Sick and Tired: Understanding and Managing Sleep Difficulties in ...

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Appendix J. Poster Advertising Study Three (Chapter Six) Exploring the role of sleep in Fibromyalgia Syndrome People with fibromyalgia syndrome often describe that they experience difficulties sleeping. Research has shown that there is a link between poor sleep quality and higher levels of pain and fatigue in people with this condition. We would like to talk to people diagnosed with fibromyalgia syndrome to explore their experience of sleep, how they feel sleep quality affects their health and quality of life and how they cope with any sleep difficulties that they have. We are interested in talking to people with who experience difficulties sleeping as well as people who feel that they sleep well. Are you intrigued? If you: have been diagnosed with fibromyalgia syndrome and are aged over 18 years you may be able to take part in this study. Interviews will be held at a time and place convenient to you and any travel expenses will be reimbursed. If you're interested, please contact: Alice Theadom or Mark Cropley Tel: 01273 642186 Tel: 01483 686928 Email: a.theadom@bsms.ac.uk Email: Mark.Cropley@surrey.ac.uk We will send you further information about the study to help you decide whether you would like to take part. 223
Appendix K. Information Sheet and Consent Form for Study Three (Chapter Six) INFORMATION SHEET Sleep in Fibromyalgia Syndrome You are being invited to take part in a research study. Before you decide it is important for you to understand why the research is being conducted and what it will involve. Please take time to read the following information carefully and discuss it with others if you wish. Please ask us if there is anything that is not clear or if you would like more information. What is the purpose of the study? People with Fibromyalgia commonly experience sleep difficulties. This study aims to explore your sleeping patterns, any difficulties you have sleeping and how you feel sleep affects your symptoms and quality of life. This research study will be run over 6 months in total. Your participation in this study will last for up to 1 and a half hours. Why have I been chosen? You have been chosen to take part as you have been identified as having Fibromyalgia syndrome. There will be approximately 14 other participants taking part. Do I have to take part? It is up to you to decide whether or not to take part. If you do decide to take part you will be asked to sign a consent form. If you do decide to take part you are still free to withdraw at any time, without giving a reason. A decision to withdraw at any time, or not to take part in the study, will not affect your current care. What will happen to me if I take part? If you would like to take part in this study you will be asked to meet with a researcher to discuss your experiences. At the start of the interview you will have the opportunity to ask any further questions you have about the study and if you would like to take part you will be asked to sign a consent form. The meeting will be at a time and location that is convenient for you and will last for up to 1 and half hours, or shorter if you wish. The researcher will ask you talk about the quality of your sleep and how you feel sleep affects your symptoms and quality of life. This discussion will be tape recorded. This is so that the interviewer can focus their attention on what you have to say rather than taking notes. What do I have to do? You will be asked to talk about your sleeping pattern, the quality of your sleep and about your fibromyalgia symptoms. This will help us to understand the links between sleep and fibromyalgia better. 224
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Sick and Tired: Understanding and M
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Chapter Four. The Nature and Effect
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References ........................
