The information book - Paediatric Integrated Cancer Service

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CanTeen CanTeen is an organisation for young people, age 12 – 24, living with cancer including young people with cancer and their brothers and sisters. CanTeen offers peer-support that enables young people to share experiences and to have fun. It offers resources, promotes understanding, well-being and leadership. CanTeen’s mission is Supporting, developing and empowering young people living with cancer. For more information: Contact: Member Liaison Officer (03) 9329 5288 Website www.canteen.org.au Challenge – supporting kids with cancer Challenge – supporting kids with cancer – provides support services to children and families living with cancer and other life-threatening blood disorders, from diagnosis, through the treatment period and beyond. It has contacts for celebrity visitors and organises a monthly Parent Dinner (RCH only). Challenge also offers a fortnightly Playgroup for children. Challenge provides families with camps, family activity days, parent support programs, ticketing, holiday accommodation, transport and financial help. Challenge provides care for the whole family and believes that life should be lived to the fullest. Contact: Office (03) 9329 8474 Website: www.challenge.org.au Children’s Brain Tumour Association (CBTA) The Children’s Brain Tumour Association was established in 1999 by parents of children living with, or who had died from a tumour of the brain or spinal cord. They purchase books for every parent of a child with a brain or spinal cord tumour. Contact: CBTA President on (03) 9437 0814 Email: rsan1105@westnet.com.au More support Sec.5:5 Updated March 2011
KOALA Foundation The Kids Oncology And Leukaemia Action Group (KOALA) was established as a voluntary group who provided support for parents and carers of children being treated for cancer. The KOALA Foundation was incorporated as a health charity in July 2005. The KOALA Foundation’s goal is to financially support ‘world’s best practice’ in the treatment and care of children with cancer in Victoria whilst providing additional support for children with cancer and their families. The KOALA kids branch of the Foundation provides the many small things that make a difference to the lives of children with cancer and their families. Contact: 9635 6685 Email: koala@koalafoundation.org.au Website: www.koalafoundation.org.au Make A Wish Foundation The Make A Wish Foundation grants wishes to children and young people between four and eighteen with a life-threatening illness. Children under four can apply for a Wish Gift Box. Parents and guardians are welcome to ask the Foundation for a wish for a child or young person. Contact: Make A Wish Foundation 383 Swan Street, Richmond,VIC 3121 Telephone: 1800 032 260 Website: www.makeawish.org.au Redkite This Fund provides financial and emotional support to families who have a child with cancer and who face extra financial stress as a result of prolonged or intensive treatment. The fund also provides support to families through the funding of some social work personnel at RCH and MMC. Red Kite also runs telegroups to provide telephone group support for families who are unable to attend hospital based support groups. Red Kite financial assistance is accessed through your child’s social worker. Contact: 1300 722 644 Email: support@redkite.org.au Website: www.redkite.org.au Sec.5:6 More support Updated March 2011
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Coordinated and facilitated by the
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100129 Updated March 2011 The Infor
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Outpatients at the CCC (RCH) ......
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Hospital facilities................
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4 Cancer Children’s cancers & tre
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Parents Cancer Connect - Cancer Cou
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Ultrasound scan....................
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We are grateful to the KOALA Founda
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YOUR CHILD’S DIAGNOSIS: Your chil
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Your child’s team Many people wil
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The ward The Children’s Cancer Ce
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SCHOOL - AGE CHILDREN & ADOLESCENTS
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A menu monitor will collect your ch
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Sharing the ward The ward is a shar
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...and going home: what to take The
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Blood test Before seeing the doctor
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Going nuts with Macadamia “Going
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Sec.2.0:16 Your child’s hospital
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Medical Appointments CCC Outpatient
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The Peter Mac team The Paediatric,
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Radiotherapy planning Planning for
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Generally there are set meal times
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Showers & toilet facilities Showers
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Social Work Social Work Department
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The ward Monash Children’s has tw
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• Bring familiar items from home
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Parking Monash Medical Centre’s c
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...and going home: what to take The
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On arrival for your child’s appoi
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Social Work and interpreters Social
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Sec.2.3:2 Your child’s regional h
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Coming to hospital: what to bring..
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Parent meals Meals will be provided
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Television Please do not bring in a
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Quick Help If you are concerned abo
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Sec.2.3:12 Your child’s regional
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Food can be bought in the hospital
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Television Please do not bring in a
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• The Hospital Dining Room, First
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Visitors Parents have 24 hours acce
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If the food on the menu does not su
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Associate Unit Managers (AUM) manag
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Morning and afternoon tea is also o
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A Appointments Do you have a follow
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Sec.2.7:8 Your child’s regional h
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Pharmacy Pharmacy is located on the
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Hospital facilities ATM cash point
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Before the procedure • Talk with
Page 129 and 130: Fatigue & sleepiness Fatigue is a c
Page 131 and 132: DO NOT bring your child directly to
Page 133 and 134: Signs of Measles • Sneezing, wate
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Page 137 and 138: Check your child’s mouth regularl
Page 139 and 140: Hints to help your child take medic
Page 141 and 142: The health support plan should be m
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Page 145 and 146: • When visiting households with a
Page 147 and 148: Helping your child cope with illnes
Page 149 and 150: Taking care of your relationships H
Page 151 and 152: • Some siblings benefit from canc
Page 153 and 154: With your workmates Sometimes, cont
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Page 157 and 158: Before doctors decide the best way
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Page 161 and 162: Radiotherapy is a very effective tr
Page 163 and 164: Examples of complementary & alterna
Page 165 and 166: Low neutrophil count Neutrophils ar
Page 167 and 168: Digestive system side effects - Mou
Page 169 and 170: Hair & skin side effects Some treat
Page 171 and 172: Reproductive system side effects Im
Page 173 and 174: Nursing & medical supportive care S
Page 175 and 176: During this time we are also prepar
Page 177 and 178: Other assistance Ambulance transpor
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Page 183 and 184: Fundraising groups Cancer In Kids A
Page 185 and 186: The Royal Children’s Hospital Fou
Page 187 and 188: Seeking Information Websites, the i
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Page 191 and 192: Associate Nurse Unit Managers Assoc
Page 193 and 194: Neuropsychologist The Neuropsycholo
Page 195 and 196: Patient Services Assistants (PSA) P
Page 197 and 198: Echocardiogram An ultrasound test i
Page 199 and 200: With the Insuflon in place your chi
Page 201 and 202: BOLUS - intravenous drug administer
Page 203 and 204: INTRAVENOUS (IV) - method to admini
Page 205 and 206: THROMBOCYTOPENIA - a reduction in t
Page 207 and 208: Frequently asked questions During y
Page 209 and 210: House cleaning Is it necessary to s
Page 211 and 212: Sec.6:22 Tell Me… Updated March 2
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The information book - Paediatric Integrated Cancer Service

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