The information book - Paediatric Integrated Cancer Service

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Long term follow up........................................................................... Sec.4:18 What is LTF?................................................................................ Sec.4:19 Who is eligible for LTF?................................................................ Sec.4:19 Do I have to come to hospital?.................................................... Sec.4:19 What are the benefits of LTF?...................................................... Sec.4:19 Who is in the LTF team?...............................................................Sec.4:20 How can I find out more?.............................................................Sec.4:20 5 More support Consumer liaison person..................................................................... Sec.5:1 Welfare services and entitlements....................................................... Sec.5:1 Centrelink benefits............................................................................... Sec.5:1 Carer allowance ............................................................................ Sec.5:1 Carer payment............................................................................... Sec.5:1 Other assistance..................................................................................Sec.5:2 Ambulance transport & Air Ambulance.........................................Sec.5:2 Centrelink.......................................................................................Sec.5:2 Financial assistance.......................................................................Sec.5:2 Financial counsellor........................................................................Sec.5:2 Home Help.....................................................................................Sec.5:2 Transport.......................................................................................Sec.5:2 The Victorian Patient Transport Assistance Scheme (VPTAS).......Sec.5:3 Angel Flight....................................................................................Sec.5:3 Hospital based information & support groups.....................................Sec.5:3 Look Good Feel Better...................................................................Sec.5:3 Parent Advisory Group (CCCPAG)................................................Sec.5:4 Sibling groups................................................................................Sec.5:4 Support groups...................................................................................Sec.5:4 Camp Quality ................................................................................Sec.5:4 CanTeen.........................................................................................Sec.5:5 Challenge Cancer Support Network .............................................Sec.5:5 Children’s Brain Tumour Association (CBTA).................................Sec.5:5 KOALA Foundation........................................................................Sec.5:6 Make A Wish Foundation...............................................................Sec.5:6 Red Kite ........................................................................................Sec.5:6 Contents 7 Updated March 2011
Parents Cancer Connect – Cancer Council of Victoria.................. Sec.5:7 Starlight Children’s Foundation ..................................................... Sec.5:7 Very Special Kids (VSK)................................................................. Sec.5:7 Fundraising groups..............................................................................Sec.5:8 Cancer In Kids Auxiliary (CIKA)......................................................Sec.5:8 CCC Foundation............................................................................Sec.5:8 Friends of Ronald McDonald House..............................................Sec.5:8 Leukaemia Auxiliary of The Royal Children’s Hospital (LARCH)....Sec.5:8 Leukaemia Research Fund (LRF)...................................................Sec.5:9 Sporting Chance Cancer Foundation............................................Sec.5:9 MY ROOM.....................................................................................Sec.5:9 The Royal Children’s Hospital Foundation................................... Sec.5:10 Community Liaison Manager............................................................. Sec.5:10 Information Resources........................................................................Sec.5:11 Children’s Cancer Centre website.................................................Sec.5:11 Seeking Information........................................................................... Sec.5:12 6 Tell Me… What does that person do?................................................................. Sec.6:1 Doctors................................................................................................ Sec.6:1 Consultant Medical Staff/ Consultant Oncologist ......................... Sec.6:1 Medical Staff.................................................................................. Sec.6:1 Nursing staff......................................................................................... Sec.6:1 Nurse Unit Manager....................................................................... Sec.6:1 Associate Nurse Unit Managers....................................................Sec.6:2 Nurse Coordinator ........................................................................Sec.6:2 Ward Nurses..................................................................................Sec.6:2 Allied Health.........................................................................................Sec.6:2 Art Therapist..................................................................................Sec.6:2 Audiologist.....................................................................................Sec.6:2 Chaplain ........................................................................................Sec.6:2 Comfort First clinicians...................................................................Sec.6:2 Comfort Plan..................................................................................Sec.6:3 Dietitian..........................................................................................Sec.6:3 RCH teachers and Education Support Officers.............................Sec.6:3 8 Contents Updated March 2011
Page 1 and 2: Coordinated and facilitated by the
Page 3 and 4: 100129 Updated March 2011 The Infor
Page 5 and 6: Outpatients at the CCC (RCH) ......
Page 7 and 8: Hospital facilities................
