Loss and Grief in Dementia

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Section 4 2. Provide ongoing education and training: Training programmes for healthcare staff should include issues relating to loss, grief and bereavement. Organisations should ensure that healthcare staff are aware of the stresses, strains and also the opportunities for personal growth which are involved in working with people at the end of their lives. Helping healthcare staff to develop coping strategies and strategies for self-care should also be a core part of any educational programmes. This should begin from an employee’s point of entry into a workplace and form part of their job orientation programme. Having information on grief and bereavement for healthcare staff which includes signposting for family support has been reported to be useful by healthcare staff. AddItIOnAL ReSOuRCeS On HeALtHCARe StAff SuppORt 1. The Irish Hospice Foundation has created a series of resources and training programmes for organisations and healthcare staff to help them understand grief, the impact it has on the bereaved and their colleagues and ways in which they can be positively supported. These are available on www.griefatwork.ie 2. The Irish Hospice Foundation produced a series of Prompts for Good Practice and ‘Just in Time Guidance’. One of these is called ‘Caring For yourself in end-of-life care work. This is available here: http://hospicefoundation.ie/wp-content/uploads/2013/08/Caring-for-Yourselfin-End-of-Life-Care.pdf 3. The Alzheimers Association of Canada has produced a booklet for healthcare staff called ‘Dementia and staff grief: A resource for healthcare providers. Available here http://www.alzheimer.ca/~/media/Files/national/For-HCP/staff_grief_e.pdf 4. Webinar on Acknowledging Healthcare staff Grief when working with dementia: It is vital – available here https://vimeo.com/119876282 5. Coping with Loss and Grief in the Aged Care Industry http://www.nalag.org.au/Brochures/ Aged%20Care%20Industry-%20Version%201.4%20WEB.pdf 6. The Psychological Society of Ireland has produced a useful one page leaflet which has 40 tips for mental health, well-being and prosperity. This is available on http://www.psihq.ie/files/ UserFiles/PSI%2040%20Tips%20Flyer%200511%20Web%20.pdf 7. Carers Victoria have produced a booklet called ‘ An unrecognised grief: loss and grief issues for carers: worker’s guide. This is available on: http://www.carersvictoria.org.au/Assets/ Files/Loss%20and%20Grief%20-%20A%20workers%20guide%20REV.pdf 62 Loss and Grief in Dementia
s Section 5 5 AddItIOnAL ReSOuRCeS 5.1 factsheet on loss and grief in dementia FACT SHEET 3 Loss and Grief in Dementia Why is this important? “You go into the deepest grief that one can go into for the life you will never have. There’s a huge pain for families and a huge pain for yourself in realising that life will never be as it was” (Helen Rochford-Brennan, Chairperson of the Irish Dementia Working Group) Loss and Grief are fundamental parts of the dementia experience for the person with dementia and their family. Dementia can lead to the person experiencing multiple losses throughout their journey with dementia which build in number and magnitude as the condition progresses. These types of losses can go unrecognised. LOSS: Loss is the experience of being without someone or something that is of significance to us. GRIEF: is the natural process of reaction and adjustment to loss and change in a person’s life. Loss and Grief commonly encountered as part of dementia experience Ambiguous loss: Ambiguous loss can occur when the person with dementia is physically present but they are no longer the same person they once were. Ambiguous loss can lead to mixed and often quite confused feelings for family members. It may be helpful to find other ways of engaging with the person with dementia by focussing on their abilities in order to help adjust to the changes which dementia brings. Anticipatory Loss: Anticipatory loss refers to losses which we anticipate will happen in the future in the context of facing a life-limiting illness. In dementia, anticipatory losses can happen for the person with dementia and their families. Disenfranchised grief: Disenfranchised grief is a 'hidden' grief which happens when losses are not appreciated, recognised or understood by others. Because of this, it is not publicly acknowledged or socially shared. Grief related to the experience of living with dementia is often disenfranchised because of a lack of awareness, stigma related to the diagnosis of dementia or other reasons. This type of grief can be very isolating for the person experiencing it. Key Considerations for Good Practice 1. Be aware that loss and grief are fundamental parts of the dementia experience 2. Develop knowledge and understanding about loss and grief 3. Recognise loss and grief when you encounter it and develop appropriate responses 4. Reflect on how the loss and grief you encounter in your work affects you in your work Loss and Grief in Dementia 63
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PALLIATIVE CARE FOR THE PERSON WITH
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Contents Glossary of Terms 2 1. Bac
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Glossary of Terms Burnout: Is a com
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Background and Context • Better e
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Introduction Aim of this guidance d
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s Section 3 3 fOuR keY COnSIdeRAtIO
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Loss and Grief in Dementia

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