138Chapter 8REFERENCES1. Deurloo JA: Oesophageal atresia:history, treatment, and long-termresults [thesis]. Amsterdam, theNetherlands: University of Amsterdam;2005.2. Hartman EE, Oort FJ, Aronson DC,Hanneman MJG, Zee DCvd, Rieu PNMA,et al: Critical factors affecting quality oflife of adult patients with anorectalmalformations or Hirschsprung'sdisease. Am J Gastroenterol 2004;99(5): 907-913.3. Zhengwei Y, Weilin W, Yuzuo B, WeisongC, Wei W: Long-term outcomes ofindividualized biofeedback training basedon the underlying dysfunction forpatients with imperforate anus. J PediatrSurg 2005; 40(3): 555-561.4. Da Silva GM, Jorge JMN, Belin B,Nogueras JJ, Weiss EG, Vernava AM, etal: New surgical options for fecalincontinence in patients with imperforateanus. Dis Colon Rectum 2004; 47(2):204-209.5. Koivusalo A, Pakarinen M, Vanamo K,Lindahl H, Rintala RJ: Health-relatedquality of life in adults after repair ofcongenital diaphragmatic defects - aquestionnaire study. J Pediatr Surg2005; 40(9): 1376-1381.6. West SD, Wilson JM: Follow up of infantswith congenital diaphragmatic hernia.Semin Perinatol 2005; 29(2): 129-133.7. Weerd Sd, Steegers EAP: The past andpresent practices and continuingcontroversies of preconception care.Community Genet 2002; 5(1): 50-60.8. Weerd Sd, Bij AKvd, Cikot RJLM,Braspenning JCC, Braat DDM, SteegersEAP: Preconception care: a screeningtool for health assessment and riskdetection. Prev Med 2002; 34(5): 505-511.9. Hartman EE, Sprangers MAG, VisserMRM, Oort FJ, Hanneman MJG, HeurnLWEv, et al: Anorectal malformations:does healthcare meet the needs? JPediatr Gastroenterol Nutr 2005; 41(2):210-215.10. Viner R: Transition from paediatric toadult care. Bridging the gaps or passingthe buck? Arch Dis Child 1999; 81(3):271-275.11. Hollenbeak CS, Dillon PW: Anintroduction to economic evaluation forpediatric surgeons. Semin Pediatr Surg2002; 11(1): 55-59.12. Neumann PJ: Why don't Americans usecost-effectiveness analysis? Am J ManagCare 2004; 10(5): 308-312.13. Robinson R: Limits to rationality:economics, economists and prioritysetting. Health Policy 1999; 49(1-2): 13-26.14. Schmidt VH: Models of health carerationing. Curr Sociol 2004; 52(6): 969-988.15. Drummond MF, Torrance GW, Mason J:Cost-effectiveness league tables: moreharm than good? Soc Sci Med 1993;37(1): 33-40.16. Gerard K, Mooney G: QALY leaguetables: handle with care. Health Econ1993; 2: 59-64.17. Drummond M, Cooke J, Walley T:Economic evaluation under managedcompetition: evidence from the U.K. SocSci Med 1997; 45(4): 583-595.18. Hoffmann C, Graf von der SchulenburgJM: The influence of economic evaluationstudies on decision making. A Europeansurvey. Health Policy 2000; 52(3): 179-192.19. Ross J: The use of economic evaluationin health care: Australian decisionmakers' perceptions. Health Policy 1995;31(2): 103-110.
