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Final Program - American Academy for Cerebral Palsy and ...

Final Program - American Academy for Cerebral Palsy and ...

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32 Program HigHligHTs, continued iC11 - THe year’s ToP Ten arTiCles on develoPmenTal disabiliTies location: Meeting Room Gregory S. Liptak, MD, MPH; Gordon Worley, MD Course level: All Purpose: To present summaries of the ten most important articles on developmental disabilities published in the past year (2006-2007), and to encourage discussion about them by participants . Target audience: Physicians and nurses who treat children with developmental disabilities and want to keep abreast of the latest evidence-based, scientific findings that have the greatest impact on care . Although therapists are welcome and some articles may be relevant to their practices, most papers will have a medical focus . Course summary: The top ten clinically relevant articles published in English between autumn 2006 and summer 2007 will be presented to the audience . Articles will be chosen from the presenters’ personal experience as well as from searches in Medline and CINAHL (Current Information in Nursing & Allied Health Literature) . Categories from which the articles will be chosen include the following: attention deficit hyperactivity disorder, autism, cerebral palsy, Down syndrome, mental retardation, spina bifida, and spinal cord injury . They will be selected using the following criteria: ( ) impact on clinical care, (2) scientific merit of the study [validity], and (3) generalizability to practices . The presenters will summarize the ten articles in reverse order (saving number one for last) . Their impact on clinical practice, place in the context of current care, and their implications for future research will be discussed . The audience will be encouraged to respond to each article as it is presented . A copy of the references and abstracts will be given to the attendees . iC12 - PaTHs from adolesCenT To adulT and auTonomy: sexualiTy, driving and moving ouT location: Meeting Room 9 Kerstin ML Sobus, MD; Jeri Beth Karkos, MD; Kevin Murphy, MD Course level: Basic Purpose: To explore the issues of one’s individual journey to transition through adolescent into young adulthood with developmental disabilities and the unique challenges that may be faced during the teen years to achieve maximum independence . Specific topics to be explored include urologic continence, sexual expression, possibility of driving, and transition to one’s own apartment . Course summary: Presentation of current literature and clinical practice from multi-centers related to transitional needs of adolescents and young adults with developmental disabilities including adolescents with Cerebral Palsy, Spina Bifida related to key transitional needs . iC13 - risky business: skin breakdoWn in THe individual WiTH develoPmenTal disabiliTies location: Meeting Room 3 Elaine Ekmark, MS, APRN, BC, CWCN; Susan Leibold, MR, RN, CNS-P Course level: Intermediate Purpose: To discuss the latest information on risk assessment, use of risk assessment tools in the pediatric and adult population, prevention, pressure relief and treatment of skin breakdown and the non-surgical wound . Target audience: Health professionals that are providing care to individuals with developmental disabilities that experience skin breakdown/pressure ulcers . Course summary: Individuals with developmental disabilities are at risk for development of skin breakdown and pressure ulcers related to problems with immobility, incontinence, orthopedic deformities, wearing of orthoses, insensate skin, and nutritional issues . Most skin breakdown and wounds are a preventable condition . Chronic wounds impose societal limitations including inability to go to school or work and high cost for healing to occur . Disability limitations are encountered with decreased community integration and increased personal isolation as slow wound healing occurs . Functional limitations emerge as the chronicity of wound healing impacts nutrition, strength and emotional health . This course will offer the latest information addressing these limitations through an overview of risk assessment, use of risk assessment tools to develop prevention strategies, pressure relief and treatment strategies utilized in advanced wound care . Development of an individualized prevention protocol in the clinical setting will be presented incorporating nutritional issues, pressure relief, and equipment usage . Case presentations will include treatment options describing categories of advanced wound care products including negative pressure wound therapy, use of silver, collagen, debriding products and management of pain during dressing changes . iC14 – ParTiCiPaTion: HoW To measure iT in researCH and CliniCal PraCTiCe and Will inTervenTion CHange iT? location: Ballroom A Roslyn N. Boyd, PhD, PT, MSc; Leanne Sakzewski, BSc, OT; Celine M. Lepage, MSc, PT; Gillian A. King, PhD Course level: Intermediate Purpose: This course will present the recent research findings on two new measures of participation for children with cerebral palsy and discuss the implications for clinical practice . The clinimetric and psychometric properties of key measures of participation for children with cerebral palsy will be critiqued . The presenters will combine their research and clinical experience to guide clinicians and researchers in tool selection for measurement of participation outcomes . Target audience: All Health professionals involved in the research and clinical management of children with cerebral palsy (including Physical and Occupational Therapists, Psychologists, Physicians, nurses and Orthopaedic Surgeons),whom provide interventions aimed at reducing participation restrictions in children with cerebral palsy . Course summary: This workshop will present some recent new measures of participation for children with cerebral palsy – “The CAPE – Children’s Assessment of Participation and enjoyment” and the “LIFE-H for children” . The developers will present the process of measurement development and key research findings . A recent systematic review highlighting the clinical utility, psychometric properties of the most relevant participation measures for children with cerebral palsy in the primary

