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Appendix B: Survey Participant Information and covering letters 27 August 2009 Parent of … Dear Parent … Service: Paediatric Haematology / Oncology Long Term Follow Up Clinic Tel No: 0800 022 747 A study of the quality of life and wellbeing of survivors of childhood cancer in New Zealand You have been sent this letter and attached information sheet because your child is younger than 16yrs of age and we would like to invite them to take part in a research study. This study looks at what life after cancer is like for young people aged 12 to 18 years of age who have survived a childhood cancer or an illness that was not called a cancer but needed the same treatment. Please read the attached information sheet and if you are happy for your child to take part please pass this onto them. To accurately reflect your child’s own view it is important that they are the one to complete the questionnaire and are able to complete it on their own and in private. If you have any questions at all please contact me or any of the research team - our contact details are on the information sheet. Yours sincerely, Kathy Yallop Principal Investigator 83
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The Self Reported Psychosocial Well
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3.14 Confidentiality and right to p
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ATTESTATION OF AUTHORSHIP “I here
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ABSTRACT There has been increased r
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CHAPTER 1 INTRODUCTION AND OVERVIEW
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psychosocial effects intersect with
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innovative multimedia (pictures, mu
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in Twombly, 2004). The NCCS was est
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2.1 Introduction CHAPTER 2 LITERATU
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demonstrate a higher likelihood of
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data from the Childhood Cancer Surv
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2.6.1 Internet surveys and studies
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Aotearoa/New Zealand. The following
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could also be reported as a nested
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Table 1. Childhood cancer survivor
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answered by touch screen action wit
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The final survey questionnaire was
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3.9 Standardized measures of psycho
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emotional, conduct problems, hypera
Page 39 and 40: programme without destabilizing exi
Page 41 and 42: approved in Crown Health Agencies
Page 43 and 44: questionnaire that was upsetting in
Page 45 and 46: 4.1 Introduction CHAPTER 4 RESULTS
Page 47 and 48: Table 2. Socio-demographic and canc
Page 49 and 50: N 40 30 20 10 0 0 5 10 15 20 25 Sco
Page 51 and 52: 30 N 20 10 0 0 5 10 15 20 25 Score
Page 53 and 54: Table 4. WHO-5 score by demographic
Page 55 and 56: RT N Y Mod-severe Depression 9 1 7.
Page 57 and 58: Cancer characteristics Diagnosis CN
Page 59 and 60: Table 9. Hyperactivity by demograph
Page 61 and 62: Table 11. Prosocial Scale by demogr
Page 63 and 64: In summary, older age was associate
Page 65 and 66: 4.4.2 Comparison of depression in C
Page 67 and 68: Table 17. Comparison of SDQ prosoci
Page 69 and 70: Wells, & Scott., 2006), that report
Page 71 and 72: similar between both the study and
Page 73 and 74: 18years, when the protective factor
Page 75 and 76: parts of New Zealand have either li
Page 77 and 78: Key implications for practice inclu
Page 79 and 80: therapy do not plateau but increase
Page 81 and 82: Children's Oncology Group. (2006).
Page 83 and 84: Lusk, C., Delclos, G. L., Burau, K.
Page 85 and 86: Rosoff, P. M., Werner, C., Clipp, E
Page 87 and 88: APPENDICES 79
Page 92 and 93: 27 August 2009 Dear ……. Service
Page 94 and 95: The questionnaire has some question
Page 97 and 98: Appendix C: M-CASI questionnaire- I
Page 99 and 100: Text version of the M-CASI question
Page 101 and 102: home life friendships classroom lea
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