Marten J. Poley - Erasmus Universiteit Rotterdam

66Chapter 418. Coons SJ, Rao S, Keininger DL, HaysRD: A comparative review of genericquality-of-life instruments.Pharmacoeconomics 2000; 17(1): 13-35.19. Ware JE: SF-36 health survey update.Spine 2000; 25(24): 3130-3139.20. Bouman NH, Koot HM, Tibboel D,Hazebroek FWJ: Children withcongenital diaphragmatic hernia are atrisk for lower levels of cognitivefunctioning and increased emotionaland behavioral problems. Eur J PediatrSurg 2000; 10(1): 3-7.21. UK Collaborative ECMO Trial Group: UKcollaborative randomised trial ofneonatal extracorporeal membraneoxygenation. Lancet 1996; 348(9020):75-82.22. Kim ES, Stolar CJ: ECMO in thenewborn. Am J Perinatol 2000; 17(7):345-356.23. Hazebroek FWJ, Tibboel D, Leendertse-Verloop K, Bos AP, Madern GC,Molenaar JC: Evaluation of mortality insurgical neonates over a 10-yearperiod: nonpreventable, permissible,and preventable death. J Pediatr Surg1991; 26(9): 1058-1063.24. Hazebroek FWJ, Bouman NH, Tibboel D:The neonate with major malformations:experiences in a university children'shospital in the Netherlands. SeminPediatr Surg 2001; 10(4): 222-229.25. Canning EH, Hanser SB, Shade KA,Boyce WT: Mental disorders inchronically ill children: parent-childdiscrepancy and physician identification.Pediatrics 1992; 90(5): 692-696.26. Levi RB, Drotar D: Health-relatedquality of life in childhood cancer:discrepancy in parent-child reports. IntJ Cancer 1999; 83(S12): 58-64.27. Waters E, Doyle J, Wolfe R, Wright M,Wake M, Salmon L: Influence ofparental gender and self-reportedhealth and illness on parent-reportedchild health. Pediatrics 2000; 106(6):1422-1428.28. Glaser AW, Davies K, Walker D, BrazierD: Influence of proxy respondents andmode of administration on health statusassessment following central nervoussystem tumours in childhood. Qual LifeRes 1997; 6(1): 43-53.29. Theunissen NCM, Vogels TGC, KoopmanHM, Verrips GHW, Zwinderman KAH,Verloove-Vanhorick SP, et al: The proxyproblem: child report versus parentreport in health-related quality of liferesearch. Qual Life Res 1998; 7(5):387-397.30. Barr RD, Chalmers D, Pauw Sd, FurlongW, Weitzman S, Feeny D: Healthrelatedquality of life in survivors ofWilms' tumor and advancedneuroblastoma: a cross-sectional study.J Clin Oncol 2000; 18(18): 3280-3287.31. Ennett ST, DeVellis BM, Earp JA,Kredich D, Warren RW, Wilhelm CL:Disease experience and psychosocialadjustment in children with juvenilerheumatoid arthritis: children's versusmothers' reports. J Pediatr Psychol1991; 16(5): 557-568.32. Parsons SK, Barlow SE, Levy SL, SupranSE, Kaplan SH: Health-related quality oflife in pediatric bone marrow transplantsurvivors: according to whom? Int JCancer 1999; 83(S12): 46-51.33. Vance YH, Morse RC, Jenney ME, EiserC: Issues in measuring quality of life inchildhood cancer: measures, proxies,and parental mental health. J ChildPsychol Psychiatry 2001; 42(5): 661-667.34. Aaronson NK, Muller M, Cohen PDA,Essink-Bot ML, Fekkes M, Sanderman R,et al: Translation, validation, andnorming of the Dutch language versionof the SF-36 Health Survey incommunity and chronic diseasepopulations. J Clin Epidemiol 1998;51(11): 1055-1068.35. Ware JE, Kosinski M, Dewey JE: How toscore version 2 of SF-36® healthsurvey. Lincoln, RI: QualityMetric; 2000