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List of Tables Table 1. Participant
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Co-authored Works Although the stud
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Acknowledgments This thesis would n
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Intellectual Property Rights There
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Confidential Material No participan
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The role of sleep in FMS appears to
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little information was available as
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Psychophysiologic insomnia which is
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and are less able to inhibit the pa
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widely applied in clinical practice
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of fewer tender points; usually bet
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Current Management Strategies The t
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also likely to depend on a number o
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deep sleep (stages three and four)
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Although sleep moves through the sl
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Figure 3. The Integrative Model of
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However, conducting a blood test is
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As sleep is a complex process invol
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Sleep Diaries Sleep diaries are a k
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pain). Lentz et al (1999) revealed
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These results have also been suppor
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(McCracken & Iverson, 2002) which s
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Figure 4. Conceptual model of the d
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Clinical Implications Despite the p
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Chapter Three. Sleep in FMS As high
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& Penzien, 2003), although alpha wa
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pauses in breathing indicative of s
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Relationships between Sleep and Pai
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Managing Sleep Disturbance in FMS D
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may be possible to help patients im
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person to initiate an action (such
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and Nicassio et al (1995) only expl
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1) Poor sleep quality, defined by t
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elow 0.7 are acceptable. Therefore
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heart disease (Epstein et al., 1999
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In order to explore the links betwe
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questionnaire 78 (77.2%) of the par
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efficiency, suggesting that partici
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Older age and longer length of illn
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Table 2. Correlations between demog
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Logistic Regression As 97% of the s
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in bed, participants may have devel
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Relationship between Negative Affec
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participants, who may be less likel
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emotional problems, increased pain
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eactions are most likely to be detr
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It has been suggested that the auto
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For both groups, participants were
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with and without chronic medical co
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As previously described on page 61,
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Figure 7. Scree plot for the explor
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Figure 8. Scree plot for the explor
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Table 6. Participant characteristic
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Table 7. Measures of central tenden
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CON = DBAS-10 Dysfunctional beliefs
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The Exp (B) values revealed that hi
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has explored the use of napping on
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It became clear, through the analys
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interventions. With this in mind, t
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The philosophy of phenomenology was
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Methods Participants were given a w
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Table 11. Interview schedule for th
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Rigour The interview transcripts we
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“The main symptom is this overwhe
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Theme Two. Inter-relationship betwe
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where I live, so I don‟t know, I
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Participants also described how the
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“XXXX (name of person) planned a
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A strong theme that emerged in this
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conducted at several time points, w
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Chapter Seven. Investigating the Ef
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activities because they no longer f
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Therefore as this was a feasibility
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Self-reported sleep quality was ass
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The progressive muscle relaxation (
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Exploring the baseline data, there
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Consequently, univariate analysis w
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There was no significant correlatio
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people with FMS (Perlis, Giles, Men
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The aim of this study was to explor
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observed in perceived overall sleep
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elaborated on in Chapter Six, which
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Four) revealed that global sleep qu
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Modifications to the Call-Schmidt a
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MBSR programme in people with FMS (
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diagnostic criteria for these sleep
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comprehensive measures to look at t
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References Abad, V. C., Sarinas, P.
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Brand, S., Gerber, M., Beck, J., Ha
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Crofford, L. J., & Demitrack, M. A.
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Goldenberg, D. L., Kaplan, K. H., N
Page 189 and 190: Johns, M. W. (2002). Sleep propensi
Page 191 and 192: Leung, Y. Y., Ho, K. W., Zhu, T. Y.
Page 193 and 194: Mease, P. J. (2005). Fibromyalgia s
Page 195 and 196: symptoms in healthy subjects; Corre
Page 197 and 198: approach with illustration to the h
Page 199 and 200: Thomas, E. N., & Blotman, F. (2010)
Page 201 and 202: Yunus, M. B., Masi, A. T., & Aldag,
Page 203 and 204: Appendices Appendix A: Search Strat
Page 205 and 206: Sleep and Fibromyalgia Syndrome Con
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Page 209 and 210: The following questions relate to y
Page 211 and 212: There are lots of ways to try to de
Page 213 and 214: 42. I try hard to prevent other thi
Page 215 and 216: During the past month have you had
Page 217 and 218: Appendix E: Published paper of Stud
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Page 225 and 226: Sleep and Fibromyalgia Syndrome Con
Page 227 and 228: Appendix H: Participant Questionnai
Page 229 and 230: Below are 10 statements reflecting
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Page 243 and 244: Sleep in Fibromyalgia Syndrome Cons
Page 245 and 246: Appendix L: Letter of Ethical Appro
Page 247 and 248: Appendix M. Letter to GPs for Study
Page 249 and 250: What are the side effects of any tr
Page 251 and 252: Appendix O: Poster Advertising Stud
Page 253 and 254: Appendix Q: Participant Questionnai
Page 255 and 256: HAD Scale Read each item and place
Page 257 and 258: During the past month have you had
Page 259 and 260: Appendix R. Letter from Dr Mark Cro
Page 261 and 262: PUBLICATIONS Peer Reviewed Journal
Page 263: and panic-like episodes, Faculty of
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