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Sick and Tired: Understanding and Managing Sleep Difficulties in ...

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Four) revealed that global sleep quality was significantly associated with poorer health<br />

outcomes <strong>in</strong>clud<strong>in</strong>g physical function<strong>in</strong>g, role limitations due to emotional difficulties,<br />

fatigue, well-be<strong>in</strong>g, social function<strong>in</strong>g <strong>and</strong> pa<strong>in</strong>. Higher levels of perceived pa<strong>in</strong> <strong>and</strong><br />

poorer physical function<strong>in</strong>g were significantly associated with more frequent night-<br />

time awaken<strong>in</strong>gs. This supports previous research f<strong>in</strong>d<strong>in</strong>gs which found that poor<br />

sleep quality is associated with higher levels of pa<strong>in</strong> (Nicassio et al., 2002) <strong>and</strong> that<br />

fatigue was only associated with worse daytime dysfunction. In the qualitative study,<br />

(Chapter Six), participants described a strong <strong>in</strong>terrelationship between their sleep<br />

quality <strong>and</strong> other symptoms relat<strong>in</strong>g to their condition (such as pa<strong>in</strong> <strong>and</strong> fatigue), with<br />

a poor nights sleep lead<strong>in</strong>g to higher levels of pa<strong>in</strong> <strong>and</strong> fatigue the follow<strong>in</strong>g day <strong>and</strong><br />

high levels of pa<strong>in</strong> <strong>in</strong>terfer<strong>in</strong>g with their sleep at night. Participants also described<br />

feel<strong>in</strong>g more fatigued <strong>and</strong> less able to participate <strong>in</strong> daytime activities after a poor<br />

nights sleep, support<strong>in</strong>g the quantitative f<strong>in</strong>d<strong>in</strong>gs (Chapters Four <strong>and</strong> Five). As sleep<br />

quality, pa<strong>in</strong> <strong>and</strong> fatigue fluctuated over time, this caused participants with FMS<br />

significant difficulties <strong>in</strong> be<strong>in</strong>g able to plan activities <strong>and</strong> they often had to cancel<br />

arrangements due to a poor nights sleep. As a way of cop<strong>in</strong>g with their poor sleep <strong>and</strong><br />

symptoms, participants described plann<strong>in</strong>g rest periods <strong>and</strong> us<strong>in</strong>g daytime naps, to<br />

help them to <strong>in</strong>crease their energy levels over the course of the day. It was also<br />

observed that most people with FMS perceived that the onset of their sleep difficulties<br />

occurred prior to, or at the same time as, the onset of their other FMS symptoms;<br />

suggest<strong>in</strong>g that sleep difficulties are not just a consequence of pa<strong>in</strong> <strong>and</strong> fatigue. As<br />

shown <strong>in</strong> Chapter Five, sleep disturbance is a significant risk factor for diagnosis of<br />

FMS, <strong>and</strong> sleep appears to be a significant cause of disability <strong>and</strong> reduced social<br />

function<strong>in</strong>g <strong>in</strong> people with FMS. This supports the recent recommendations on<br />

outcome measures for cl<strong>in</strong>ical trials <strong>in</strong> FMS which state that sleep should be<br />

considered to be key outcome for <strong>in</strong>terventional studies with<strong>in</strong> this population (Mease<br />

et al., 2009).<br />

Objective Four. An Intervention to Improve <strong>Sleep</strong> Quality<br />

Lastly this study aimed to trial an <strong>in</strong>tervention with the aim to improve sleep quality<br />

for patients with FMS. Draw<strong>in</strong>g on the f<strong>in</strong>d<strong>in</strong>gs from the first three studies, this<br />

feasibility study explored the effect of a brief m<strong>in</strong>dfulness <strong>in</strong>tervention, based on the<br />

pr<strong>in</strong>ciples of acceptance of physical sensations <strong>and</strong> thoughts <strong>and</strong> thereby reduc<strong>in</strong>g<br />

stress <strong>and</strong> arousal on sleep quality <strong>in</strong> FMS. Although the <strong>in</strong>tervention was only piloted<br />

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