Intensive diabeteseducation program and multidisciplinaryteam approach in management of newlydiagnosed type 1 diabetes mellitus: agreater patient benefit, experience atSiriraj Hospital. J Med Assoc Thai 2002;85(Suppl 2): S488-S495.73. Srinivasan S, Craig ME, Beeney L, HayesR, Harkin N, Ambler GR, et al: Anambulatory stabilisation program forchildren with newly diagnosed type 1diabetes. Med J Aust 2004; 180(6): 277-280.74. Chibbaro PD: Living with craniofacialmicrosomia: support for the patient andfamily. Cleft Palate Craniofac J 1999;36(1): 40-42.75. Cunningham CC, Aumonier ME, Sloper P:Health visitor support for families withDown's syndrome infants. Child CareHealth Dev 1982; 8(1): 1-19.76. Kirk S: Families' experiences of caring athome for a technology-dependent child:a review of the literature. Child CareHealth Dev 1998; 24(2): 101-114.77. Shapiro J, Simonsen D:Educational/support group for Latinofamilies of children with Downsyndrome. Ment Retard 1994; 32(6):403-415.78. Brouwer WBF, Hout BAv, Rutten FFH: Afair approach to discounting futureeffects: taking a societal perspective. JHealth Serv Res Policy 2000; 5(2): 114-118.79. Brouwer WBF, Niessen LW, Postma MJ,Rutten FFH: Need for differentialdiscounting of costs and health effects incost effectiveness analyses. Br Med J2005; 331(7514): 446-448.80. Hout BAv: Discounting costs and effects:a reconsideration. Health Econ 1998;7(7): 581-594.81. Lazaro A: Theoretical arguments for thediscounting of health consequences:where do we go from here?Pharmacoeconomics 2002; 20(14): 943-961.82. Severens JL, Milne RJ: Discountinghealth outcomes in economic evaluation:the ongoing debate. Value Health 2004;7(4): 397-401.
Cost-Effectiveness of Neonatal Surgery: First Skepticized, Now Increasingly Accepted 12383. Smith DH, Gravelle H: The practice ofdiscounting in economic evaluations ofhealthcare interventions. Int J TechnolAssess Health Care 2001; 17(2): 236-243.84. Keren R, Pati S, Feudtner C: Thegeneration gap: differences betweenchildren and adults pertinent toeconomic evaluations of healthinterventions. Pharmacoeconomics2004; 22(2): 71-81.85. Harris J: QALYfying the value of life. JMed Ethics 1987; 13: 117-123.86. Pronk MH, Bonsel GJ: Out-patient drugpolicy by clinical assessment rather thanfinancial constraints? The gate-keepingfunction of the out-patient drugreimbursement system in TheNetherlands. Eur J Health Econ 2004;5(3): 274-277.87. Lindholm L, Rosen M, Emmelin M: Howmany lives is equity worth? A proposalfor equity adjusted years of life saved. JEpidemiol Community Health 1998;52(12): 808-811.88. Jacobs P, Finer NN, Robertson CM,Etches P, Hall EM, Saunders LD: A costeffectivenessanalysis of the applicationof nitric oxide versus oxygen gas fornear-term newborns with respiratoryfailure: results from a Canadianrandomized clinical trial. Crit Care Med2000; 28(3): 872-878.89. Angus DC, Clermont G, Watson RS,Linde-Zwirble WT, Clark RH, RobertsMS: Cost-effectiveness of inhaled nitricoxide in the treatment of neonatalrespiratory failure in the United States.Pediatrics 2003; 112(6 Pt 1): 1351-1360.90. Bufo AJ, Chen MK, Shah R, Gross E, CyrN, Lobe TE: Analysis of the costs ofsurgery for Hirschsprung's disease: onestagelaparoscopic pull-through versustwo-stage Duhamel procedure. ClinPediatr (Phila) 1999; 38(10): 593-596.91. Medina LS, Richardson RR, Crone K:Children with suspectedcraniosynostosis: a cost-effectivenessanalysis of diagnostic strategies. AJR AmJ Roentgenol 2002; 179(1): 215-221.92. Mandell GA, Wolfson PJ, Adkins ES, CaroPA, Cassell I, Finkelstein MS, et al: Costeffectiveimaging approach to thenonbilious vomiting infant. Pediatrics1999; 103(6 Pt 1): 1198-1202.93. Leinwand MJ, Shaul DB, Anderson KD: Astandardized feeding regimen forhypertrophic pyloric stenosis decreaseslength of hospitalization and hospitalcosts. J Pediatr Surg 2000; 35(7): 1063-1065.94. Puapong D, Kahng D, Ko A, ApplebaumH: Ad libitum feeding: safely improvingthe cost-effectiveness ofpyloromyotomy. J Pediatr Surg 2002;37(12): 1667-1668.95. Van Howe RS: A cost-utility analysis ofneonatal circumcision. Med Decis Making2004; 24(6): 584-601.96. Sassi F, Archard L, McDaid D: Searchingliterature databases for health careeconomic evaluations: how systematiccan we afford to be? Med Care 2002;40(5): 387-394.
