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Sick and Tired: Understanding and Managing Sleep Difficulties in ...

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Chapter Four. The Nature <strong>and</strong> Effect of <strong>Sleep</strong> <strong>Difficulties</strong> on Quality of Life <strong>in</strong><br />

FMS<br />

Previous studies explor<strong>in</strong>g sleep <strong>and</strong> FMS have revealed a high prevalence of sleep<br />

disturbances, <strong>and</strong> that poor sleep quality is significantly associated with <strong>in</strong>creased pa<strong>in</strong><br />

<strong>in</strong> patients with this condition. As discussed <strong>in</strong> Chapter Two, <strong>in</strong> order to establish a<br />

comprehensive underst<strong>and</strong><strong>in</strong>g of the role of sleep <strong>and</strong> its effect on quality of life <strong>in</strong><br />

FMS, it is important to fully explore patients‟ perceptions <strong>and</strong> experiences of sleep<br />

quality. As outl<strong>in</strong>ed <strong>in</strong> Chapter Three, studies <strong>in</strong>to perceptions of sleep quality<br />

undertaken to date have rarely been based on st<strong>and</strong>ardised assessment measures,<br />

explored the separate components of sleep quality or the effect of sleep disturbance on<br />

other health outcomes <strong>in</strong> FMS. Therefore our underst<strong>and</strong><strong>in</strong>g on the effect of sleep on<br />

people‟s perceptions of sleep quality is limited.<br />

As proposed by the conceptual model of the development of sleep difficulties (Currie et<br />

al., 2000) <strong>and</strong> the conceptual framework of pa<strong>in</strong> <strong>and</strong> sleep (Call-Schmidt & Richardson,<br />

2003) as described <strong>in</strong> Chapter Two, there are many factors that are likely to <strong>in</strong>fluence<br />

the l<strong>in</strong>k between sleep quality <strong>and</strong> pa<strong>in</strong> severity, <strong>and</strong> a greater underst<strong>and</strong><strong>in</strong>g of these<br />

factors is needed to underst<strong>and</strong> the role of sleep <strong>in</strong> FMS. One factor identified <strong>in</strong> the<br />

models of pa<strong>in</strong> <strong>and</strong> sleep, that may <strong>in</strong>fluence sleep <strong>and</strong> pa<strong>in</strong> <strong>in</strong> FMS, is people‟s ability<br />

to cope with chronic pa<strong>in</strong> <strong>and</strong> sleep difficulties. Poor sleep may reduce patients‟ ability<br />

to successfully use cognitive cop<strong>in</strong>g strategies <strong>in</strong> response to pa<strong>in</strong> so that <strong>in</strong>dividuals<br />

become more attentive to the pa<strong>in</strong> (Lawson, Reesor, Keefe, & Turner, 1990) <strong>and</strong> it is<br />

likely that mechanisms regulat<strong>in</strong>g attention to pa<strong>in</strong> may also be disrupted by poor sleep<br />

(Affleck, Urrows, Tennen, Higg<strong>in</strong>s, & Abeles, 1996).<br />

Cop<strong>in</strong>g has been def<strong>in</strong>ed as “purposeful efforts to manage the negative impact of stress”<br />

(Jensen, Turner, Romano, & Karoly, 1991, p. 250). <strong>Manag<strong>in</strong>g</strong> a chronic condition can<br />

be stressful <strong>and</strong> therefore cop<strong>in</strong>g strategies are used by people to manage the everyday<br />

dem<strong>and</strong>s of liv<strong>in</strong>g with a chronic illness, such as manag<strong>in</strong>g chronic pa<strong>in</strong>. Cop<strong>in</strong>g<br />

strategies are often classified as either „problem focused‟ (where the person confronts<br />

the problem directly, such as com<strong>in</strong>g up with a strategy to resolve the problem), or<br />

„emotion focused‟ (where the person focuses on controll<strong>in</strong>g their emotional reactions,<br />

such as talk<strong>in</strong>g to family <strong>and</strong> friends) (Folkman & Lazarus, 1988). However, other<br />

researchers prefer to classify cop<strong>in</strong>g <strong>in</strong> terms of „active‟ styles of cop<strong>in</strong>g which require a<br />

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