The information book - Paediatric Integrated Cancer Service

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Mental Health Clinician..................................................................Sec.6:3 Music Therapist.............................................................................Sec.6:3 Neuropsychologist.........................................................................Sec.6:3 Occupational Therapist..................................................................Sec.6:4 Oncology Pharmacist....................................................................Sec.6:4 Orthotist ........................................................................................Sec.6:4 Play Therapist................................................................................Sec.6:4 Physiotherapist..............................................................................Sec.6:4 Prosthetist......................................................................................Sec.6:4 Social Worker.................................................................................Sec.6:5 Speech Pathologist........................................................................Sec.6:5 Support Staff.......................................................................................Sec.6:5 Administrative staff ........................................................................Sec.6:5 Blood collectors ............................................................................Sec.6:5 Clinical Research Associates – Data Managers.............................Sec.6:5 Patient Services Assistants (PSA)..................................................Sec.6:5 Volunteers .....................................................................................Sec.6:6 Ward Clerks...................................................................................Sec.6:6 What’s that test?..................................................................................Sec.6:6 Audiology ......................................................................................Sec.6:6 Biopsy............................................................................................Sec.6:6 Blood tests..................................................................................... Sec.6:7 Bone marrow aspirate.................................................................... Sec.6:7 Bone scan...................................................................................... Sec.6:7 CT scan......................................................................................... Sec.6:7 CVAD............................................................................................. Sec.6:7 Echocardiogram ...........................................................................Sec.6:8 Electrocardiogram (ECG)...............................................................Sec.6:8 Gallium scan..................................................................................Sec.6:8 Glomerular Filtration Rate (GFR)....................................................Sec.6:8 Lumbar puncture...........................................................................Sec.6:8 Magnetic Resonance Imaging (MRI) scan ....................................Sec.6:8 PET scan.......................................................................................Sec.6:9 Contents 9 Updated March 2011
Ultrasound scan.............................................................................Sec.6:9 X-Ray.............................................................................................Sec.6:9 What’s that procedure?.......................................................................Sec.6:9 Central lines...................................................................................Sec.6:9 Insuflons.........................................................................................Sec.6:9 Nasogastric tube ........................................................................ Sec.6:10 What does that word mean? .............................................................Sec.6:11 What does that abbreviation mean?.................................................. Sec.6:17 Frequently asked questions............................................................... Sec.6:18 Animals........................................................................................ Sec.6:18 Blood donation............................................................................ Sec.6:18 Contact – people & places........................................................... Sec.6:18 Diet.............................................................................................. Sec.6:19 House cleaning............................................................................Sec.6:20 Infection.......................................................................................Sec.6:20 Mouth care...................................................................................Sec.6:20 Nasogastric feeding.....................................................................Sec.6:20 Temperature.................................................................................Sec.6:21 7 My Child’s Information This is where you can file and keep information specific to your child. 10 Contents Updated March 2011
Page 1 and 2: Coordinated and facilitated by the
Page 3 and 4: 100129 Updated March 2011 The Infor
Page 5 and 6: Outpatients at the CCC (RCH) ......
Page 7 and 8: Hospital facilities................
