Loss and Grief in Dementia

Section 7
104. Sanders S, Corley C. Are they grieving? A
qualitative analysis examining grief in caregivers of
individuals with Alzheimer’s Disease. Soc Work
Health Care. 2003;37(3):35–53.
105. Small N, Froggatt K, Downs M. Living and Dying
with Dementia: Dialogues about Palliative Care. 1st
ed. Oxford: Oxford University Press; 2007. 248 p.
106. Botsford AL, Force LT. End-of-Life Care: A Guide to
Supporting Older People with Intellectual Disabilites
and Their Families. Albany New York: NYSARC Inc;
2000.
107. Alzheimer Scotland. Loss and bereavement in
people with dementia. (Information sheet) [Internet].
Alzheimer Scotland; 2011 [cited 2016 Jan 12].
Available from: http://www.alzscot.org/assets/
0000/0176/loss_bereavement.pdf
108. Oyebode J. Grief and bereavement. In: Downs M,
Bowers B, editors. Excellence in Dementia Care:
Research into Practice. 2nd ed. Open University
Press; 2008. p. 379–94.
109. Bryden C. Dancing with dementia :My story of living
positively with dementia. London: Jessica Kingsley;
2005.
110. Mitchell G, McCollum P, Monaghan C. The personal
impact of disclosure of a dementia diagnosis: a
thematic review of the literature. Br J Neurosci Nurs.
2013;9(3):223–8.
111. Livingstone G, Pitfield C, Morris J, Manela M, Lewis-
Holmes E, Jacobs H. Care at the end-of-life for
people with dementia living in a care home: a
qualitative study of staff experience and attitudes. Int
J Geriatr Psychiatry. 2012;27(6):643–50.
112. Aoun SM, Breen LJ, Howting DA, Rumbold B,
McNamara B, Hegney D. Who Needs Bereavement
Support? A Population Based Survey of
Bereavement Risk and Support Need. PLOSone
Open Access [Internet]. 2015;10(3). Available from:
http://www.plosone.org/article/fetch
Object.action?uri=info:doi/10.1371/journal.pone.01
21101&representation=PDF
113. Bunn M. Sharing Bad News [Internet]. Alzheimers
North Carolina Inc. [cited 2016 Jan 13]. Available
from: http://www.alznc.org/index.php/alzheimersmanaging-stress/69-sharing-bad-news
114. Neimeyer R, Baldwin SA, Gillies J. Continuing
Bonds and Reconstructing Meaning: Mitigating
Complications in Bereavement. Death Stud.
2006;30(8):715–38.
115. Hewitt H. Life story books for people with learning
disabilities: a practical guide. BILD: The British
Institute of Learning Disabilities; 2006.
116. NHS Education for Scotland. Spiritual Care Matters:
An Introductory Resource for all NHSScotland Staff
[Internet]. NHS Scotland; 2009 [cited 2016 Mar
14]. Available from: http://www.nes.scot.nhs.uk/
media/3723/spiritualcaremattersfinal.pdf
117. Speck BW. What is spirituality. New Dir Teach Learn.
2005;2005(104):3–13.
118. UCC. Guidance Document 4: Pain Assessment
and Management [Internet]. The Irish Hospice
Foundation; 2016 [cited 2016 Jan 14]. Available
from: http://hospicefoundation.ie/healthcareprogrammes/introduction-to-dementia-palliative-car
e-2/guidance-documents/
119. Fogg Berry K. Case Study: Spirituality and the
cognitively impaired. Age Action. 20(1):1–15.
120. Royal College of Nursing. Spirituality in nursing
care: a pocket guide [Internet]. 2011. Available
from: https://www2.rcn.org.uk/__data/assets
/pdf_file/0008/372995/003887.pdf
121. Grollman EA. Spirituality and Alzheimers Disease.
In: Living with Grief: Alzheimers Disease. Hospice
Foundation of America; 2004.
122. Puchalski CM. Spirituality and the Care of Patients
at the End-of-Life : An Essential Component of
Care. OMEGA - J Death Dying. 2007;56(1):33–46.
123. Stuckey J, Post S, FallCreek DSW, Whitehouse P.
Satisfactions and challeges in spiritual faith and
practice for persons with dementia. Alzheimers
Care Q. 2002;3(3):199–207.
124. Stuckey JC, Gwyther P. Dementia, religion and
spirituality. Dementia. 2003;2(3):291–7.
125. Ryan EB, Schindel Martin L, Beaman A.
Communication strategies to promote Spiritual wellbeing
among people with dementia. J Pastor Care
Couns. 2005;59(1):43–55.
126. Narayanasamy A. Recognising spiritual needs. In:
Spiritual Assessment in Healthcare Practice.
Keswick: M&K Publishing; 2010.
127. McSherry W. The Meaning of Spirituality and
Spiritual Care within Nursing and Health Care.
London: Practice Quay Books; 2007.
128. Katsuno T. Personal spirituality of persons with
early-stage dementia. Is it related to quality of life?
Dementia. 2003;2(5):315–35.
129. Alzheimers Society UK. My name is not dementia:
people with dementia discuss quality of life
indicators [Internet]. 2010 [cited 2016 Jan 13].
Available from: http://sid.usal.es/idocs/F8/
FDO25934/My_name_is_not_dementia_report.pdf
130. MacKinlay E. Using Spiritual Reminiscence with a
small group of Latvian residents with dementia in a
nursing home: a multifaith and multicultural
perspective. J Relig Spiritual Ageing.
2009;21(4):318–29.
131. Gerritsen DL, Droes RM, Etterna TP, Bos J,
Meihuizen L, deLange J, et al. Quality of life in
dementia, opinions among people with dementia,
their professional caregivers, and in literature.
Tijdschr Gerontol Geriatr. 2010;41(6):241–55.
132. Healthcote J, Hong CS. Groupwork as a tool to
combat loneliness among older people: Initial
observations. Groupwork. 2009;19(2):121–30.
133. Bell V, Troxel D. Spirituality and the person with
dementia - a view from the field. Alzheimers Care Q.
2001;2(2):31–45.
86
Loss and Grief in Dementia