General Discussion: A Guided Tour Providing Four Different Views of the Results 13920. Zwart-van Rijkom JEF, Leufkens HGM,Busschbach JJV, Broekmans AW, RuttenFFH: Differences in attitudes, knowledgeand use of economic evaluations indecision-making in The Netherlands. TheDutch results from the EUROMETProject. Pharmacoeconomics 2000;18(2): 149-160.21. Stolk EA, Post HA, Rutten FFH, MolenaarJC, Busschbach JJV: Cost-effectivenessof neonatal surgery: a review. J PediatrSurg 2000; 35(4): 588-592.22. Doyle NM, Lally KP: The CDH StudyGroup and advances in the clinical careof the patient with congenitaldiaphragmatic hernia. Semin Perinatol2004; 28(3): 174-184.23. Hout BAv: Whom and how to treat:weighing the costs and effects. Scand JGastroenterol Suppl 2003; (239): 3-10.24. Nyman JA: Should the consumption ofsurvivors be included as a cost in costutilityanalysis? Health Econ 2004;13(5): 417-427.25. Ramsey S, Willke R, Briggs A, Brown R,Buxton M, Chawla A, et al: Goodresearch practices for cost-effectivenessanalysis alongside clinical trials: theISPOR RCT-CEA task force report. ValueHealth 2005; 8(5): 521-533.26. Ungar WJ, Santos MT: The PediatricQuality Appraisal Questionnaire: aninstrument for evaluation of the pediatrichealth economics literature. ValueHealth 2003; 6(5): 584-594.27. Ungar WJ, Santos MT: Quality appraisalof pediatric health economic evaluations.Int J Technol Assess Health Care 2005;21(2): 203-210.28. De Civita M, Regier D, Alamgir AH, AnisAH, Fitzgerald MJ, Marra CA: Evaluatinghealth-related quality-of-life studies inpaediatric populations: some conceptual,methodological and developmentalconsiderations and recent applications.Pharmacoeconomics 2005; 23(7): 659-685.29. Griebsch I, Coast J, Brown J: Qualityadjustedlife-years lack quality inpediatric care: a critical review ofpublished cost-utility studies in childhealth. Pediatrics 2005; 115(5): e600-e614.30. Petrou S: Methodological issues raisedby preference-based approaches tomeasuring the health status of children.Health Econ 2003; 12(8): 697-702.31. Petrou S, Henderson J: Preference-basedapproaches to measuring the benefits ofperinatal care. Birth 2003; 30(4): 217-226.32. Feeny D, Furlong W, Boyle M, TorranceGW: Multi-attribute health statusclassification systems. Health UtilitiesIndex. Pharmacoeconomics 1995; 7(6):490-502.33. The EuroQol Group: EuroQol - a newfacility for the measurement of healthrelatedquality of life. Health Policy1990; 16(3): 199-208.34. Basu A, Meltzer D: Implications ofspillover effects within the family formedical cost-effectiveness analysis. JHealth Econ 2005; 24(4): 751-773.35. Christakis NA, Iwashyna TJ: The healthimpact of health care on families: amatched cohort study of hospice use bydecedents and mortality outcomes insurviving, widowed spouses. Soc Sci Med2003; 57(3): 465-475.36. Jacobsson F, Carstensen J, Borgquist L:Caring externalities in health economicevaluation: how are they related toseverity of illness? Health Policy 2005;73(2): 172-182.37. Keren R, Pati S, Feudtner C: Thegeneration gap: differences betweenchildren and adults pertinent toeconomic evaluations of healthinterventions. Pharmacoeconomics2004; 22(2): 71-81.
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DOCTORAL COMMITTEEPromotors:Prof.dr
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PUBLICATIONSChapters 2 to 7 are bas
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6ChapterINFORMAL CARE FOR CHILDREN
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2Chapter 11.1 BACKGROUND AND MOTIVA
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4Chapter 1provides a good overview
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6Chapter 1disability, and death of
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Introduction 9particular equity pri
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Introduction 1320. Oostenbrink JB,
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Introduction 1554. Heyman MB, Harma
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THE COST-EFFECTIVENESS OFTREATMENT
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Cost-Effectiveness of Treatment for
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Cost-Effectiveness of Treatment for
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Cost-Effectiveness of Treatment for
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Cost-Effectiveness of Treatment for
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Cost-Effectiveness of Treatment for
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Cost-Effectiveness of Treatment for
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Cost-Effectiveness of Treatment for
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36Chapter 3ABSTRACTBackground/Purpo
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38Chapter 33.2 MATERIALS AND METHOD
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40Chapter 3child's date of birth) a
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42Chapter 3diaphragm was closed (Ta
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44Chapter 3Total costs of treatment
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46Chapter 3Regarding the treatment
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48Chapter 3REFERENCES1. Stolk EA, P
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50Chapter 332. Jaillard S, Pierrat
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52Chapter 4ABSTRACTAims:To examine
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54Chapter 4Outcome measuresThe pati
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56Chapter 4Clearly, the symptoms st
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58Chapter 4The respondents did not
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60Chapter 4Table 4.4TAIQOL Scores o
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62Chapter 44.4 DISCUSSIONIn this pa
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64Chapter 4ACKNOWLEDGMENTSWe are in
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66Chapter 418. Coons SJ, Rao S, Kei
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68Chapter 5ABSTRACTObjective:Extrac
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70Chapter 5treatment. 26,27 Finally
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72Chapter 5CostsOnly direct costs w
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74Chapter 5summarized in Table 5.2.
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76Chapter 5Table 5.3 Direct Medical
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78Chapter 5Figure 5.3 illustrates o
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80Chapter 5severely ill newborns—
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82Chapter 5REFERENCES1. Bartlett RH
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84Chapter 533. Meinert CL: Extracor
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86Chapter 568. Hui TT, Danielson PD
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- Page 116 and 117: 104Chapter 654. Boman KK, Viksten J
- Page 118 and 119: 106Chapter 7ABSTRACTMortality rates
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