Unveiling a fragile spirituality: Experiences of connectedness in pediatric palliative care

CONTENT
Prologue and Dedication 7
Chapter 1 11
Introduction
Chapter 2 29
Stories beyond Life and Death: Spiritual Experiences of Continuity and
Discontinuity among Parents who lose a Child
Chapter 3 51
Parental Physical Proximity in End-of-Life Care in the Pediatric Intensive
Care Unit
Chapter 4 69
The Importance of Parental Connectedness and Relationships with
Health Care Professionals in End-of-Life Care in the Pediatric Intensive
Care Unit
Chapter 5 89
The Fragile Spirituality of Parents whose Children died in the Pediatric
Intensive Care Unit
Chapter 6 111
Transcending Interpretations of Real Life Events: encountering Fragile
Spirituality
Chapter 7 125
General Discussion
Epilogue 141
Summary 147
Samenvatting 155
Dankwoord 167