Sick and Tired: Understanding and Managing Sleep Difficulties in ...

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Consent Form I the undersigned voluntarily agree to take part in the study on the effects of relaxation in people with Fibromyalgia Syndrome. I have read and understood the Information Sheet provided. I have been given a full explanation by the investigators of the nature, purpose, location and likely duration of the study, and of what I will be expected to do. I have been given the opportunity to ask questions on all aspects of the study and have understood the advice and information given as a result. I agree to comply with any instruction given to me during the study and to co-operate fully with the investigators. I shall inform them immediately if I suffer any deterioration of any kind in my health or well-being, or experience any unexpected or unusual symptoms. I agree to the investigators contacting my general practitioner about my participation in the study, and I authorise my GP to disclose details of my relevant medical or drug history, in confidence. I understand that all personal data relating to volunteers is held and processed in the strictest confidence, and in accordance with the Data Protection Act (1998). I agree that I will not seek to restrict the use of the results of the study on the understanding that my anonymity is preserved. I understand that I am free to withdraw from the study at any time without needing to justify my decision and without prejudice. I confirm that I have read and understood the above and freely consent to participating in this study. I have been given adequate time to consider my participation and agree to comply with the instructions and restrictions of the study. Name of volunteer (BLOCK CAPITALS) ........................................................ Signed ........................................................ Date ........................................................ Name of researcher/person taking consent (BLOCK CAPITALS .......................................................... Signed ......................................................... Date . ………………………………………... 233
Appendix O: Poster Advertising Study Four (Chapter Seven) Does mindfulness improve sleep quality and quality of life in patients with fibromyalgia? People with fibromyalgia syndrome often find that they experience difficulties sleeping. Research has shown that poor sleep quality is linked to higher levels of pain and fatigue in people with this condition. A recent research study has found that an approach called mindfulness can improve sleep quality for people with insomnia. We are running a study to see if a mindfulness relaxation approach can help to improve sleep quality and quality of life for patients with fibromyalgia. Are you intrigued? If you: have been diagnosed with fibromyalgia syndrome and are aged over 18 years you may be able to take part in this pilot study. No travel will be required and all equipment will be provided. If you're interested, please contact: Joanna Rodriguez at the University of Surrey Tel: 07747823645 Email: jr00008@surrey.ac.uk or Alice Theadom Mark Cropley Brighton and Sussex Medical School University of Surrey 01273 642186 01483 686928 a.theadom@bsms.ac.uk Mark.Cropley@surrey.ac.uk We will send you further information about the study to help you decide whether you would like to take part. 234
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Sick and Tired: Understanding and M
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Chapter Four. The Nature and Effect
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References ........................
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List of Tables Table 1. Participant
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Co-authored Works Although the stud
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Acknowledgments This thesis would n
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Intellectual Property Rights There
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Confidential Material No participan
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The role of sleep in FMS appears to
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little information was available as
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Psychophysiologic insomnia which is
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and are less able to inhibit the pa
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widely applied in clinical practice
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of fewer tender points; usually bet
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Current Management Strategies The t
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also likely to depend on a number o
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deep sleep (stages three and four)
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Although sleep moves through the sl
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Figure 3. The Integrative Model of
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However, conducting a blood test is
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As sleep is a complex process invol
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Sleep Diaries Sleep diaries are a k
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pain). Lentz et al (1999) revealed
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These results have also been suppor
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(McCracken & Iverson, 2002) which s
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Figure 4. Conceptual model of the d
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Clinical Implications Despite the p
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Chapter Three. Sleep in FMS As high
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& Penzien, 2003), although alpha wa
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pauses in breathing indicative of s
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Relationships between Sleep and Pai
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Managing Sleep Disturbance in FMS D
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may be possible to help patients im
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person to initiate an action (such
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and Nicassio et al (1995) only expl
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1) Poor sleep quality, defined by t
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elow 0.7 are acceptable. Therefore
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heart disease (Epstein et al., 1999
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In order to explore the links betwe
