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and may importantly bias the conclusions of a study, the importance of sending follow- up reminders to improve response rates has been demonstrated (Kaplowitz et al., 2004). In conclusion, factors such as follow up, the age of the respondent and the effective use of incentives are all associated with higher response rates. It appears there are many benefits to using internet surveys within certain age populations, specifically adolescents, as they are quick to administer, inexpensive and flexible compared to mail and telephone surveys. However, issues such as internet accessibility and privacy concerns need to be taken into account. 2.7 Summary In the context of New Zealand childhood cancer survivorship, there has been no research into the psychosocial impact on these young people, so the implementation of a long term follow up programme is based on anticipated needs identified in overseas studies. The review of the literature confirms that late effects of childhood cancer therapy can include disruption to normal growth and development especially during adolescence. Adverse effects on quality of life, risk taking behaviours, post-traumatic stress and social interactions of survivors are all identified by various authors. However, there is no clear consensus on the impact of these psychosocial issues for child cancer survivors (Zebrack & Chesler, 2001; Zebrack & Chesler, 2002; Zeltzer et al., 2009). It is clear from the review of existing literature that there are a significant number of validated, peer reviewed studies providing valuable insight into not only the medical consequences of treatment to effect a cure, but also the psychosocial impact on the rapidly growing numbers of survivors world wide. While much of the findings of these studies extrapolate across to the New Zealand childhood cancer survivor experience, the opportunity to repeat the Youth’07 survey and compare findings with a cohort of peers provides a unique opportunity to capture information on the psychosocial wellbeing of young people who have survived childhood cancer in 16
Aotearoa/New Zealand. The following chapter introduces the research questions and the study design and methods employed. 17
Page 1 and 2: The Self Reported Psychosocial Well
Page 3 and 4: 3.14 Confidentiality and right to p
Page 5 and 6: ATTESTATION OF AUTHORSHIP “I here
Page 7 and 8: ABSTRACT There has been increased r
Page 9 and 10: CHAPTER 1 INTRODUCTION AND OVERVIEW
Page 11 and 12: psychosocial effects intersect with
Page 13 and 14: innovative multimedia (pictures, mu
Page 15 and 16: in Twombly, 2004). The NCCS was est
Page 17 and 18: 2.1 Introduction CHAPTER 2 LITERATU
Page 19 and 20: demonstrate a higher likelihood of
Page 21 and 22: data from the Childhood Cancer Surv
Page 23: 2.6.1 Internet surveys and studies
Page 27 and 28: could also be reported as a nested
Page 29 and 30: Table 1. Childhood cancer survivor
Page 31 and 32: answered by touch screen action wit
Page 33 and 34: The final survey questionnaire was
Page 35 and 36: 3.9 Standardized measures of psycho
Page 37 and 38: emotional, conduct problems, hypera
Page 39 and 40: programme without destabilizing exi
Page 41 and 42: approved in Crown Health Agencies
Page 43 and 44: questionnaire that was upsetting in
Page 45 and 46: 4.1 Introduction CHAPTER 4 RESULTS
Page 47 and 48: Table 2. Socio-demographic and canc
Page 49 and 50: N 40 30 20 10 0 0 5 10 15 20 25 Sco
Page 51 and 52: 30 N 20 10 0 0 5 10 15 20 25 Score
Page 53 and 54: Table 4. WHO-5 score by demographic
Page 55 and 56: RT N Y Mod-severe Depression 9 1 7.
Page 57 and 58: Cancer characteristics Diagnosis CN
Page 59 and 60: Table 9. Hyperactivity by demograph
Page 61 and 62: Table 11. Prosocial Scale by demogr
Page 63 and 64: In summary, older age was associate
Page 65 and 66: 4.4.2 Comparison of depression in C
Page 67 and 68: Table 17. Comparison of SDQ prosoci
Page 69 and 70: Wells, & Scott., 2006), that report
Page 71 and 72: similar between both the study and
Page 73 and 74: 18years, when the protective factor
Page 75 and 76:
parts of New Zealand have either li
Page 77 and 78:
Key implications for practice inclu
Page 79 and 80:
therapy do not plateau but increase
Page 81 and 82:
Children's Oncology Group. (2006).
Page 83 and 84:
Lusk, C., Delclos, G. L., Burau, K.
Page 85 and 86:
Rosoff, P. M., Werner, C., Clipp, E
Page 87 and 88:
APPENDICES 79
Page 91 and 92:
Appendix B: Survey Participant Info
Page 93 and 94:
Information Sheet A study of the qu
Page 95:
How will I find out about the resul
Page 98 and 99:
Consent Form ACSIS: A Paediatric Ha
Page 100 and 101:
Over the last six months... I have
Page 102:
d) MASC-10 We would like to ask you
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