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Cancer Research in Switzerland - Krebsliga Schweiz

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National <strong>Research</strong> Programme “End of Life” (NRP 67)<br />

The NRP 67 “End of life” aims to ga<strong>in</strong> new <strong>in</strong>sights <strong>in</strong>to the last phase of life. The knowledge<br />

useful to guid<strong>in</strong>g decisions and practices dur<strong>in</strong>g the last stage of life will be made<br />

available to decision-makers <strong>in</strong> the health care system, as well as to politicians and professionals<br />

<strong>in</strong>volved <strong>in</strong> the care of persons at the end of life. “Persons at the end of life”<br />

refers to persons – whether newborn <strong>in</strong>fants, children, young people, middle-aged, elderly<br />

or very elderly people – who <strong>in</strong> all likelihood will live no more than a few months.<br />

Perceptions and frameworks regard<strong>in</strong>g the end of life <strong>in</strong> a state of flux<br />

Perceptions and frameworks regard<strong>in</strong>g the end of life are currently <strong>in</strong> a state of flux. New<br />

<strong>in</strong>stitutions, such as palliative care services or suicide assistance organizations, dedicate<br />

themselves to the needs of persons reach<strong>in</strong>g the end of life. Demographic changes and<br />

new forms of family life challenge traditional models for support and provision of care<br />

to persons at the end of life. Liv<strong>in</strong>g wills, the practice of suicide assistance, diverse expectations<br />

towards medical care, and high health care costs, have become the subject of heated<br />

public debate.<br />

Most people <strong>in</strong> <strong>Switzerland</strong> currently die <strong>in</strong> old age. Medical decisions <strong>in</strong>fluence the dy<strong>in</strong>g<br />

process <strong>in</strong> many cases. The focus of these decisions is to ensure a “good dy<strong>in</strong>g”, and no<br />

(longer) to fight impend<strong>in</strong>g death. The discourse on “good” and “bad” dy<strong>in</strong>g has become<br />

<strong>in</strong>creas<strong>in</strong>gly pluralistic and <strong>in</strong>tense <strong>in</strong> recent years.<br />

Better understand<strong>in</strong>g of dy<strong>in</strong>g processes<br />

New research is needed to understand these developments better. This is the rationale<br />

for NRP 67, which <strong>in</strong>cludes four ma<strong>in</strong> research areas:<br />

– Dy<strong>in</strong>g processes and provision of care: The focus here is on the current state of care<br />

for persons at the end of life <strong>in</strong> <strong>Switzerland</strong>, on dy<strong>in</strong>g processes, and on attendant<br />

practices with a special focus on palliative care.<br />

– Decisions, motives and attitudes: This area centres on decisions made dur<strong>in</strong>g the dy<strong>in</strong>g<br />

process, and on the motives, convictions and attitudes underly<strong>in</strong>g them.<br />

– Regulations and proposals for action: The focus here is on normative rules such as legal<br />

regulation or ethics guidel<strong>in</strong>es, as well as questions regard<strong>in</strong>g distributive justice <strong>in</strong><br />

the health system.<br />

– Cultural concepts and social ideals: Death and dy<strong>in</strong>g have attracted a great deal of public<br />

<strong>in</strong>terest <strong>in</strong> recent years. This research area <strong>in</strong>cludes questions regard<strong>in</strong>g how death and<br />

dy<strong>in</strong>g are given mean<strong>in</strong>g, cultural representations of death and dy<strong>in</strong>g, and relevant social<br />

normalization processes.<br />

In February the Federal Council commissioned the Swiss National Science Foundation to<br />

carry out NRP 67 “End of life”. This research programme is endowed with a budget of<br />

CHF 15 million. The research projects will be selected after a two-stage procedure <strong>in</strong> 2011.<br />

The research projects will start <strong>in</strong> spr<strong>in</strong>g 2012 and will be completed <strong>in</strong> 2017.<br />

NRP 67 “End of life”<br />

Dr. Stephanie Schönholzer<br />

Swiss National Science Foundation<br />

Wildha<strong>in</strong>weg 3<br />

3001 Bern<br />

Phone +41 (0)31 308 22 22<br />

Fax +41 (0)31 305 29 70<br />

sschoenholzer@snf.ch<br />

www.nfp67.ch<br />

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