Loss and Grief in Dementia

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Section 6 AppendIx 2: metHOdOLOGY development of the Guidance document These guidelines were developed using the following process: 1. The IHF Project Advisory Group established an Expert Advisory Group to develop this guidance document (See appendix 1 for membership of the group). 2. A narrative literature review was undertaken by the project lead (Sarah Cronin) using English language articles selected through a systematic search strategy (see below). Key themes were identified and presented to the Expert Advisory Group. 3. Key themes were collated to inform (a) the key considerations and (b) the guidance areas by the Expert Advisory Group. 4. Draft 1 was prepared for comment by the expert advisory group. 5. Draft 2 was prepared for expert review and external consultation (see appendix 3 for list of submissions received). 6. Feedback from external consultation to develop final draft. A consultation report was prepared and available on request to those who submitted. 7. Final version published. 76 Loss and Grief in Dementia
Appendices Literature Review: DEMENTIA & GRIEF - LITERATURE SEARCH Identified Search Strands 1 The person with dementia 2 The healthcare staff 3 The family Suggested Terms Related MeSH Term Dementia • Dementia • Frontotemporal Dementia • Delirium, Dementia, Amnestic • Cognitive Disorders • Dementia, Multi-Infarct • Dementia, Vascular • Alzheimer Disease • Lewy Body Disease • Frontotemporal Dementia (With Motor Neuron Disease) • Frontotemporal Dementia, Chromosome 3-Linked • Dementia, familial (British) • Presenile And Senile Dementia • Presenile dementia, Kraepelin type Bereavement • Bereavement Grief • Grief • Complicated grief Anticipatory Loss • Bereavement Dementia carers • Caregivers • Dementia & caregivers Residential care home • Residential Facilities • Nursing homes Nursing home healthcare staff • Nursing healthcare staff • Personnel, Health • Health Care Providers • Health Care Provider Loss and Grief in Dementia 77
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PALLIATIVE CARE FOR THE PERSON WITH
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Contents Glossary of Terms 2 1. Bac
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Glossary of Terms Burnout: Is a com
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Background and Context • Better e
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Introduction Aim of this guidance d
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s Section 3 3 fOuR keY COnSIdeRAtIO
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Key Considerations Ambiguous losses
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Key Considerations ii. people respo
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Key Considerations 3.3 Recognise lo
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s Section 4 4 GuIdAnCe And ReSOuRCe
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Guidance and Resources b. Validate
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Guidance and Resources Where to see
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Guidance and Resources The grief re
Page 27 and 28: Guidance and Resources InfORmAtIOn
Page 29 and 30: Guidance and Resources Feelings whi
Page 31 and 32: Guidance and Resources 3. Are they
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Page 37 and 38: Guidance and Resources CASE STUDY 1
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Page 45 and 46: Guidance and Resources What gives m
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Page 49 and 50: Guidance and Resources InfORmAtIOn
Page 51 and 52: Guidance and Resources Early Stages
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Page 55 and 56: Guidance and Resources b) Supportin
Page 57 and 58: Guidance and Resources AddItIOnAL R
Page 59 and 60: Guidance and Resources 4.4 GuIdAnCe
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Page 63 and 64: Guidance and Resources tIpS fOR ORG
Page 65 and 66: s Section 5 5 AddItIOnAL ReSOuRCeS
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Page 77: Appendices membership of the expert
Page 81 and 82: Appendices Themes: All sourced mate
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Page 85 and 86: Appendices 25. Steinberg L, Howes J
Page 87 and 88: References 79. Dodd P, Guerin S. Gr
Page 89 and 90: References 134. Moniz-Cook E, Verno
Page 92: The Irish Hospice Foundation Morris
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Loss and Grief in Dementia

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