Sick and Tired: Understanding and Managing Sleep Difficulties in ...

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What are the side effects of any treatment received or possible risks when taking part? You may find that you become upset talking about your experiences. You will be able to contact a member of the research team at any time during the study if you are at all concerned. The researcher will be a Chartered Health Psychologist. What are the possible benefits of taking part? Some people find talking about their condition to others helpful and talking about your experiences may help you to understand your condition better. The information we get from this study may help us to treat future patients with Fibromyalgia better. What happens when the research study stops? You will be able to contact a researcher at any point during the research study. You will be sent a summary of the study findings for your interest, unless you ask us not to receive this. Will my taking part in this study be kept confidential? All information which is collected about you during the course of the research will be kept strictly confidential. Your name and contact details will be kept in a locked filing cabinet. Information will only be disclosed if it indicates a serious threat to either yourself or others. Any information about you which leaves the university will have your name and address removed so that you cannot be recognised from it. The interview tape will not have your name on it. It will be coded with a research identification number and so you will be anonymous to the secretary who will transcribe the taped interview. The taped interviews will be kept in a locked filing cabinet separate from your contact details and will be destroyed at the end of the study. Two researchers will read and analyse the typed transcripts for common themes. Your GP will be informed of your participation in this study only with your permission. Any other information about you that leaves the university will have your name and address removed so you cannot be recognised from it. What will happen to the results of the research study? The results of the research will be presented at medical and psychology conferences and will be published in a research journal. You will not be identified in any report or publication. Who has reviewed the study? This study was given a favourable ethical opinion from the University of Surrey Ethics Committee. Complaints Any complaint or concerns about any aspects of the way you have been dealt with during the course of the study will be addressed. Please contact; Dr Mark Cropley, Principal Investigator on (01483 686928). Contact for Further Information If you would like any further information please contact: Alice Theadom Mark Cropley 01273 642186 01483 686928 alice.theadom@bsms.ac.uk Mark.Cropley@surrey.ac.uk Thank you for your time and interest in this study. 225
Sleep in Fibromyalgia Syndrome Consent Form I the undersigned voluntarily agree to take part in the study on sleep in fibromyalgia syndrome. I have read and understood the Information Sheet provided. I have been given a full explanation by the investigators of the nature, purpose, location and likely duration of the study, and of what I will be expected to do. I have been advised about any discomfort and possible ill-effects on my health and well-being which may result. I have been given the opportunity to ask questions on all aspects of the study and have understood the advice and information given as a result. I agree to comply with any instruction given to me during the study and to cooperate fully with the investigators. I shall inform them immediately if I suffer any deterioration of any kind in my health or well-being, or experience any unexpected or unusual symptoms. I agree to the investigators contacting my general practitioner about my participation in the study. I understand that all personal data relating to volunteers is held and processed in the strictest confidence, and in accordance with the Data Protection Act (1998). I agree that I will not seek to restrict the use of the results of the study on the understanding that my anonymity is preserved. I understand that I am free to withdraw from the study at any time without needing to justify my decision and without prejudice. I understand that in the event of my suffering a significant and enduring injury (including illness or disease) as a direct result of my participation in the study, compensation will be paid to me by the University subject to certain provisos and limitations. The amount of compensation will be appropriate to the nature, severity and persistence of the injury and will, in general terms, be consistent with the amount of damages commonly awarded for similar injury by an English court in cases where the liability has been admitted 226
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Sick and Tired: Understanding and M
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Chapter Four. The Nature and Effect
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References ........................
