Loss and Grief in Dementia
Final-Guidance-Document-3-Loss-Grief
Final-Guidance-Document-3-Loss-Grief
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Guidance <strong>and</strong> Resources<br />
• The Irish Hospice Foundation have produced a number of prompts for good practice guides on:<br />
- Deliver<strong>in</strong>g Bad news<br />
- Good end-of-life care for people with dementia<br />
- Respond<strong>in</strong>g to difficult questions<br />
- Communicat<strong>in</strong>g with a person with dementia<br />
These are available to download here: http://hospicefoundation.ie/education-tra<strong>in</strong><strong>in</strong>g/healthcare<br />
staffdevelopment/prompts-for-good-practice/<br />
• The End-of-Life Care Map has useful <strong>in</strong>formation for healthcare staff on different aspects of endof-life<br />
care. This is available to download on: http://hospicefoundation.ie/wp-content/uploads<br />
/2013/04/End-of-Life-Care-Map-2013-version.pdf<br />
7. Jenny’s Diary is a resource which was developed to support conversations about dementia with<br />
people who have a learn<strong>in</strong>g disability. It is available on http://www.uws.ac.uk/jennysdiary/<br />
8. The Liv<strong>in</strong>g with <strong>Dementia</strong> Programme <strong>in</strong> Tr<strong>in</strong>ity has produced a leaflet to support people with dementia<br />
cop<strong>in</strong>g with the early stages of dementia. This is available to download here:http://socialworksocialpolicy.tcd.ie/liv<strong>in</strong>gwithdementia/assets/pdf/Early_<strong>Dementia</strong>.pdf<br />
9. The Social Care Institute of Excellence (SCIE) <strong>in</strong> the UK have a module on the emotional impact of<br />
dementia <strong>in</strong> addition to <strong>in</strong>formation on the impact of a diagnosis on a person with dementia. These<br />
are available on: https://www.scie.org.uk/dementia/after-diagnosis/know<strong>in</strong>g-the-person/life-ischang<strong>in</strong>g.asp<br />
10. The HSE National <strong>Dementia</strong> Programme has a range of videos on respond<strong>in</strong>g to people with<br />
dementia on responsive behaviours. These are available on http://www.hse.ie/eng/about/<br />
Who/ONMSD/eductra<strong>in</strong><strong>in</strong>g/dementiaeducation/ResourcesNursesHealthcareHealthcare staff.html<br />
11. Spirituality:<br />
• The Sacred Art of Liv<strong>in</strong>g <strong>and</strong> Dy<strong>in</strong>g has excellent resources on different aspects of spirituality:<br />
www.sacredartofliv<strong>in</strong>g.org<br />
• The Foundation for People with Learn<strong>in</strong>g Disabilities has produced a factsheet on faith for people<br />
with <strong>in</strong>tellectual disabilities. This is available here: http://www.learn<strong>in</strong>gdisabilities.org.uk/content<br />
/assets/pdf/publications/what_about_faith_brief<strong>in</strong>g.pdf?view=St<strong>and</strong>ard<br />
• The NHS Scotl<strong>and</strong> have produced an <strong>in</strong>troductory resource for staff called ‘Spiritual Care<br />
Matters’ - http://www.nes.scot.nhs.uk/media/3723/spiritualcaremattersf<strong>in</strong>al.pdf<br />
• The Royal College of Nurs<strong>in</strong>g have produced a pocket guide called: ‘Spirituality <strong>in</strong> nurs<strong>in</strong>g care:<br />
a pocket guide’ https://www2.rcn.org.uk/__data/assets/pdf_file/0007/393154/guide_0038<br />
87.pdf<br />
<strong>Loss</strong> <strong>and</strong> <strong>Grief</strong> <strong>in</strong> <strong>Dementia</strong><br />
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