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Measuring physical fitness in Persons with Severe/Profound ...

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48 persons18 persons lacked permission from representatives30 persons4 persons excluded for medical/behavioral reasons26 persons2 persons excluded at the time of the measurements24 personsFigure 1. Sampl<strong>in</strong>g scheme of subjects <strong>in</strong>cluded <strong>in</strong> the studyAll participants were classified accord<strong>in</strong>g to the GMFCS [19]. Furthermore, visual and auditiveimpairments of the participants were classified accord<strong>in</strong>g to WHO guidel<strong>in</strong>es [4]: a dist<strong>in</strong>ctionwas made between be<strong>in</strong>g severely partially sighted and be<strong>in</strong>g partially sighted as well as betweensevere hear<strong>in</strong>g loss, slight hear<strong>in</strong>g loss and normal hear<strong>in</strong>g. Spasticity was classified as unilateral,bilateral or unknown [31]. Orthopedic defects were used as an <strong>in</strong>dicator of locomotor disabilitiesand classified as present or not present.Ethical statementThis study was performed <strong>in</strong> agreement <strong>with</strong> the guidel<strong>in</strong>es of the Hels<strong>in</strong>ki Declaration as revised<strong>in</strong> 1975. Permission to carry out the study was obta<strong>in</strong>ed from the <strong>in</strong>stitutional ethics committee.Informed consent was obta<strong>in</strong>ed from representatives of the participants, because the participantswere not able to give consent. The measurements were performed <strong>in</strong> accordance <strong>with</strong> thebehavioural code section entitled ‘Resistance among people <strong>with</strong> an <strong>in</strong>tellectual disability <strong>in</strong> theframework of the Act Govern<strong>in</strong>g Medical-Scientific Research Involv<strong>in</strong>g Humans’ [32]. Consistentdistress or unhapp<strong>in</strong>ess was <strong>in</strong>terpreted as a sign of lack of assent and further participation <strong>in</strong> thestudy was reconsidered.Study designHeart rate patterns were measured <strong>in</strong> each participant 8 hours a day for a period of six days.Every 15 m<strong>in</strong>utes measurements were conducted, result<strong>in</strong>g <strong>in</strong> a total amount of measurements aday of 32 (8 hours, 4 times 15 m<strong>in</strong>utes). 5 Out of the 6 test days were weekly, the rema<strong>in</strong><strong>in</strong>g dayfell <strong>in</strong> the weekend. Parallel <strong>with</strong> heart rate measurements, <strong>physical</strong> activities were registeredus<strong>in</strong>g direct observation, noted down <strong>in</strong> score lists.MeasuresHeart rate patterns were measured <strong>with</strong> a heart rate monitor (Polar RS 800, Kempele, F<strong>in</strong>land)whose heartbeat data were transferred later to a computer. Heart rate was monitored <strong>in</strong> everyparticipant dur<strong>in</strong>g 6 days dur<strong>in</strong>g 8 hours a day.Chapter 8 | 125

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