Page 9 and 10: 4 Cancer Children’s cancers & tre
Page 11: Parents Cancer Connect - Cancer Cou
Page 15 and 16: We are grateful to the KOALA Founda
Page 17 and 18: YOUR CHILD’S DIAGNOSIS: Your chil
Page 19 and 20: Your child’s team Many people wil
Page 21 and 22: The ward The Children’s Cancer Ce
Page 23 and 24: SCHOOL - AGE CHILDREN & ADOLESCENTS
Page 25 and 26: A menu monitor will collect your ch
Page 27 and 28: Sharing the ward The ward is a shar
Page 29 and 30: ...and going home: what to take The
Page 31 and 32: Blood test Before seeing the doctor
Page 33 and 34: Going nuts with Macadamia “Going
Page 35 and 36: Sec.2.0:16 Your child’s hospital
Page 37 and 38: Medical Appointments CCC Outpatient
Page 39 and 40: The Peter Mac team The Paediatric,
Page 41 and 42: Radiotherapy planning Planning for
Page 43 and 44: Generally there are set meal times
Page 45 and 46: Showers & toilet facilities Showers
Page 47 and 48: Social Work Social Work Department
Page 49 and 50: The ward Monash Children’s has tw
Page 51 and 52: • Bring familiar items from home
Page 53 and 54: Parking Monash Medical Centre’s c
Page 55 and 56: ...and going home: what to take The
Page 57 and 58: On arrival for your child’s appoi
Page 59 and 60: Sec.2.2:12 Your child’s hospital
Page 61 and 62: Social Work and interpreters Social
Page 63 and 64:
Sec.2.2:16 Your child’s hospital
Page 65 and 66:
Sec.2.3:2 Your child’s regional h
Page 67 and 68:
Coming to hospital: what to bring..
Page 69 and 70:
Parent meals Meals will be provided
Page 71 and 72:
Television Please do not bring in a
Page 73 and 74:
Quick Help If you are concerned abo
Page 75 and 76:
Sec.2.3:12 Your child’s regional
Page 77 and 78:
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Food can be bought in the hospital
Page 81 and 82:
Television Please do not bring in a
Page 83 and 84:
Page 85 and 86:
Page 87 and 88:
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• The Hospital Dining Room, First
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Visitors Parents have 24 hours acce
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If the food on the menu does not su
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Associate Unit Managers (AUM) manag
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Morning and afternoon tea is also o
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A Appointments Do you have a follow
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Sec.2.7:8 Your child’s regional h
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Pharmacy Pharmacy is located on the
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Hospital facilities ATM cash point
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Before the procedure • Talk with
Page 129 and 130:
Fatigue & sleepiness Fatigue is a c
Page 131 and 132:
DO NOT bring your child directly to
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Signs of Measles • Sneezing, wate
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Hints to increase the nutrition lev
Page 137 and 138:
Check your child’s mouth regularl
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Hints to help your child take medic
Page 141 and 142:
The health support plan should be m
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Professional development opportunit
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• When visiting households with a
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Helping your child cope with illnes
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Taking care of your relationships H
Page 151 and 152:
• Some siblings benefit from canc
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With your workmates Sometimes, cont
Page 155 and 156:
• Stay with your brother or siste
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Before doctors decide the best way
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The reason your Consultant Oncologi
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Radiotherapy is a very effective tr
Page 163 and 164:
Examples of complementary & alterna
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Low neutrophil count Neutrophils ar
Page 167 and 168:
Digestive system side effects - Mou
Page 169 and 170:
Hair & skin side effects Some treat
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Reproductive system side effects Im
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Nursing & medical supportive care S
Page 175 and 176:
During this time we are also prepar
Page 177 and 178:
Other assistance Ambulance transpor
Page 179 and 180:
Parent Advisory Group (CCCPAG) The
Page 181 and 182:
KOALA Foundation The Kids Oncology
Page 183 and 184:
Fundraising groups Cancer In Kids A
Page 185 and 186:
The Royal Children’s Hospital Fou
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Seeking Information Websites, the i
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Sec.5:14 More support Updated March
Page 191 and 192:
Associate Nurse Unit Managers Assoc
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Neuropsychologist The Neuropsycholo
Page 195 and 196:
Patient Services Assistants (PSA) P
Page 197 and 198:
Echocardiogram An ultrasound test i
Page 199 and 200:
With the Insuflon in place your chi
Page 201 and 202:
BOLUS - intravenous drug administer
Page 203 and 204:
INTRAVENOUS (IV) - method to admini
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THROMBOCYTOPENIA - a reduction in t
Page 207 and 208:
Frequently asked questions During y
Page 209 and 210:
House cleaning Is it necessary to s
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Sec.6:22 Tell Me… Updated March 2
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The information book - Paediatric Integrated Cancer Service

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