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List of Tables Table 1. Participant
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Co-authored Works Although the stud
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Acknowledgments This thesis would n
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Intellectual Property Rights There
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Confidential Material No participan
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The role of sleep in FMS appears to
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little information was available as
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Psychophysiologic insomnia which is
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and are less able to inhibit the pa
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widely applied in clinical practice
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of fewer tender points; usually bet
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Current Management Strategies The t
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also likely to depend on a number o
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deep sleep (stages three and four)
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Although sleep moves through the sl
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Figure 3. The Integrative Model of
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However, conducting a blood test is
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As sleep is a complex process invol
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Sleep Diaries Sleep diaries are a k
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pain). Lentz et al (1999) revealed
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These results have also been suppor
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(McCracken & Iverson, 2002) which s
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Figure 4. Conceptual model of the d
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Clinical Implications Despite the p
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Chapter Three. Sleep in FMS As high
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& Penzien, 2003), although alpha wa
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pauses in breathing indicative of s
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Relationships between Sleep and Pai
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Managing Sleep Disturbance in FMS D
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may be possible to help patients im
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person to initiate an action (such
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and Nicassio et al (1995) only expl
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1) Poor sleep quality, defined by t
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elow 0.7 are acceptable. Therefore
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heart disease (Epstein et al., 1999
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In order to explore the links betwe
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questionnaire 78 (77.2%) of the par
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efficiency, suggesting that partici
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Older age and longer length of illn
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Table 2. Correlations between demog
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Logistic Regression As 97% of the s
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in bed, participants may have devel
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Relationship between Negative Affec
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participants, who may be less likel
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emotional problems, increased pain
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eactions are most likely to be detr
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It has been suggested that the auto
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For both groups, participants were
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with and without chronic medical co
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As previously described on page 61,
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Figure 7. Scree plot for the explor
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Figure 8. Scree plot for the explor
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Table 6. Participant characteristic
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Table 7. Measures of central tenden
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CON = DBAS-10 Dysfunctional beliefs
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The Exp (B) values revealed that hi
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has explored the use of napping on
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It became clear, through the analys
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interventions. With this in mind, t
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The philosophy of phenomenology was
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Methods Participants were given a w
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Table 11. Interview schedule for th
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Rigour The interview transcripts we
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“The main symptom is this overwhe
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Theme Two. Inter-relationship betwe
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where I live, so I don‟t know, I
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Participants also described how the
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“XXXX (name of person) planned a
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A strong theme that emerged in this
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conducted at several time points, w
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Chapter Seven. Investigating the Ef
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activities because they no longer f
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Therefore as this was a feasibility
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Self-reported sleep quality was ass
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The progressive muscle relaxation (
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Exploring the baseline data, there
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Consequently, univariate analysis w
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There was no significant correlatio
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people with FMS (Perlis, Giles, Men
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The aim of this study was to explor
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observed in perceived overall sleep
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elaborated on in Chapter Six, which
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Four) revealed that global sleep qu
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Modifications to the Call-Schmidt a
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MBSR programme in people with FMS (
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diagnostic criteria for these sleep
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comprehensive measures to look at t
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References Abad, V. C., Sarinas, P.
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Brand, S., Gerber, M., Beck, J., Ha
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Crofford, L. J., & Demitrack, M. A.
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Goldenberg, D. L., Kaplan, K. H., N
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Johns, M. W. (2002). Sleep propensi
Page 191 and 192: Leung, Y. Y., Ho, K. W., Zhu, T. Y.
Page 193 and 194: Mease, P. J. (2005). Fibromyalgia s
Page 195 and 196: symptoms in healthy subjects; Corre
Page 197 and 198: approach with illustration to the h
Page 199 and 200: Thomas, E. N., & Blotman, F. (2010)
Page 201 and 202: Yunus, M. B., Masi, A. T., & Aldag,
Page 203 and 204: Appendices Appendix A: Search Strat
Page 205 and 206: Sleep and Fibromyalgia Syndrome Con
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Page 209 and 210: The following questions relate to y
Page 211 and 212: There are lots of ways to try to de
Page 213 and 214: 42. I try hard to prevent other thi
Page 215 and 216: During the past month have you had
Page 217 and 218: Appendix E: Published paper of Stud
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Page 225 and 226: Sleep and Fibromyalgia Syndrome Con
Page 227 and 228: Appendix H: Participant Questionnai
Page 229 and 230: Below are 10 statements reflecting
Page 231 and 232: The questions in this scale ask you
Page 233 and 234: Appendix I. Published Paper for Stu
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Page 241: Appendix K. Information Sheet and C
Page 245 and 246: Appendix L: Letter of Ethical Appro
Page 247 and 248: Appendix M. Letter to GPs for Study
Page 249 and 250: What are the side effects of any tr
Page 251 and 252: Appendix O: Poster Advertising Stud
Page 253 and 254: Appendix Q: Participant Questionnai
Page 255 and 256: HAD Scale Read each item and place
Page 257 and 258: During the past month have you had
Page 259 and 260: Appendix R. Letter from Dr Mark Cro
Page 261 and 262: PUBLICATIONS Peer Reviewed Journal
Page 263: and panic-like episodes, Faculty of
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