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Table 1. Childhood cancer survivor characteristics -data sourced from the NZCCR and
hospital demographic database.
Variable Comments
Name Deleted after recruitment
Ethnicity Primary ethnicity only
Gender
Date of Birth
NHI Deleted after recruitment
Age at time of survey Calculated from DOB for participation criteria
Residential address Deleted after recruitment
Domicile Code Measure of socioeconomic status –mapped to New
Zealand Deprivation (NZ Dep) score1-10
Diagnosis 12 diagnostic groups/ sub groups drawn from the ICCD-3
Date of Diagnosis Calculated time from completion of treatment
Date treatment
complete
Treatment modality Surgery
Chemotherapy
Radiotherapy ( site)
Haemopoetic Stem Cell Transplant
(check all that apply)
The data file was reviewed and updated using the inclusion criteria detailed
previously and checked against the National Hospital Index (NHI) to confirm live
status. Once finalized, a unique login code was generated for each entry on the database.
To ensure anonymity, identifiers were removed from the database once the survey was
completed and prior to data retrieval and analysis, these identifiers were: name, address
and NHI. Three hundred and ninety nine eligible childhood cancer survivors who met
all the criteria were identified and all were invited to participate. Given the relatively
small number of adolescent survivors in New Zealand and the individual variables of
disease type, treatment therapies, and late effects, a whole population approach was
utilized.
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