5 years ago

Final Program - American Academy for Cerebral Palsy and ...

Final Program - American Academy for Cerebral Palsy and ...


26 Program HigHligHTs, continued friday, october 12, 2007 7:00 - 7:50 AM Breakfast Sessions: “Jump Start Your Day with Innovations & Ideas” Grab a bite to eat from the complimentary continental breakfast located in Exhibit Hall A, and enjoy your session which is led by one or more experts discussing subjects which are new, innovative, and/or controversial . These sessions are meant to be interactive and the audience is limited to 50 participants . brk1 – reTT syndrome: uPdaTe on diagnosis, researCH and managemenT location: Meeting Room 2 faculty: Sarojini S. Budden MD, FRCPC, FAAP level: Basic to Intermediate Target audience: Physicians, PT, OT, Aug: Com, Speech therapists, nurses, social workers, physiatrists, psychologists summary: Discussion will include current information on clinical and genetic diagnosis of Rett Syndrome and research . Clinical features will be discussed as they relate to cortical and autonomic dysfunction and its relevance in the diagnosis . Medical and therapeutic management of individuals with RS will be reviewed . learning objectives: To introduce health professionals to basic knowledge on Rett syndrome including clinical diagnosis update on current research and medical management of children and young adults with Rett syndrome . brk2 – CreaTing a menToring Program for adolesCenT girls WiTH disabiliTies location: Meeting Room 3 faculty: Judy Panko Reis, MA, MS; Sandy Gaynor, PhD, RN level: Basic Purpose: To describe a mentoring program for adolescent girls with disabilities which empowers them and educates them in self-advocacy skills . Attendees of this session can then use this as a model for starting their own mentoring programs . Target audience: This session may be useful to anyone who is interested in forming a mentoring program which can improve self-esteem and advocacy of people with disabilities . Psychologists, educators, nurses, therapists, developmental pediatricians, physiatrists, and administrators may find this course useful . summary: The medical model of disability, which focuses on curing the abnormalities of disability, is limiting for people with disabilities . The social model of disability that focuses on the person within a framework of social advocacy is preferred by many since it emphasizes acceptance and integration of people with disabilities . These models and a review of literature pertaining to self concept and mentoring will be discussed . Young people with disabilities often have little exposure to others with disabilities, especially to successful adults with disabilities . Some have limited social opportunities and do not know how to advocate for themselves . To address the needs of adolescent women with disabilities, a mentoring group was established using the social model of disability . Mentors are adult women with disabilities, primarily recruited from a women’s center of a rehabilitation hospital . Mentors are matched with adolescent girls with physical disabilities . This course will describe formation of the mentoring group and how it has evolved over time . It is hoped that others may then start similar groups that improve socialization, self-advocacy skills, and integration . Although this group is comprised of women and girls, other groups could focus on adolescent boys with disabilities or a mixed group . learning objectives: .) To define the medical and social models of disability . 2 .) To describe important attributes of a disability mentoring program . 3 .) To explain potential benefits of contact between adolescents and adults with disabilities . 4 .) To list what barriers exist that limit social participation of adolescents with disabilities . brk3 – seleCTive ConTrol assessmenT of THe loWer exTremiTy (sCale): inTroduCTion of a CliniCal Tool for assessmenT of seleCTive volunTary moTor ConTrol in PaTienTs WiTH sPasTiC Cerebral Palsy. location: Meeting Room faculty: Eileen Fowler, PhD, PT; Marcia Greenberg MS, PT; Loretta Staudt MS, PT level: Intermediate Purpose: To introduce a recently developed clinical tool for assessment of selective voluntary motor control (SVMC) in patients with spastic cerebral palsy (CP) and present clinical and research applications . To instruct experienced clinicians in the use and administration of the SCALE tool and provide opportunities to practice using videotaped assessments . Target audience: This course is designed for clinicians evaluating patients with cerebral palsy in their practice and individuals conducting research on the clinical or functional characteristics of children and adults with cerebral palsy . summary: The role of SVMC assessment of patients with CP in clinical practice and research will be discussed . Previously described methods of SVMC evaluation for adults following stroke and in children with cerebral palsy will be reviewed . The relationship of SVMC to other impairments such as strength and spasticity will be explored . The SCALE tool will be presented and the patient positioning, examiner instructions and score sheet will be explained for each joint . The criteria for each SVMC grade will be described, providing participants with the knowledge and skill to independently assess SVMC . Participants will have an opportunity to use the tool to assess all lower extremity joints on a variety of videotaped patient examples exhibiting a range of SVMC . Discussion and feedback on the participants’ skills will be provided . The reliability and validity of the SCALE tool will be discussed, along with recent findings on the distribution of SCALE scores and their relationship to gait parameters .