Page 9: 4 Cancer Children’s cancers & tre
Page 13 and 14: Ultrasound scan....................
Page 15 and 16: We are grateful to the KOALA Founda
Page 17 and 18: YOUR CHILD’S DIAGNOSIS: Your chil
Page 19 and 20: Your child’s team Many people wil
Page 21 and 22: The ward The Children’s Cancer Ce
Page 23 and 24: SCHOOL - AGE CHILDREN & ADOLESCENTS
Page 25 and 26: A menu monitor will collect your ch
Page 27 and 28: Sharing the ward The ward is a shar
Page 29 and 30: ...and going home: what to take The
Page 31 and 32: Blood test Before seeing the doctor
Page 33 and 34: Going nuts with Macadamia “Going
Page 35 and 36: Sec.2.0:16 Your child’s hospital
Page 37 and 38: Medical Appointments CCC Outpatient
Page 39 and 40: The Peter Mac team The Paediatric,
Page 41 and 42: Radiotherapy planning Planning for
Page 43 and 44: Generally there are set meal times
Page 45 and 46: Showers & toilet facilities Showers
Page 47 and 48: Social Work Social Work Department
Page 49 and 50: The ward Monash Children’s has tw
Page 51 and 52: • Bring familiar items from home
Page 53 and 54: Parking Monash Medical Centre’s c
Page 55 and 56: ...and going home: what to take The
Page 57 and 58: On arrival for your child’s appoi
Page 59 and 60: Sec.2.2:12 Your child’s hospital
Page 61 and 62:
Social Work and interpreters Social
Page 63 and 64:
Sec.2.2:16 Your child’s hospital
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Sec.2.3:2 Your child’s regional h
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Coming to hospital: what to bring..
Page 69 and 70:
Parent meals Meals will be provided
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Television Please do not bring in a
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Quick Help If you are concerned abo
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Sec.2.3:12 Your child’s regional
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Food can be bought in the hospital
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Television Please do not bring in a
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Page 85 and 86:
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• The Hospital Dining Room, First
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Visitors Parents have 24 hours acce
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If the food on the menu does not su
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Associate Unit Managers (AUM) manag
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Morning and afternoon tea is also o
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A Appointments Do you have a follow
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Sec.2.7:8 Your child’s regional h
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Pharmacy Pharmacy is located on the
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Hospital facilities ATM cash point
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Before the procedure • Talk with
Page 129 and 130:
Fatigue & sleepiness Fatigue is a c
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DO NOT bring your child directly to
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Signs of Measles • Sneezing, wate
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Hints to increase the nutrition lev
Page 137 and 138:
Check your child’s mouth regularl
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Hints to help your child take medic
Page 141 and 142:
The health support plan should be m
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Professional development opportunit
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• When visiting households with a
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Helping your child cope with illnes
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Taking care of your relationships H
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• Some siblings benefit from canc
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With your workmates Sometimes, cont
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• Stay with your brother or siste
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Before doctors decide the best way
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The reason your Consultant Oncologi
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Radiotherapy is a very effective tr
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Examples of complementary & alterna
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Low neutrophil count Neutrophils ar
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Digestive system side effects - Mou
Page 169 and 170:
Hair & skin side effects Some treat
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Reproductive system side effects Im
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Nursing & medical supportive care S
Page 175 and 176:
During this time we are also prepar
Page 177 and 178:
Other assistance Ambulance transpor
Page 179 and 180:
Parent Advisory Group (CCCPAG) The
Page 181 and 182:
KOALA Foundation The Kids Oncology
Page 183 and 184:
Fundraising groups Cancer In Kids A
Page 185 and 186:
The Royal Children’s Hospital Fou
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Seeking Information Websites, the i
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Sec.5:14 More support Updated March
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Associate Nurse Unit Managers Assoc
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Neuropsychologist The Neuropsycholo
Page 195 and 196:
Patient Services Assistants (PSA) P
Page 197 and 198:
Echocardiogram An ultrasound test i
Page 199 and 200:
With the Insuflon in place your chi
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BOLUS - intravenous drug administer
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INTRAVENOUS (IV) - method to admini
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THROMBOCYTOPENIA - a reduction in t
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Frequently asked questions During y
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House cleaning Is it necessary to s
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Sec.6:22 Tell Me… Updated March 2
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