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questionnaire 78 (77.2%) of the par
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efficiency, suggesting that partici
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Older age and longer length of illn
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Table 2. Correlations between demog
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Logistic Regression As 97% of the s
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in bed, participants may have devel
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Relationship between Negative Affec
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participants, who may be less likel
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emotional problems, increased pain
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eactions are most likely to be detr
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It has been suggested that the auto
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For both groups, participants were
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with and without chronic medical co
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As previously described on page 61,
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Figure 7. Scree plot for the explor
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Figure 8. Scree plot for the explor
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Table 6. Participant characteristic
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Table 7. Measures of central tenden
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CON = DBAS-10 Dysfunctional beliefs
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The Exp (B) values revealed that hi
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has explored the use of napping on
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It became clear, through the analys
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interventions. With this in mind, t
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The philosophy of phenomenology was
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Methods Participants were given a w
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Table 11. Interview schedule for th
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Rigour The interview transcripts we
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“The main symptom is this overwhe
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Theme Two. Inter-relationship betwe
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where I live, so I don‟t know, I
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Participants also described how the
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“XXXX (name of person) planned a
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A strong theme that emerged in this
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conducted at several time points, w
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Chapter Seven. Investigating the Ef
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activities because they no longer f
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Therefore as this was a feasibility
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Self-reported sleep quality was ass
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The progressive muscle relaxation (
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Exploring the baseline data, there
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Consequently, univariate analysis w
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There was no significant correlatio
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people with FMS (Perlis, Giles, Men
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The aim of this study was to explor
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observed in perceived overall sleep
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elaborated on in Chapter Six, which
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Four) revealed that global sleep qu
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Modifications to the Call-Schmidt a
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MBSR programme in people with FMS (
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diagnostic criteria for these sleep
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comprehensive measures to look at t
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References Abad, V. C., Sarinas, P.
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Brand, S., Gerber, M., Beck, J., Ha
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Crofford, L. J., & Demitrack, M. A.
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Goldenberg, D. L., Kaplan, K. H., N
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Johns, M. W. (2002). Sleep propensi
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Leung, Y. Y., Ho, K. W., Zhu, T. Y.
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Mease, P. J. (2005). Fibromyalgia s
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symptoms in healthy subjects; Corre
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approach with illustration to the h
Page 199 and 200: Thomas, E. N., & Blotman, F. (2010)
Page 201 and 202: Yunus, M. B., Masi, A. T., & Aldag,
Page 203 and 204: Appendices Appendix A: Search Strat
Page 205 and 206: Sleep and Fibromyalgia Syndrome Con
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Page 209 and 210: The following questions relate to y
Page 211 and 212: There are lots of ways to try to de
Page 213 and 214: 42. I try hard to prevent other thi
Page 215 and 216: During the past month have you had
Page 217 and 218: Appendix E: Published paper of Stud
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Page 225 and 226: Sleep and Fibromyalgia Syndrome Con
Page 227 and 228: Appendix H: Participant Questionnai
Page 229 and 230: Below are 10 statements reflecting
Page 231 and 232: The questions in this scale ask you
Page 233 and 234: Appendix I. Published Paper for Stu
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Page 241 and 242: Appendix K. Information Sheet and C
Page 243 and 244: Sleep in Fibromyalgia Syndrome Cons
Page 245 and 246: Appendix L: Letter of Ethical Appro
Page 247 and 248: Appendix M. Letter to GPs for Study
Page 249: What are the side effects of any tr
Page 253 and 254: Appendix Q: Participant Questionnai
Page 255 and 256: HAD Scale Read each item and place
Page 257 and 258: During the past month have you had
Page 259 and 260: Appendix R. Letter from Dr Mark Cro
Page 261 and 262: PUBLICATIONS Peer Reviewed Journal
Page 263: and panic-like episodes, Faculty of
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