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Health & Life Magazine April 2017

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W<br />

hat is Autism?<br />

Defining autism is not simple, and indeed the<br />

scientific community still has a way to go to<br />

understand this complex disorder. Autism, or<br />

Autism Spectrum Disorder (ASD) is a term that encompasses a<br />

range of symptoms, from mild to severe. These symptoms fit into<br />

two main categories:<br />

• Persistent deficits in social communication and social<br />

interaction: This includes reduced or lack of shared interests<br />

or emotions; issues with non-verbal communication, eyecontact<br />

and body-language; problems understanding and<br />

maintaining relationships; lack of facial expression.<br />

• Restricted, repetitive patterns of behavior, interests<br />

or activities: This includes repetitive motor movements<br />

or phrases; insistence on sameness; inflexible adherence to<br />

routines; rigid thinking patterns; unusual reactions to sensory<br />

aspects of the environment (indifference to pain, extreme<br />

reactions to certain sounds or smells, fascination with lights).<br />

Needless to say, autism affects the quality of life of those with<br />

the condition, as well as their families and caregivers. However,<br />

with the right support and opportunities, individuals with autism<br />

can live a full life and contribute to society like everyone else.<br />

WISH: Addressing ASD Worldwide<br />

According to WISH, there are over 52 million cases of ASD<br />

worldwide, a figure which has dramatically increased in the last<br />

few decades. And the cost is also ever-growing. In the US alone,<br />

the economic impact of ASD is expected to reach $461 billion by<br />

2025. Clearly this disorder poses a global challenge: how can we<br />

support and care for individuals with ASD? WISH proposes to<br />

focus on five key areas, namely:<br />

• Increase awareness of ASD and promote the importance of<br />

early detection, which allows children to get help as early as<br />

possible;<br />

• Provide evidence-based therapies to children and training to<br />

parents, teachers and clinicians;<br />

• Provide individuals with ASD access to public education and<br />

ensure they are included in the education system;<br />

• Ensure individuals with ASD and their families receive<br />

appropriate support and information to care for their family<br />

members; and<br />

• Focus on research to better understand the challenges faced<br />

in treating ASD.<br />

To reach these goals, WISH proposes 3 recommendations:<br />

1. Establishing an interagency coordinating commission to<br />

address ASD at a national level. This commission would<br />

provide guidance to governments on issues relating to ASD<br />

and the systems to put in place to tackle the challenges faced.<br />

2. Establishing national or regional training centers which<br />

would provide and share cutting edge research on ASD.<br />

These centers would also offer direct services and support<br />

to people with ASD, as well as work with schools and<br />

workplaces to provide programs and training.<br />

3. Establishing a global partnership that involves member<br />

governments as well as both public and private sectors. This<br />

partnership would help coordinate a worldwide response<br />

to ASD, including establishing a global minimum standard<br />

of service to ensure everyone with ASD is treated fairly and<br />

decently.<br />

WE ASK THE<br />

EXPERTS:<br />

QATAR<br />

BIOMEDICAL<br />

RESEARCH<br />

INSTITUTE<br />

We spoke with Dr. Fouad Al Shaban, MD, MSc, PhD, Senior<br />

Scientist at Qatar Biomedical Research Institute (QBRI), to<br />

find out more about the causes of ASD, new diagnosis methods,<br />

and what is being done to deal with discrimination against<br />

people with autism.<br />

What are some of the risk factors involved in ASD?<br />

Recent studies have shown some correlation between frequent<br />

exposure to ultra sounds during the first trimester of pregnancy<br />

and increased risk of having a baby with autism. Other risk<br />

factors include air pollution, exposure to certain chemicals like<br />

insecticides, and taking some medications during pregnancy, like<br />

for example Depakin, which is used to treat epilepsy.<br />

Genes also play an important role in this disorder, however<br />

autism is very rarely inherited.<br />

What kind of research is Qatar Biomedical Research Institute<br />

currently involved in?<br />

QBRI is currently working in collaboration with Hamad Bin Khalifa<br />

University (HBKU) on a research project to establish the prevalence<br />

of autism and the contributing risk factors. This is being funded<br />

by the Qatar National Research Fund (QNRF). Our preliminary<br />

results show that there are around 7 in every 1000 children in<br />

Qatar affected by ASD, a prevalence rate of 0,6 percent.<br />

Another project we are involved in, in collaboration with the<br />

Cleveland Clinic, is particularly interesting. Using bio-hypnosis,<br />

a new technology, we will be able to diagnose autism from as<br />

early as 6 months— this is incredibly useful as currently autism is<br />

difficult to diagnose in very young children. The device analyses the<br />

child’s response to certain stimuli and can diagnose, with an 80%<br />

accuracy rate, whether the child has autism, or whether there is a<br />

high risk of developing autism. We’re hoping to make this service<br />

available to everyone within the next few years.<br />

What can be done to prevent discrimination against people<br />

with ASD?<br />

This depends very much on public awareness and understanding<br />

that people with autism can live and contribute to society just like<br />

everyone else, as long as they get the appropriate support. There are<br />

many examples of people with high functioning autism, for example<br />

Bill Gates, Einstein, Isaac Newton. Governments could also take<br />

measures to prevent discrimination through initiatives that improve<br />

education, safety and employment opportunities for individuals<br />

with autism.<br />

With environmental factors like air pollution and our increasing reliance on chemicals, it is not<br />

surprising that cases of ASD are on the rise. It is important that we face up to this global crisis<br />

by ensuring adequate support is in place for individuals with autism and their families, as well<br />

as proper education and employment opportunities. Increasing public awareness will help to<br />

fight prejudice, and ensure people with autism have the right to a fulfilled, decent, happy life.<br />

15<br />

APRIL <strong>2017</strong>

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