Loss and Grief in Dementia
Final-Guidance-Document-3-Loss-Grief
Final-Guidance-Document-3-Loss-Grief
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Key Considerations<br />
ii. people respond <strong>and</strong> cope with grief <strong>in</strong> different ways<br />
“<strong>Grief</strong> is based upon the unique perception of loss by the griever” (51).<br />
Although there are commonalities <strong>in</strong> grief, each person’s grief is unique. There is no ‘normal’ or ‘right<br />
way’ to grieve. How a person grieves <strong>and</strong> deals with their loss will depend on a number of factors<br />
such as the nature <strong>and</strong> extent of their grief, their relationship with the person, their culture, their<br />
personality, their gender <strong>and</strong> their own personal history, the support they receive, the mean<strong>in</strong>g they<br />
f<strong>in</strong>d <strong>in</strong> their loss <strong>and</strong> their own <strong>in</strong>ternal resources (30,52,53). Researchers have identified a number<br />
of griev<strong>in</strong>g styles based on how a person experiences their loss <strong>in</strong>ternally <strong>and</strong> how they express their<br />
loss to the outside world (8). The three major types of griev<strong>in</strong>g styles are as follows: <strong>in</strong>tuitive,<br />
<strong>in</strong>strumental <strong>and</strong> blended.<br />
Intuitive grievers tend to experience their grief as waves of feel<strong>in</strong>g <strong>and</strong> they show their feel<strong>in</strong>gs externally<br />
to others by cry<strong>in</strong>g, talk<strong>in</strong>g about their loss <strong>and</strong> connect<strong>in</strong>g with others about their experiences. Intuitive<br />
grievers tend to cope by tak<strong>in</strong>g time to grieve <strong>and</strong> shar<strong>in</strong>g feel<strong>in</strong>gs with others (54).<br />
Instrumental grievers tend to experience their grief <strong>in</strong> a more cognitive way <strong>and</strong> are less likely to<br />
display emotions as overtly as <strong>in</strong>tuitive grievers. They tend to try <strong>and</strong> keep their feel<strong>in</strong>gs under control<br />
<strong>and</strong> tend to engage <strong>in</strong> problem–solv<strong>in</strong>g activities related to the loss <strong>in</strong>stead of focus<strong>in</strong>g on the pa<strong>in</strong><br />
of the loss itself. They may seek out social support but are unlikely to spend this time shar<strong>in</strong>g their<br />
feel<strong>in</strong>gs. They may show grief by becom<strong>in</strong>g anxious/agitated/hyper energetic or by immers<strong>in</strong>g<br />
themselves <strong>in</strong> tasks <strong>and</strong> projects (31).<br />
In summary, Intuitive grievers ‘feel’ the grief while <strong>in</strong>strumental grievers ‘do’ the grief (31)<br />
Blended grievers experience <strong>and</strong> express their grief us<strong>in</strong>g a mix of both cognitive <strong>and</strong> emotional<br />
cop<strong>in</strong>g styles.<br />
While some people may be very strongly oriented towards one style, many people will fall somewhere<br />
along the cont<strong>in</strong>uum below:<br />
Intuitive<br />
Griev<strong>in</strong>g<br />
Style<br />
Blended Griev<strong>in</strong>g Style<br />
Instrumental<br />
Griev<strong>in</strong>g<br />
Style<br />
In addition to griev<strong>in</strong>g styles, there are some common tasks which people generally need to attend<br />
to <strong>in</strong> the griev<strong>in</strong>g process (55). People do this <strong>in</strong> their own time <strong>and</strong> <strong>in</strong> their own way. The tasks<br />
usually <strong>in</strong>volve constant rework<strong>in</strong>g. These tasks are as follows:<br />
1. Accept<strong>in</strong>g the loss: this means accept<strong>in</strong>g that the loss has occurred.<br />
2. Experienc<strong>in</strong>g the pa<strong>in</strong>: there is no shortcut through grief. It is only by experienc<strong>in</strong>g the pa<strong>in</strong><br />
of grief that a person can start to heal <strong>and</strong> adjust to the loss.<br />
<strong>Loss</strong> <strong>and</strong> <strong>Grief</strong> <strong>in</strong> <strong>Dementia</strong><br />
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