View/Open - Scholarly Commons Home

More documents

Recommendations

Info

The questionnaire was also translated into Māori with the student able to move between Māori and English. 3.8 Modification of the questionnaire In using this survey tool to describe the psychosocial wellbeing of childhood cancer survivors, the Youth’07 questionnaire was reviewed and those questions that were not pertinent to the research question were excluded. The decisions on the exclusions were informed by the findings from the literature review and the clinical expertise of the research team. In addition to answering the research question the aim was also to reduce the questionnaire to a manageable time to complete, as it was acknowledged that the participants would be completing it in their own home and their own time, not in a controlled school environment as was the setting for the Youth’07 survey. An additional consideration to the inclusion/ exclusion of questions were those questions of a sensitive nature that could pose an unacceptable risk to participants in an uncontrolled setting, this is addressed in further detail in the section on ethical considerations. A focus group consisting of young adult child cancer survivors who were just outside the study age range (e.g.19 years of age or older) was formed to look at the design and delivery of the questionnaire including duration, recruitment methods, incentives and privacy concerns (Mayne, 2008). A completion time of, on average no more than half an hour was decided on based on feedback from the focus group, any longer was thought be a deterrent to completion rates. While it was important that the final questionnaire was kept to a reasonable length, several additional questions were included. These focused on the participants’ knowledge of their cancer diagnosis, treatment modalities and time since diagnosis. This was to enable comparisons between the different disease groups, length of time from treatment, and where possible the intensity of treatment. 24
The final survey questionnaire was composed of sets of standardized closed- ended questions with response categories using a mix of forced choice, multi-choice and checklist responses and included a possible 250 questions if all branching questions were answered. The section of the survey questionnaire that contained the four standardized instruments that inform this thesis is included as a text document with summary headings for the reader’s reference that weren’t included in the online version (please see Appendix C on page 90). Once the questionnaire was completed and the audio files for the new questions added, the survey was tested with several young child cancer survivors who were not eligible to take part because they were outside the age range or still on treatment. They were asked to comment on clarity of the information sheet and instructions, problems encountered (i.e. access, freezing or crashing of the site, ease of use, length of time to complete) and how they felt after completing it. Feedback was positive and no changes were suggested by the group and no modifications were made. The framework for the study is detailed in figure 1. 25
Page 1 and 2: The Self Reported Psychosocial Well
Page 3 and 4: 3.14 Confidentiality and right to p
Page 5 and 6: ATTESTATION OF AUTHORSHIP “I here
Page 7 and 8: ABSTRACT There has been increased r
Page 9 and 10: CHAPTER 1 INTRODUCTION AND OVERVIEW
Page 11 and 12: psychosocial effects intersect with
Page 13 and 14: innovative multimedia (pictures, mu
Page 15 and 16: in Twombly, 2004). The NCCS was est
Page 17 and 18: 2.1 Introduction CHAPTER 2 LITERATU
Page 19 and 20: demonstrate a higher likelihood of
Page 21 and 22: data from the Childhood Cancer Surv
Page 23 and 24: 2.6.1 Internet surveys and studies
Page 25 and 26: Aotearoa/New Zealand. The following
Page 27 and 28: could also be reported as a nested
Page 29 and 30: Table 1. Childhood cancer survivor
Page 31: answered by touch screen action wit
Page 35 and 36: 3.9 Standardized measures of psycho
Page 37 and 38: emotional, conduct problems, hypera
Page 39 and 40: programme without destabilizing exi
Page 41 and 42: approved in Crown Health Agencies
Page 43 and 44: questionnaire that was upsetting in
Page 45 and 46: 4.1 Introduction CHAPTER 4 RESULTS
Page 47 and 48: Table 2. Socio-demographic and canc
Page 49 and 50: N 40 30 20 10 0 0 5 10 15 20 25 Sco
Page 51 and 52: 30 N 20 10 0 0 5 10 15 20 25 Score
Page 53 and 54: Table 4. WHO-5 score by demographic
Page 55 and 56: RT N Y Mod-severe Depression 9 1 7.
Page 57 and 58: Cancer characteristics Diagnosis CN
Page 59 and 60: Table 9. Hyperactivity by demograph
Page 61 and 62: Table 11. Prosocial Scale by demogr
Page 63 and 64: In summary, older age was associate
Page 65 and 66: 4.4.2 Comparison of depression in C
Page 67 and 68: Table 17. Comparison of SDQ prosoci
Page 69 and 70: Wells, & Scott., 2006), that report
Page 71 and 72: similar between both the study and
Page 73 and 74: 18years, when the protective factor
Page 75 and 76: parts of New Zealand have either li
Page 77 and 78: Key implications for practice inclu
Page 79 and 80: therapy do not plateau but increase
Page 81 and 82: Children's Oncology Group. (2006).
Page 83 and 84:
Lusk, C., Delclos, G. L., Burau, K.
Page 85 and 86:
Rosoff, P. M., Werner, C., Clipp, E
Page 87 and 88:
APPENDICES 79
Page 91 and 92:
Appendix B: Survey Participant Info
Page 93 and 94:
Information Sheet A study of the qu
Page 95:
How will I find out about the resul
Page 98 and 99:
Consent Form ACSIS: A Paediatric Ha
Page 100 and 101:
Over the last six months... I have
Page 102:
d) MASC-10 We would like to ask you
show all

View/Open - Scholarly Commons Home

You also want an ePaper? Increase the reach of your titles

Delete template?

Save as template?