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Philip Y. Kao PhD thesis - Research@StAndrews:FullText

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wanted to take her time. As soon as Lana was on the toilet, I heard Norman in the<br />

background, “Lana, go ahead and empty your bladder.” When she was done on the toilet,<br />

she pressed her call button again. Meanwhile, Norman was sitting on the couch, drinking<br />

coffee, and waiting to offer the next set of critiques and instructions.<br />

We cleaned Lana and put on a new pair of briefs, a bra, pants, socks and shoes while she<br />

was still sitting on the toilet. After this, we attached her sling to the EZ-stand and stood<br />

her up, whilst pulling up her briefs and pants. We pulled her out of the bathroom, slowly,<br />

and into the middle of the room. Picking out clothes was a rather hard ordeal, because<br />

Norman wanted her to look pretty. As a matter of fact, Lana always slept with her wig on.<br />

I picked out a turtleneck, which was always de rigueur according to Norman, and a<br />

sweater or sweatshirt of some kind. Frequently, Norman would disagree with my choice<br />

and said that it did not go well, or that the top did not match the turtleneck. I turned to<br />

him once and said, “Well, what do you think?” Norman said, “I am not a fashion expert,<br />

but maybe something in yellow. You work here, you should know this.” I rummaged<br />

through the closet and found the one yellow sweatshirt she had just worn two days ago<br />

and slipped it over her head. Whenever Norman disagreed with the caregiver’s clothing<br />

choice, he would often offer up his usual, “Don’t look at me. Pick out what you think is<br />

best that will make her pretty. I’m just an innocent bystander here.”<br />

As we lowered Lana into the wheelchair, Norman got up from the couch and inspected<br />

her position. He wanted her to be right up against the back of the chair, and if she wasn’t<br />

he would have us lift her up again and re-position her. Additionally, he often complained<br />

that her pants were riding up too high. With sweat in my eyes and half squinting, I<br />

huddled over her wheelchair and adjusted her pants while she was still sitting down.<br />

Lana often had tears in her eyes, especially when Norman was combative with the<br />

caregivers. She would often say to us, “I wish I was better.” One caregiver told me that<br />

she still didn’t know exactly what Lana suffered from, but thought it was some kind of<br />

neurological disorder that came up rather unexpectedly. To add insult to injury, Lana<br />

contracted a stomach virus one day, which meant that her bowel movements were<br />

extremely pungent. We were required to bring in two large red wastebaskets with biohazard<br />

signs written all over the bags and bin, but Norman was not happy with this and<br />

denied that she had anything. He pleaded with the nurse, but the bins were not removed.<br />

The head nurse never commented or gossiped about Lana and Norman. She commented<br />

110

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