48 persons18 persons lacked permission from representatives30 persons4 persons excluded for medical/behavioral reasons26 persons2 persons excluded at the time of the measurements24 personsFigure 1. Sampl<strong>in</strong>g scheme of subjects <strong>in</strong>cluded <strong>in</strong> the studyAll participants were classified accord<strong>in</strong>g to the GMFCS [19]. Furthermore, visual and auditiveimpairments of the participants were classified accord<strong>in</strong>g to WHO guidel<strong>in</strong>es [4]: a dist<strong>in</strong>ctionwas made between be<strong>in</strong>g severely partially sighted and be<strong>in</strong>g partially sighted as well as betweensevere hear<strong>in</strong>g loss, slight hear<strong>in</strong>g loss and normal hear<strong>in</strong>g. Spasticity was classified as unilateral,bilateral or unknown [31]. Orthopedic defects were used as an <strong>in</strong>dicator of locomotor disabilitiesand classified as present or not present.Ethical statementThis study was performed <strong>in</strong> agreement <strong>with</strong> the guidel<strong>in</strong>es of the Hels<strong>in</strong>ki Declaration as revised<strong>in</strong> 1975. Permission to carry out the study was obta<strong>in</strong>ed from the <strong>in</strong>stitutional ethics committee.Informed consent was obta<strong>in</strong>ed from representatives of the participants, because the participantswere not able to give consent. The measurements were performed <strong>in</strong> accordance <strong>with</strong> thebehavioural code section entitled ‘Resistance among people <strong>with</strong> an <strong>in</strong>tellectual disability <strong>in</strong> theframework of the Act Govern<strong>in</strong>g Medical-Scientific Research Involv<strong>in</strong>g Humans’ [32]. Consistentdistress or unhapp<strong>in</strong>ess was <strong>in</strong>terpreted as a sign of lack of assent and further participation <strong>in</strong> thestudy was reconsidered.Study designHeart rate patterns were measured <strong>in</strong> each participant 8 hours a day for a period of six days.Every 15 m<strong>in</strong>utes measurements were conducted, result<strong>in</strong>g <strong>in</strong> a total amount of measurements aday of 32 (8 hours, 4 times 15 m<strong>in</strong>utes). 5 Out of the 6 test days were weekly, the rema<strong>in</strong><strong>in</strong>g dayfell <strong>in</strong> the weekend. Parallel <strong>with</strong> heart rate measurements, <strong>physical</strong> activities were registeredus<strong>in</strong>g direct observation, noted down <strong>in</strong> score lists.MeasuresHeart rate patterns were measured <strong>with</strong> a heart rate monitor (Polar RS 800, Kempele, F<strong>in</strong>land)whose heartbeat data were transferred later to a computer. Heart rate was monitored <strong>in</strong> everyparticipant dur<strong>in</strong>g 6 days dur<strong>in</strong>g 8 hours a day.Chapter 8 | 125
Data regard<strong>in</strong>g <strong>physical</strong> activity were registered <strong>with</strong> the use of a questionnaire, which wasfilled out by both personal caregivers at the liv<strong>in</strong>g group as support staff of the activity centre.Physical activity was coded as ‘Targeted <strong>physical</strong> activity Yes’ or ‘Targeted <strong>physical</strong> activity No’.Mov<strong>in</strong>g <strong>with</strong> the wheelchair <strong>in</strong>side or outside, transfer, active sitt<strong>in</strong>g <strong>with</strong>out support, gymnastics<strong>with</strong> a gymnastic <strong>in</strong>structor, <strong>physical</strong> therapy, play<strong>in</strong>g <strong>with</strong> a ball, and ‘danc<strong>in</strong>g’ on music were allexamples of ‘Targeted <strong>physical</strong> activity Yes’. Listen<strong>in</strong>g to music, watch<strong>in</strong>g television or ly<strong>in</strong>g downon a bed were all examples of “Targeted <strong>physical</strong> activity No’.Data analysisHeart rate zonesPeak heart rate, rest heart rate and heart rate reserves differ for each person, which makes themdifficult to compare. By calculat<strong>in</strong>g heart rate zones accord<strong>in</strong>g to the equation of Karvonen [33], itis possible to compare the zones of the participants <strong>with</strong> each other.Heart rate zones are calculated as follows. First, each participant’s peak heart rate wasestimated us<strong>in</strong>g the formula of Fernhall [34] for participants <strong>with</strong> <strong>in</strong>tellectual disabilities: 210 –0.56 (age) – 15.5. Due to the motor disabilities of the participants, no other non-<strong>in</strong>vasive measurecould be performed. Secondly, the participants rest<strong>in</strong>g heart rate was determ<strong>in</strong>ed by tak<strong>in</strong>g themedian of fifteen morn<strong>in</strong>g heart rate measurements. Thirdly, us<strong>in</strong>g the participants rest<strong>in</strong>g heartrate, the heart rate reserve was calculated by subtract<strong>in</strong>g rest<strong>in</strong>g heart rate of estimated peakheart rate. F<strong>in</strong>ally, the heart rate reserve was divided <strong>in</strong> 10 zones, each zone consist<strong>in</strong>g of 10%of the heart rate reserve. The heart rate of a participant dur<strong>in</strong>g each 15 m<strong>in</strong>utes was classified <strong>in</strong>these zones. For <strong>in</strong>stance: rest<strong>in</strong>g heart rate of 50 beats per m<strong>in</strong>ute (bpm), maximum heart rate of180 bpm; heart rate reserve is 130 bpm; each heart rate zone exists of 13 heart rates, the first zoneis from 50 to 63; the second from 63 to 76; and so on (Table 1).Table 1. Example of the heart rate zones for healthy personsHeart Rate Zone Activity Percentage of heart rate reserve (HRV)1 50-63 Rest 1-102 63-77 10-203 77-90 Quiet mov<strong>in</strong>g 20-304 90-103 30-405 103-116 Moderately <strong>in</strong>tensive activity 40-506 116-129 ACSM guidel<strong>in</strong>e of healthy <strong>physical</strong> activity 50-607 129-142 Intensive activity 60-708 142-155 70-809 155-168 Very <strong>in</strong>tensive activity 80-9010 168-180 90-100Patterns and classes <strong>in</strong> heart rateHeart rate of the 24 participants was measured eight hours a day dur<strong>in</strong>g six days, <strong>with</strong>measurements be<strong>in</strong>g conducted every 15 m<strong>in</strong>utes. In order to determ<strong>in</strong>e the activity levels ofpersons <strong>with</strong> PIMD compared <strong>with</strong> ACSM guidel<strong>in</strong>es of healthy <strong>physical</strong> activity, an overview ofthe heart rate zones is presented, along <strong>with</strong> a day to day outl<strong>in</strong>e of the mean prevalence of heartrate zones of the participants.126 | Chapter 8
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overweight [15]. This prevalence is
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IntroductionPhysical fitness and he
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References1 Bouchard C, Shepard RJ,
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37 Rimmer J, Kelly LE, Rosentswieg
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Chapter 3Measuring waist circumfere
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IntroductionChildren and adults wit
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participants. These calculations as
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Data analysisThe data were analyzed
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Eighty representatives gave permiss
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AcknowledgementsThis research was f
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21 Hopkins WG, Gaeta H, Thomas AC,
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Chapter 5Psychometric quality of a
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IntroductionIntellectual disability
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Exclusion criteria were mental or p
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Curriculum vitaeCurriculum vitae |
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