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DOCTORAL COMMITTEEPromotors:Prof.dr
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PUBLICATIONSChapters 2 to 7 are bas
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6ChapterINFORMAL CARE FOR CHILDREN
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2Chapter 11.1 BACKGROUND AND MOTIVA
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4Chapter 1provides a good overview
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6Chapter 1disability, and death of
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Introduction 9particular equity pri
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Introduction 1320. Oostenbrink JB,
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Introduction 1554. Heyman MB, Harma
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THE COST-EFFECTIVENESS OFTREATMENT
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Cost-Effectiveness of Treatment for
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Cost-Effectiveness of Treatment for
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Cost-Effectiveness of Treatment for
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Cost-Effectiveness of Treatment for
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Cost-Effectiveness of Treatment for
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Cost-Effectiveness of Treatment for
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Cost-Effectiveness of Treatment for
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36Chapter 3ABSTRACTBackground/Purpo
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38Chapter 33.2 MATERIALS AND METHOD
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40Chapter 3child's date of birth) a
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42Chapter 3diaphragm was closed (Ta
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44Chapter 3Total costs of treatment
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46Chapter 3Regarding the treatment
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48Chapter 3REFERENCES1. Stolk EA, P
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50Chapter 332. Jaillard S, Pierrat
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52Chapter 4ABSTRACTAims:To examine
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54Chapter 4Outcome measuresThe pati
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56Chapter 4Clearly, the symptoms st
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58Chapter 4The respondents did not
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60Chapter 4Table 4.4TAIQOL Scores o
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62Chapter 44.4 DISCUSSIONIn this pa
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64Chapter 4ACKNOWLEDGMENTSWe are in
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66Chapter 418. Coons SJ, Rao S, Kei
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68Chapter 5ABSTRACTObjective:Extrac
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70Chapter 5treatment. 26,27 Finally
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- Page 94 and 95: 82Chapter 5REFERENCES1. Bartlett RH
- Page 96 and 97: 84Chapter 533. Meinert CL: Extracor
- Page 98 and 99: 86Chapter 568. Hui TT, Danielson PD
- Page 100 and 101: 88Chapter 6ABSTRACTObjective:To inv
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- Page 112 and 113: 100Chapter 6This study was of impor
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- Page 116 and 117: 104Chapter 654. Boman KK, Viksten J
- Page 118 and 119: 106Chapter 7ABSTRACTMortality rates
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- Page 132 and 133: 120Chapter 723. Sydorak RM, Nijagal
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- Page 154 and 155: 142GlossaryCharge (or: tariff)A pri
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- Page 161 and 162: Summary 149mortality. Finally, it i
- Page 163 and 164: Summary 151neonatal surgery. It is
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- Page 167 and 168: Samenvatting 155zoals directe niet-
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- Page 174 and 175: 162AcknowledgmentsAlthough I am ind
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