Philip Y. Kao PhD thesis - Research@StAndrews:FullText

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complex and generative space opening up to critically think about the life course not as a cycle or succession of stages, but as a series of moments of instability and disorder— bringing forth its own re-orderings. This may not amount to an argument about the noninstitution (De Pina Cabral 2011), but if care is institutionalized along with the ideology of ageing, persons may not fit into such neat materializations, organizationally or even socially. In Tacoma Pastures, I saw many flowers, some withering, but I could not imagine the garden. 157
Chapter 8: A Home Away From Home: The Antinomies of Caregiving and Kinship This chapter presents a comparative ethnographic account of caregiving and social relations arising from two different long-term care facilities (LTCs) in the American Midwest. By looking at practices on the ground, I show how care is conceptualised through an ambivalent set of discourses regarding home spaces, and resident conceptions of family and kinship. As older people are forced to downsize and relocate to new settings, breaking and remaking homes becomes a painful and jarring experience. Despite what memories and ideas of the family might conjure up regarding care and responsibility, the family as a moral and cultural set of signifiers is always present among the residents and caregivers at Tacoma Pastures. The concept of home and the family in light of the Western autonomous self continues to be operationalized through and conjoined by a set of new kinship relations and understandings. Care for the elderly, and its immediate intimacy and association with dependency, frequently evade the framings of normative Euro-American kinship. For Christine Fry, “kinship is the care network through which one gives and receives varying forms of care across a lifetime” (Fry 2003, 315). In a way, care is becoming too intimate and rationally instrumental. Care sits in an uncomfortable position; there is a tension between the real work of caregiving, and the expectations and exigencies of envisioning what constitutes the duty of family members, and the quality of care they expect from paid caregivers in LTCs. David Schneider once suggested that in American culture, kinship is biology; the broken heart and heartache are not (Schneider 1980). Schneider was making a point about kinship as a model to live by, which draws on folk biology and biogenetic substance as a cultural construct and an objective fact of nature. In this way, we can understand how kinship is formulated as biology, and that substance forms a code of behaviour. In order words, “Kinship is not a theory about biology; but biology serves to formulate a theory about kinship” (Schneider 1980, 115). Despite this powerful and convincing deconstruction, kinship as evinced in people’s understanding of family in places like the American Midwest, still signifies something people claim to identify with, because the 158
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THE VICTIMS OF A SORTED LIFE : AGEI
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THE VICTIMS OF A SORTED LIFE: CAREG
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“In the animal kingdom, the rule
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ACKNOWLEDGEMENTS Many people have e
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ACRONYMS Activities of Daily Living
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The Tacoma Pastures Family ........
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Introduction i) Ageing and an Anthr
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the one hand we have the shifting p
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social relations among residents, s
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abyss that caregivers are confronte
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ased; other sponsors such as univer
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especially in light of the period
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a frozen liminality, “a sphere of
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nature of social relations. I was c
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esidents, and to abide by the gover
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order and tension that obtains betw
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offer palliation and there is a gen
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esidents for one-day plane trips to
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seriously think about.” 11 Early
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their desire to effect a plan under
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floors 1, 2, 4, and 5; 2) Personal
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chaotic back then.” I was told to
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the third floor is electronically l
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Chapter 2: The Accidental Caregiver
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transfer residents out of beds and
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on the third floor in Memory Care,
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On the second day, Nathan took me a
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Jennifer was doing so-so. He said,
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was from, even though I had just an
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affect; the balloon could be launch
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eminded me of a 1960s hospital room
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Ryan began complaining more about h
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know if you are working for someone
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in old age, especially when they al
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translation. 19 What follows is an
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class by telling us that dementia i
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The 3 rd Floor Layout Many CCRCs, i
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ested in between their tasks at thi
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sofa, others will simply give her a
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morning, the med tech and the careg
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caregivers to try their best to go
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could still communicate with me in
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In the two weeks that followed, Ken
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the trips that she remembered fondl
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Pastures received this. For now, it
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Chapter 4: Independent Plus: Care o
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Although the fifth floor is an “i
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the fourth floor did not need much
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main floor next to the spacious for
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grapple with mechanical E-Z stands
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Grant was not the only person who c
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The situation involving these three
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Brendan escorted me into Heather’
Page 108 and 109: Teri Teri was a resident in the sam
Page 110 and 111: Lana Lana lived next door to Teri a
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Page 114 and 115: Part 2 Chapter 5: A Long Way From M
Page 116 and 117: largely associated with the domain
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Page 120 and 121: “Thanks.” I go into the back of
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Page 128 and 129: * * * Betsy and I were subject to T
Page 130 and 131: Chapter 6: The Exigency of Care: Ca
Page 132 and 133: Betty When I first met Betty, she w
Page 134 and 135: Sometimes the caregivers were succe
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Page 140 and 141: Tacoma Pastures and into hospice. F
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Page 146 and 147: Figure 12 An Eden plaque At Tacoma
Page 148 and 149: way to community. The main dining r
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Page 170 and 171: I decided to confront Sylvia about
Page 172 and 173: * * * Mistakes were made in the fie
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Page 186 and 187: and McKechnie 1999, 1). Furthermore
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Page 192 and 193: y taking up oneself in real duratio
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Page 196 and 197: Furthermore, the post-Cartesian min
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Page 200 and 201: Appendix Ethics Form 199
Page 202 and 203: A Room with No View In the corner r
Page 204 and 205: A Blue-Gray Raga Some places the sm
Page 206 and 207: Diamond, T. Making Grey Gold: Narra
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Hummert, Mary Lee Nussbaum Jon F. "
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Nouwen, H. and Gaffney, W. Aging: T
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Williams, Allison. "Therapeutic Lan
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Philip Y. Kao PhD thesis - Research@StAndrews:FullText

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