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2016-bookofabstracts-300316

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Abstracts Thursday 30th June 2016<br />

Keywords<br />

End of life care, Research, Practice – present and future, NHS<br />

Contact E-mail Addresses<br />

Helene.hibbert@rmh.nhs.uk<br />

Author Biographies<br />

Helene Hibbert is an <strong>Occupation</strong>al Therapist has been working<br />

as a Lecturer Practitioner at The Royal Marsden School for<br />

four years. With multi-professional colleagues, I am involved<br />

in educating Nurses and Allied Health Professionals in postregistrations<br />

specialised modules and programmes focused on<br />

cancer, palliative care, research and long term conditions.<br />

These subjects reflect my clinical interests and experience, having<br />

previously worked for some years in specialist Palliative Care<br />

Teams in Acute Hospital and Hospice and prior to this, in surgical<br />

and orthopaedic units.<br />

I have a Masters Degree in Research Methodology and a<br />

Teaching PGDip.<br />

Jill Cooper MBE, is Head <strong>Occupation</strong>al Therapist at The Royal<br />

Marsden Hospital Foundation Trust, leading and developing this<br />

service over a number of years. I have been a member of the OT<br />

community, editing several well known books, and contributing<br />

to book chapters and papers on the role of OT in oncology<br />

and palliative care. I have participated in a number of roles for<br />

COT Special interest group (HOPC), helping to coordinate and<br />

contribute to policy and development responses locally and<br />

nationally.<br />

I have a Masters Degree in Cancer Care and was awarded an<br />

MBE for services to OT in Oncology.<br />

Session 56a.2<br />

Empowering patient choice and decision making at<br />

the end of life<br />

Caudren H, North Tees and Hartlepool NHS Foundation<br />

Trust<br />

The Department of Health End of Life Strategy (DH 2012)<br />

acknowledged that given the choice, people would rather die in<br />

their own homes surrounded by loved ones and familiar objects.<br />

<strong>Occupation</strong>al therapists (OTs) play a key role within palliative care<br />

to help patients remain at home and to maintain an achievable<br />

level of independence in activities which they have identified as<br />

meaningful to them.<br />

OTs may prescribe equipment to compensate for loss of function,<br />

strength or to improve safety and psychological wellbeing of<br />

the individual. The OT usually has to describe accurately the<br />

size, shape and operational function of the equipment and rely<br />

on the individual ‘imagining’ how the equipment would look in<br />

their home and impact on family life/routine.<br />

To empower patients and increase informed choice and<br />

psychological wellbeing, a service improvement initiative was<br />

developed to enable patients and carers to watch videos of how<br />

prescribed equipment works, how it is operated and to visualise<br />

how it would fit into their home. Videos were developed to<br />

demonstrate the use of common pieces of equipment and<br />

these, in addition to photographs of all the equipment available<br />

through statutory services, were downloaded onto a tablet. The<br />

tablet was then utilised by the OT during the initial interview<br />

and subsequent visits to allow patients and carers to select the<br />

equipment identified by the OT as meeting their needs.<br />

This paper will present the results of the evaluation. Data was<br />

gathered using a semi-structured questionnaire given to the<br />

patients and carer during the first 12 months of the project,<br />

to identify if the project has increased their satisfaction with<br />

the service and has increased their involvement in the decision<br />

making process regarding equipment.<br />

Ethical approval was not required for this service improvement<br />

project. The questionnaire was approved by the Trust’s clinical<br />

effectiveness team.<br />

This project was supported by a Macmillan Service Development<br />

Grant of £1,000.<br />

References<br />

Department of Health (2012) End of Life Strategy: Fourth Annual<br />

Report. London: Department of Health<br />

Keywords<br />

End of life care, Service improvement or transformation,<br />

Innovative practice, NHS<br />

Contact E-mail Addresses<br />

helen.caudren@nhs.net<br />

Author Biographies<br />

I am Macmillan occupational therapist within the specialist<br />

palliative care team in Stockton on Tees.<br />

Session 56a.3<br />

Keeping the name alive: the occupation of starting a<br />

charity after the loss of a child<br />

Carruthers J, Northumbria University<br />

It is generally accepted that grief can affect both a person’s<br />

physical health and mental wellbeing (Costello, 2012).<br />

Bereavement may also affect a person’s roles, routines and<br />

identity. These are all key concerns of occupational therapists yet<br />

to date grief and bereavement have received very little attention<br />

from a specifically occupational perspective (e.g. Hoppes and<br />

Segal, 2010).<br />

<strong>Occupation</strong>al therapists will inevitably meet people who are<br />

grieving, wherever they work, and a better understanding of<br />

how loss and occupation are related could help them better<br />

support these clients. Extending understanding could also<br />

highlight areas for further research to develop occupational<br />

assessments or interventions for loss, and may generate<br />

evidence to support a new role for OT in bereavement care. This<br />

Masters’ project was seen as one step towards increasing this<br />

understanding.<br />

Method: The project focused on mothers’ experiences and<br />

understandings of the occupation of starting a charity after<br />

the loss of a child. This narrow focus was deemed appropriate<br />

given the exploratory aims and time constraints. Ethical approval<br />

was obtained from the student’s university ethics panel. Semistructured<br />

interviews were conducted with four mothers and<br />

thematic analysis used to identify key themes.<br />

Findings: Running a charity was described by the mothers as a<br />

way of doing, being, becoming and belonging (Wilcock, 2006)<br />

in a world turned upside down by the loss of their child. They<br />

described the occupation as keeping a continuing presence of<br />

the child in their life and giving meaning to what they had been<br />

through. This fits with contemporary grief models, which identify<br />

continuing bonds and meaning-making as important for healthy<br />

grieving (Neimeyer and Sands, 2011). The occupation also<br />

helped mothers look forward and provided a sense of purpose,<br />

pride and achievement, which impacted on their wellbeing.<br />

This paper will discuss the findings of the project as they relate<br />

to occupational science.<br />

46

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