IntroductionPeople <strong>with</strong> <strong>in</strong>tellectual disabilities (ID) make up about 1% of the population of Europe [1]. Thispercentage is based on the WHO population prevalence estimate [1]. Comorbidity <strong>in</strong> persons<strong>with</strong> <strong>in</strong>tellectual disabilities is more frequent and patterns of comorbidity differ from the generalpopulation [2]. Obesity <strong>in</strong> women and underweight <strong>in</strong> both men and women is more common<strong>in</strong> adults <strong>with</strong> ID than <strong>in</strong> the general population after controll<strong>in</strong>g for differences <strong>in</strong> the agedistributions between the two populations [3]. Mc Guire et al. [4] found that 68% of their IDsample was overweight or obese, participation <strong>in</strong> exercise and adherence to a healthy diet arepoor. Other authors described these lifestyle problems <strong>in</strong> adults <strong>with</strong> low or moderate ID too:these persons often suffer from overweight and may have poor <strong>physical</strong> <strong>fitness</strong> [5, 6, 7]. Adults<strong>with</strong> ID often are not sufficiently active to achieve health benefits [8, 9].Accord<strong>in</strong>g to the Toronto model [10], <strong>physical</strong> <strong>fitness</strong> and health are related <strong>in</strong> the sensethat good <strong>physical</strong> <strong>fitness</strong> decreases health risks and improves wellbe<strong>in</strong>g and quality of life [11, 12,13]. Health can be def<strong>in</strong>ed as a state of complete <strong>physical</strong>, mental and social well-be<strong>in</strong>g and notmerely the absence of disease or <strong>in</strong>firmity (World Health Organization,WHO) [14, 15]. In addition,health is considered a resource for everyday life, not the objective of liv<strong>in</strong>g. Health is a positiveconcept emphasiz<strong>in</strong>g social and personal resources, as well as <strong>physical</strong> capacities [16]. Bouchardet al. [17] give the follow<strong>in</strong>g def<strong>in</strong>ition of health related <strong>physical</strong> <strong>fitness</strong>: ‘Health related <strong>physical</strong><strong>fitness</strong> is def<strong>in</strong>ed as a set of attributes that people have or achieve that relates to the ability toperform <strong>physical</strong> activity’. Accord<strong>in</strong>g to Caspersen et al. [18] and Pate [19], <strong>physical</strong> <strong>fitness</strong> is a setof attributes that are either health-related or skill-related that perta<strong>in</strong> more to athletic ability. Thehealth-related components of <strong>physical</strong> <strong>fitness</strong> are (a) cardiorespiratory endurance, (b) muscularendurance, (c) muscular strength, (d) body composition, and (e) flexibility. These components of<strong>physical</strong> <strong>fitness</strong> are more important to public health than are the components related to athleticability, especially <strong>in</strong> persons <strong>with</strong> multiple disabilities, therefore, we limit our discussion to these.Wuang et al. [20]) described that the IQ level substantially predicted overall performanceon motor tests. Physical <strong>fitness</strong> <strong>in</strong> persons <strong>with</strong> a visual disability is poorer than <strong>in</strong> persons<strong>with</strong>out disabilities [21, 22, 23]. Furthermore, a considerable number of persons <strong>with</strong> both severe<strong>in</strong>tellectual and sensory disabilities are at risk for a variety of health problems [24], among others<strong>in</strong>activity, overweight and obesity. The women appear at a higher risk for develop<strong>in</strong>g healthproblems compared to the men [25]. Apart from that, these health burdens often are associated<strong>with</strong> low levels of <strong>physical</strong> <strong>fitness</strong> [8]. Therefore, it is important to get <strong>in</strong>sight <strong>in</strong> the <strong>physical</strong><strong>fitness</strong> status <strong>in</strong> these <strong>in</strong>dividuals.Cardiorespiratory endurance, a component of health-related <strong>physical</strong> <strong>fitness</strong> [18], canbe divided <strong>in</strong>to aerobic power and cardiovascular capacity [17]. This implies that assessmentof health-related <strong>physical</strong> <strong>fitness</strong> <strong>in</strong>cludes measures of aerobic capacity as well as functionalexercise capacity [17], both objective measures of <strong>fitness</strong> level [26]. Aerobic capacity is the abilityof the cardiovascular system to deliver oxygen rich blood to body tissues [17], functional exercisecapacity is an objective measure of one’s ability to undertake the activities of day-to-day life [27].Timed walk<strong>in</strong>g tests are accepted methods to assess both above mentioned componentsof health-related <strong>physical</strong> <strong>fitness</strong> and to exam<strong>in</strong>e <strong>fitness</strong> level. Incremental speed walk<strong>in</strong>g tests(ISWT) are effective measures of aerobic capacity <strong>in</strong> healthy <strong>in</strong>dividuals and <strong>in</strong> <strong>in</strong>dividuals <strong>with</strong>chronic health conditions [28, 29]. These tests require participants to walk or run betweentwo markers that del<strong>in</strong>eate a 10-m course. Participants are to walk or run the course at a setChapter 4 | 55
