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Access <strong>to</strong> <strong>health</strong><br />

Inequality, marginalization<br />

<strong>and</strong> poor <strong>health</strong><br />

Article by Lenore M<strong>and</strong>erson<br />

Variations in <strong>health</strong> status <strong>and</strong> outcomes occur in high-,<br />

middle- <strong>and</strong> low-income countries. Economic, political,<br />

<strong>social</strong> <strong>and</strong> o<strong>the</strong>r inequalities between individuals,<br />

communities <strong>and</strong> nations all have profound effects on<br />

vulnerability <strong>and</strong> risk of infection, disease <strong>and</strong> injury, on<br />

access <strong>to</strong> medical <strong>and</strong> o<strong>the</strong>r care, on treatment, management<br />

<strong>and</strong> outcomes, <strong>and</strong> on information <strong>and</strong> interventions<br />

designed <strong>to</strong> maximize well-being. Similarly, such inequalities<br />

have profound impact on <strong>social</strong> <strong>health</strong>, resulting in individual<br />

vulnerability <strong>to</strong> <strong>social</strong> exclusion, lack of participation in <strong>the</strong><br />

<strong>social</strong>, cultural, religious, economic <strong>and</strong> o<strong>the</strong>r aspects of<br />

community life, <strong>and</strong> differential access <strong>to</strong> <strong>the</strong> benefits that<br />

derive from <strong>the</strong>se various activities.<br />

The fac<strong>to</strong>rs that influence <strong>health</strong> status <strong>and</strong> <strong>health</strong><br />

outcomes occur at <strong>social</strong>, structural, institutional <strong>and</strong> systems<br />

levels in all societies. Gender, differences in ability, race,<br />

ethnicity, class <strong>and</strong> caste are all fields of marginalization,<br />

discrimination <strong>and</strong> personal <strong>and</strong> structural violence. These<br />

differences that result in inequality – gender, ability, age, class<br />

or caste, race, ethnicity, sexuality, geography, etc. – co-exist<br />

<strong>and</strong> are inter-related, contributing <strong>to</strong> poverty in much of <strong>the</strong><br />

world. Poor people moreover are more likely than o<strong>the</strong>rs <strong>to</strong><br />

experience inequality within <strong>the</strong>se <strong>social</strong> hierarchies, <strong>and</strong> <strong>the</strong><br />

co-presence or intersection of various fac<strong>to</strong>rs that result in<br />

inequality compounds <strong>the</strong> experience <strong>and</strong> impact of poor<br />

<strong>health</strong> <strong>and</strong> resultant poverty. These fields of vulnerability are<br />

reinforced through structural violence, leading <strong>to</strong> differences<br />

in rates <strong>and</strong> patterns of infection <strong>and</strong> illness. For example,<br />

people from poor <strong>and</strong> marginalized communities typically<br />

work in industries <strong>and</strong> occupations <strong>and</strong> reside in areas that<br />

have high risk of illness <strong>and</strong> injury, <strong>the</strong>y are more likely <strong>to</strong> be<br />

directly exposed <strong>to</strong> pathogens, <strong>to</strong> have subst<strong>and</strong>ard medical<br />

services <strong>and</strong> poor quality of care, <strong>and</strong> <strong>to</strong> lack access <strong>to</strong> <strong>social</strong><br />

support mechanisms.<br />

Social inclusion, participation in decision-making, <strong>social</strong><br />

security, equality, human rights <strong>and</strong> <strong>social</strong> justice are key,<br />

underlying determinants of <strong>health</strong> that influence (<strong>and</strong> are<br />

influenced by) education, income <strong>and</strong> employment<br />

The individual personal, <strong>social</strong> <strong>and</strong> economic fac<strong>to</strong>rs that<br />

contribute <strong>to</strong> inequality, <strong>and</strong> associated poor <strong>health</strong> <strong>and</strong><br />

poverty, result in <strong>social</strong> exclusion, discrimination <strong>and</strong><br />

marginalization. Social marginality, discrimination <strong>and</strong><br />

exclusion affect <strong>health</strong> negatively in numerous ways, as<br />

illustrated by current research on <strong>social</strong> dimensions of <strong>health</strong><br />

<strong>and</strong> illness. Social inclusion, participation in decisionmaking,<br />

<strong>social</strong> security, equality, human rights <strong>and</strong> <strong>social</strong><br />

justice are key, underlying determinants of <strong>health</strong> that<br />

influence (<strong>and</strong> are influenced by) education, income <strong>and</strong><br />

employment. Unjust <strong>social</strong> conditions <strong>the</strong>refore deprive<br />

people of <strong>the</strong> opportunity <strong>to</strong> be <strong>health</strong>y <strong>and</strong> often lead <strong>to</strong><br />

negative <strong>health</strong> outcomes. In turn, inequitable conditions<br />

often limit access <strong>to</strong> <strong>health</strong> <strong>and</strong> medical services,<br />

discouraging people who are marginalized or disempowered<br />

from presenting <strong>to</strong> clinics <strong>and</strong> influencing <strong>the</strong> quality of care<br />

<strong>the</strong>y receive when <strong>the</strong>y do attend. A woman from a minority<br />

caste, living in an isolated rural area with physical<br />

impairments from polio, is far more likely <strong>to</strong> be poor, <strong>to</strong> have<br />

poor access <strong>to</strong> <strong>health</strong> services, <strong>and</strong> <strong>to</strong> receive poor quality of<br />

care, than an urban dweller without impairment <strong>and</strong> from a<br />

higher status caste. People with highly stigmatized <strong>health</strong><br />

conditions (mental illness, leprosy <strong>and</strong> still, in many cases,<br />

HIV), are similarly often denied quality <strong>health</strong> care. The direct<br />

<strong>and</strong> indirect costs of seeking medical attention, <strong>and</strong> <strong>the</strong><br />

humiliation, embarrassment <strong>and</strong> disappointment experienced<br />

when <strong>health</strong> workers are rude <strong>and</strong> <strong>the</strong> necessary equipment,<br />

medication or advice are not forthcoming, discourage <strong>the</strong>ir<br />

continued presentation.<br />

Marginalization affects <strong>the</strong> <strong>health</strong> of populations in very<br />

different environments. In urban <strong>and</strong> o<strong>the</strong>r densely settled<br />

areas, individuals living in poverty, in poor housing, in areas<br />

of high population density such as slums or informal<br />

(squatter) settlements, or in o<strong>the</strong>r unsafe or inadequate living<br />

conditions, are disproportionately affected by communicable<br />

diseases. Similarly, migrants, nomadic <strong>and</strong> seminomadic<br />

pas<strong>to</strong>ralists <strong>and</strong> o<strong>the</strong>rs living in very isolated areas are<br />

vulnerable <strong>to</strong> parasitic <strong>and</strong> o<strong>the</strong>r infectious diseases <strong>and</strong> may<br />

be excluded from <strong>health</strong> care services run by settled<br />

populations. In <strong>the</strong>se circumstances, o<strong>the</strong>r environmental<br />

conditions, such as poor wet <strong>and</strong> dry waste management <strong>and</strong><br />

lack of potable water, also favour vec<strong>to</strong>r breeding <strong>to</strong> promote<br />

<strong>the</strong> spread of infectious diseases. These diseases create <strong>social</strong><br />

Global Forum Update on Research for Health Volume 4 ✜ 059

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