Loss and Grief in Dementia
Final-Guidance-Document-3-Loss-Grief
Final-Guidance-Document-3-Loss-Grief
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Section 4<br />
• Keep the person connected to th<strong>in</strong>gs that have mean<strong>in</strong>g for them. This will mean different th<strong>in</strong>gs<br />
for different people – it may be support<strong>in</strong>g them to attend to their religious beliefs, it may be<br />
support<strong>in</strong>g them to rema<strong>in</strong> connected with friends <strong>and</strong> family or many other th<strong>in</strong>gs to ensure they<br />
rema<strong>in</strong> connected to their identity <strong>and</strong> the world around them.<br />
AddItIOnAL ReSOuRCeS tO SuppORt A peRSOn WItH<br />
dementIA WItH LOSS And GRIef<br />
1. The Alzheimer Society of Irel<strong>and</strong> <strong>and</strong> The Irish Hospice Foundation booklet ‘I have dementia…<br />
How I plan for the future? This is a useful booklet for people diagnosed with dementia. Available<br />
from Alzheimer Society Helpl<strong>in</strong>e 1800341341 or website: https://www.alzheimer.ie/<br />
Alzheimer/media/SiteMedia/Helpl<strong>in</strong>e%20<strong>and</strong>%20Information%20Resources/publications/Alzhe<br />
imers_PlanForFuture-Brochure_web1-(1).pdf<br />
2. The Alzheimer Society of British Columbia have produced an <strong>in</strong>formation booklet for people with<br />
dementia <strong>and</strong> their families: Ambiguous loss <strong>and</strong> grief <strong>in</strong> dementia:<br />
http://www.alzheimer.ca/~/media/Files/national/Core-lit-brochures/ambiguous_loss_family_e.pdf<br />
3. Freedem Videos: these are a series of short videos produced <strong>in</strong> Tr<strong>in</strong>ity College Dubl<strong>in</strong>. They<br />
give viewers a good outl<strong>in</strong>e of dementia. Their video on emotional memory is particularly relevant<br />
to the area of loss <strong>and</strong> grief. These videos are available on: http://freedemliv<strong>in</strong>g.com/<br />
4. Alzheimers UK have produced two useful factsheets <strong>in</strong> this area:<br />
• <strong>Grief</strong>, loss <strong>and</strong> bereavement :<br />
https://www.alzheimers.org.uk/site/scripts/download_<strong>in</strong>fo.php?fileID=1796<br />
• Mak<strong>in</strong>g decisions <strong>and</strong> manag<strong>in</strong>g difficult situations<br />
https://www.alzheimers.org.uk/site/scripts/download_<strong>in</strong>fo.php?fileID=1929<br />
5. Alzheimers Scotl<strong>and</strong> have produced a factsheet on loss <strong>and</strong> bereavement which has lots of<br />
useful <strong>in</strong>formation: http://www.alzscot.org/assets/0000/0176/loss_bereavement.pdf<br />
6. The Irish Hospice Foundation have a number of resources available to support healthcare staff<br />
work<strong>in</strong>g with people with dementia:<br />
• http://hospicefoundation.ie/wp-content/uploads/2013/10/Module-2-The-Ethics-of-Break<strong>in</strong>g-<br />
Bad-News.pdf<br />
• http://hospicefoundation.ie/wp-content/uploads/2013/04/How-Do-I-Break-Bad-News.pdf<br />
• http://hospicefoundation.ie/education-tra<strong>in</strong><strong>in</strong>g/video-wall/communication/<br />
• http://hospicefoundation.ie/wp-content/uploads/2013/08/Deliver<strong>in</strong>g-Bad-News.pdf<br />
• Guidance Document 7: Ethical Decision Mak<strong>in</strong>g <strong>in</strong> End-of-Life Care for a person with dementia<br />
has an ethical decision mak<strong>in</strong>g framework which would be useful to guide practice when<br />
support<strong>in</strong>g people with dementia. This is available on http://hospicefoundation.ie/healthcareprogrammes/<strong>in</strong>troduction-to-dementia-palliative-care-2/guidance-documents/<br />
44<br />
<strong>Loss</strong> <strong>and</strong> <strong>Grief</strong> <strong>in</strong> <strong>Dementia</strong>
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