<strong>in</strong>cremental speed determ<strong>in</strong>ed by a signal, which is played by a standard CD player. Two newlydeveloped shuttle run tests (SRT I, -II) for children <strong>with</strong> cerebral palsy also yield reliable and validdata for measur<strong>in</strong>g aerobic power [30]. In these SRTs, speed <strong>in</strong>creases every m<strong>in</strong>ute at 0.25 km/hsteps. The outcome measure is the number of steps successfully completed at the time the test isstopped [30].The six-m<strong>in</strong>ute walk<strong>in</strong>g distance test (6MWD) is accepted as a reliable test to measurefunctional exercise capacity <strong>in</strong> participants <strong>in</strong> various disease states [31, 32, 33, 34]. The 6MWDis self-paced and requires an <strong>in</strong>dividual to walk as far as possible <strong>in</strong> six m<strong>in</strong>utes on a course ofvarious lengths, <strong>with</strong>out runn<strong>in</strong>g. The distance walked dur<strong>in</strong>g the test, measured <strong>in</strong> feet or metres,is used as the outcome measure [35].The target population of this study are persons <strong>with</strong> severe or profound <strong>in</strong>tellectual andsensory disabilities (SIMD). Accord<strong>in</strong>g to the ICD-10 (World Health Organization, WHO) [36], theIQ of persons <strong>with</strong> severe <strong>in</strong>tellectual disabilities ranges from approximately 20 to 34, <strong>in</strong> adultsthis means an <strong>in</strong>tellectual age from 3 to under 6 years, which is likely to result <strong>in</strong> cont<strong>in</strong>uous needfor support. The IQ of persons <strong>with</strong> profound <strong>in</strong>tellectual disabilities is below 20, <strong>in</strong> adults thismeans an <strong>in</strong>tellectual age below 3 years, which results <strong>in</strong> severe limitation <strong>in</strong> self-care, cont<strong>in</strong>ence,communication and mobility.In particular persons <strong>with</strong> the comb<strong>in</strong>ation of severe ID and sensory disabilities are at riskfor both decrease of <strong>in</strong>dependence and quality of life, due to re<strong>in</strong>forcement of disabilities andless opportunities for compensation [37]. In these persons the level of health-related <strong>physical</strong><strong>fitness</strong> is difficult to reliably quantify, because they are not accustomed to the above-mentionedassessments, such as perform<strong>in</strong>g walk<strong>in</strong>g tests. To assess whether a test is feasible for thesepersons, it is therefore necessary to use specific <strong>in</strong>clusion criteria to each of the co-morbiditiese.g. locomotor disabilities and visual impairments. Furthermore, adjustments to test proceduresare necessary, as well as choos<strong>in</strong>g the tests carefully. For example, the SRT-I and II [30] maybe most feasible for these persons, because of its <strong>in</strong>crease of speed <strong>with</strong> 0.25 km/h, <strong>in</strong>stead ofthe 0.6 km/h <strong>in</strong>crease of speed of the ISWT [28, 29]. Another limit<strong>in</strong>g factor to determ<strong>in</strong>e thefeasibility and reliability of the measures <strong>in</strong> these persons are motivational problems. For <strong>in</strong>stance,some do not understand why they have to walk faster than they usually do, or why they have towear a heart rate monitor.The feasibility and reliability of timed walk<strong>in</strong>g tests, such as the 6MWD and SRT,<strong>in</strong> participants <strong>with</strong> SIMD have been unknown. Because good <strong>physical</strong> <strong>fitness</strong> decreases healthrisks and improves wellbe<strong>in</strong>g and quality of life [10, 11, 12], it is important to get comprehensive<strong>in</strong>sight <strong>in</strong> the health related <strong>physical</strong> <strong>fitness</strong> <strong>in</strong> persons <strong>with</strong> SIMD. With feasible and reliable tests,a specific tra<strong>in</strong><strong>in</strong>g <strong>in</strong>tervention aimed at promot<strong>in</strong>g <strong>physical</strong> <strong>fitness</strong> can be evaluated.Therefore, the purpose of this study was to exam<strong>in</strong>e the feasibility and the test-retest reliability ofthe 6MWD and SRT-I and II <strong>in</strong> persons <strong>with</strong> SIMD.MethodParticipantsThe participants were recruited from a residential care facility <strong>in</strong> the Netherlands, <strong>in</strong> which 200persons <strong>with</strong> severe or profound <strong>in</strong>tellectual and sensory disabilities live. Moreover, <strong>in</strong> 65%they also exhibit associated motor disabilities. We asked the representatives of 92 persons<strong>with</strong> sufficient motor capacities for permission for the persons to participate <strong>in</strong> this study.56 | Chapter 4
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patterns in this study we can concl
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References1 Emerson E. Underweight,
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38 Multilevel Models Project (2004)
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on this. To sum up, testing in pers
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studies. Randomized Controlled Tria
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of these individuals require more?
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19 Lahtinen U, Rintala P, Malin A.
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Judith van der Boom, dank je wel vo
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