Program HigHligHTs, continued iC14 ConTinued... school years will be discussed . The team will highlight how participation varies from activity limitations and discuss the feasibility of current interventions being able to enhance participation . Studies will be presented in the context of the ICF model and suggestions for future directions of research and clinical practice will be highlighted . An interactive approach with clinical case studies and research data will be used to present recent data on participation . iC15 - diagnosTiC evaluaTion of THe CHild WiTH Cerebral Palsy location: Ballroom C Eric B Levey, MD; Alexander H Hoon Jr., MD, MPH; Steven N Breiter, MD Course level: Intermediate Purpose: To provide clinicians with an approach to the diagnosis and classification of children with cerebral palsy (CP) . Target audience: Neurodevelopmental disabilities professionals involved in the diagnostic evaluation of children with developmental motor disorders, including CP . Course summary: Despite advances in obstetrical/neonatal care, the overall prevalence of cerebral palsy has remained stable, supporting the belief that pathogenesis is due primarily to prenatal brain dysgenesis and injury . The evaluation of infants and young children with motor delay should begin with a careful history, including details of the prenatal, perinatal and postnatal course . Maternal perception of decreased fetal movement suggests prenatal onset . Family pedigree is important to identify those with potential genetic disorders . Review of systems should include questions about vision, hearing, seizures and developmental regression . The neurological examination should be comprehensive, including careful observation for adventitious movements, with classification into traditional categories including spastic diplegia, hemiplegia, quadriplegia, dyskinetic and ataxic/hypotonic phenotypes . MRI is often the initial diagnostic test of choice, the findings of which focus further investigation into genetic and acquired causes . iC16 - saliva overfloW, sialorrHea, drooling: baCk To basiCs location: Meeting Room 2 Janet H. Allaire, MA; Peter A. Blasco, MDP Course level: Basic to Intermediate Purpose: To inform health care professionals of background information surrounding the problem of saliva overflow or drooling . This course will re-acquaint course participants with the corpus of knowledge about drooling . Course faculty will discuss current interventions and emphasize outcome measurement . Target audience: This course is relevant to physicians, nurses, physical and occupational therapists, speech/language pathologists and educators . Intervention discussion will focus on evidence-based practice . Course summary: This course will present background information on the problem of drooling and allow participants to review what is currently known on the topic of sialorrhea . Anatomy and physiology will be reviewed and natural history will be discussed . Swallowing and its interface to drooling will be emphasized . The demographics and various diagnostic populations affected will be discussed although cerebral palsy will be the focus of discussions . Approaches to management will include surgical and pharmacological interventions . Dr . Blasco will highlight the most commonly used approaches and present evidence-based practice recommendations . Mrs . Allaire will present behavioral and therapeutic approaches to the problem and use case presentations to illustrate best practice . iC17 - THe role of THe THeraPisT in managing PaTienTs WiTH sPasTiCiTy location: Ballroom B Lynne A. Romeiser Logan PT, MA, PCS; Kristie Bjornson, PhD, PT, PCS; Susan Reeves PT Course level: Intermediate Purpose: The purpose of the course is to explore the role of the therapist in the clinical decision making process for patients with spasticity as part of an interdisciplinary team . Target audience: This course is designed for clinicians already familiar with pharmacological and surgical treatment options for spasticity management . The course will be relevant to physical, occupational and speech therapists as well as nurses and physicians involved in an interdisciplinary approach to spasticity management . Course summary: This course will explore the role of the therapist in the management of patients with spasticity for clinicians already familiar with the pharmacological and surgical treatment options . The course will begin with a review of relevant terms related to spasticity and the currently available pharmacological and surgical treatments . The role of the therapist will be discussed including examination of the patient, the decision making process, referral for medical intervention, communication with the other team members, and rehab strategies before and after any interventions . Specifics of the physical examination and evaluation of the findings will be demonstrated and discussed . Rehabilitation strategies, such as strengthening, motor learning approaches and seating, will be discussed . Case presentations and discussion will bring all the elements together to illustrate the role of the therapist in managing patients with spasticity . iC18 - seCreTs To suCCess in granT WriTing, PreParaTion and submission in reHabiliTaTion researCH. location: Meeting Room James A. Blackman, MD; Diane L. Damiano, PhD, PT; Peter L. Rosenbaum, MD; Richard D. Stevenson, MD Course level: Intermediate Purpose: To improve grant seeking capabilities and success in grant funding Target audience: Individuals at all levels of expertise who are conducting research and in need of funding for research . 33

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