The information book - Paediatric Integrated Cancer Service

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Information Resources Child Health & Safety Resource Centre (CHAS) CHAS is on level 1, RCH front entry building – retail foyer. It has a wide selection of books for adults, children and siblings about health related issues. www.rch.org.au / chas, telephone 9345 6429, email chic.bookshop@rch.org.au Children’s Cancer Centre website www.rch.org.au / ccc www.southernhealth.org.au www.petermac.org The RCH Children’s Cancer Centre website has information like The Information Book, along with specific disease information, research, a calendar of events and an art gallery. It is also available via the Southern Health website, Programs, Women’s and Children’s Program and Children’s Cancer Centre. You may find it useful to give this web address to family and friends who want to know more about your child’s illness and the Children’s Cancer Centre. Information – Literature There is a range of literature available about the diagnosis of children’s cancer, treatment, and impact on the family. This is available through the nurse coordinators or social workers and CHAS (see above). Information sheets on specific chemotherapy drugs are available from the oncology pharmacy. Information board Information boards are located in the Outpatient Area at RCH and MMC, as are brochures and booklets which families may find of interest. Library A parent library is in the ward at RCH and via the Nurse Coordinator at MMC. Much of the library material is funded by support groups and fund-raising groups. The library has books and videos covering medical, childhood and emotional topics. These are available for loan. The nurse coordinator, ward nurses, and social workers can assist in selecting suitable titles. More support Sec.5:11 Updated March 2011
Seeking Information Websites, the internet and emails can give accurate and up to date information about cancer. But the information can also be confusing, misguided, and sometimes wrong! If you are considering seeking further information about your child’s cancer, it is important to understand that information from CCC staff or material provided to you by the CCC is carefully considered, checked to be accurate, tailored to individual circumstances, with support immediately on hand. By comparison, internet material (even from reputable sources) is not carefully relayed, may relate to circumstances that do not apply to your child, is not necessarily accurate and without support on hand you may find this unexpectedly emotionally challenging. If you choose to seek information via this source, and have any questions or are anxious about information you have located, please discuss it with your child’s team. We have listed some things to look for when you are using a website for information. You can use them to check on other information sources – books, pamphlets, meetings, casual advice. If you have any questions about information please discuss them with your child’s team. OncoLink FAQ: Evaluating cancer web sites This is adapted from a webpage that is no longer available on line, based on an editorial by the directors of OncoLink, a comprehensive website related to cancer diagnosis and treatment. OncoLink Editor-in-Chief, Joel W. Goldwein, MD, Associate Professor, Radiation Oncology. Last revision date – 9 th December, 1998. The things to look for (not in order of importance) are: 1. Accuracy of information – avoid sites where information is not referenced, or where authors and dates of content are not stated. 2. Availability of editorial staff – a web resource should list their editorial staff, the credentials of the people behind the resource. An address and email contact should also be provided. 3. Qualifications of editorial staff – many resources are run by people who are not qualified to provide medical advice. There is nothing wrong with this, provided that it is clearly stated. However we feel that the best information, in general, is provided by health care professionals who are health care providers themselves. Much of what physicians, nurses and other professionals do involves interacting with patients and providing information in the clearest most appropriate manner. Sec.5:12 More support Updated March 2011
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Coordinated and facilitated by the
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100129 Updated March 2011 The Infor
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Outpatients at the CCC (RCH) ......
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Hospital facilities................
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4 Cancer Children’s cancers & tre
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Parents Cancer Connect - Cancer Cou
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Ultrasound scan....................
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We are grateful to the KOALA Founda
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YOUR CHILD’S DIAGNOSIS: Your chil
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Your child’s team Many people wil
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The ward The Children’s Cancer Ce
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SCHOOL - AGE CHILDREN & ADOLESCENTS
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A menu monitor will collect your ch
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Sharing the ward The ward is a shar
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...and going home: what to take The
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Blood test Before seeing the doctor
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Going nuts with Macadamia “Going
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Sec.2.0:16 Your child’s hospital
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Medical Appointments CCC Outpatient
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The Peter Mac team The Paediatric,
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Radiotherapy planning Planning for
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Generally there are set meal times
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Showers & toilet facilities Showers
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Social Work Social Work Department
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The ward Monash Children’s has tw
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• Bring familiar items from home
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Parking Monash Medical Centre’s c
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...and going home: what to take The
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On arrival for your child’s appoi
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Social Work and interpreters Social
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Sec.2.3:2 Your child’s regional h
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Coming to hospital: what to bring..
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Parent meals Meals will be provided
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Television Please do not bring in a
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Quick Help If you are concerned abo
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Food can be bought in the hospital
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Television Please do not bring in a
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• The Hospital Dining Room, First
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Visitors Parents have 24 hours acce
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If the food on the menu does not su
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Associate Unit Managers (AUM) manag
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Morning and afternoon tea is also o
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A Appointments Do you have a follow
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Pharmacy Pharmacy is located on the
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Hospital facilities ATM cash point
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Before the procedure • Talk with
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Fatigue & sleepiness Fatigue is a c
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DO NOT bring your child directly to
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Signs of Measles • Sneezing, wate
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The information book - Paediatric Integrated Cancer Service

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