Program HigHligHTs, continued brk3 ConTinued... learning objectives: .) To become familiar with the purpose, content and administration of SCALE, a clinical tool for evaluation of SVMC . 2 .) To increase knowledge of the literature, clinical relevance and research regarding SVMC . 3 .) To learn the scoring system for SCALE . 4 .) To understand the role of SVMC assessment in evidence-based practice and research . brk4 – managing and TroublesHooTing inTraTHeCal baClofen PumPs location: Meeting Room faculty: Gregory S. Liptak, MD, MPH; Lorna Patanella, RN, PNP level: Intermediate to Advanced Purpose: To provide practical information about the management of children who have intrathecal baclofen (ITB) pumps when the system works well and when it does not . We plan to engage the audience in a discussion of their ideas and experience concerning the management of children who receive ITB therapy . Target audience: Health providers (including physicians and nurses) who provide care for patients who have intrathecal Baclofen pumps summary: a) Brief overview of the following: theoretical advantages of intrathecal Baclofen pumps, selection and screening of patients (size of patient), placement of spinal catheter, and initial dosing . b) Routine management–frequency of refills, changes in efficacy as the pump empties; methods to decrease anxiety during refills; accessing the pump in obese and other children and teens; changing concentrations–bridge boluses; precautions for children with pumps such as hot tub, wheelchairs and straps, sports like wrestling; scoliosis surgery; post-operative pain management; and longevity of pump . c) Managing early complications–wound dehiscence; fluid pockets; infection . d) Managing late complications–overdose; Baclofen withdrawal; flipped pump; migration of pump . e) Complex dosing techniques, weaning patients from ITB . learning objectives: Participants will be able to: .) Discuss relative indications and contraindications for intrathecal Baclofen pump implantation, 2 .) Discuss at least three ways to optimize routine pump refills, 3 .) Recognize signs and symptoms of intrathecal baclofen overdose and withdrawal and enumerate emergency interventions for both . brk5 – modern day magellans: HoW To suCCessfully navigaTe THe World of THird ParTy Payers location: Meeting Room 20 faculty: Marilyn Bull; Susan Effgen, MD; Jane Ann Emerson, MD; Ganesh Gupta, MD; Rebecca Hanson, MD; Dennis Hart, MD; Louise Kido Iwaishi, MD; Chris Johnson, MD; Jeri Beth Karkos, MD; Margo Orlin, PhD; Jean Stout, PT, MS; John Pelegano, MD; Maurice Sholas, MD; Lisa Thornton, MD; Jilda Vargus- Adams, MD level: Basic Purpose: To provide clinicians with a road map for successfully navigating the requirements of third party payers . To define the key elements of an effective appeal and to help clinicians understand how to structure an appeal after a denial . Target audience: Clinicians who interact with third party payers Course summary: The course will be structured around case studies which illustrate the various levels of appeal after a denial . We will discuss the key elements considered by the payer in granting an approval and how the decision is made . Specific content of an effective appeal at each level will be explored . Commonly denied items and services will be discussed along with strategies for acquiring approval . Members of the Advocacy Committee will share their experiences in interacting with insurance companies . learning objectives: .) To understand how third party payers arrive at their decision of approval or denial . 2 .) To gain a practical understanding of key elements that should be included in a successful appeal . 3 .) To learn an algorithm for successive levels of appeal . brk6 – undersTanding sexualiTy for THe disabled location: Meeting Room 7 faculty: Susan C. Labhard, MSN, RN-Transitions Nurse Specialist Course level: Intermediate Purpose: To improve understanding of the importance of relationships and sexuality for the disabled and to provide practical tools and resources for use with this population . Target audience: This course is relevant to clinicians of all disciplines, teachers, caregivers and individuals with disabilities from adolescents to adults . Course summary: Of all the tasks adolescents and young adults with disabilities face, the topic of sexuality is often overlooked or “deferred” by parents as well as health care providers . Participants will learn how to initiate a talk about sexuality and provide information not readily accessible to the disabled . The presenter will use over 20 years of clinical experience to explain how to develop healthy relationships; provide useful tips for sexual expression; and supply references for future questions about sexuality . Content is appropriate for a variety of audiences and topics presented in a creative and professional manner . Participants will learn that dealing with the sexual consequences of disabilities can offer unique challenges, but even the most severe disability need not be an obstacle to sexual fulfillment . learning objectives: .) Understand the importance of Sexuality for the Disabled and how to initiate a discussion of this topic . 2 .) Learn useful tips about developing relationships . 3 .) Gain knowledge about tools for sexual fulfillment and for preventing STD’s . 4 .) Explore options to traditional sexual expression and obtain resources for future reference . 27

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