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Consent Form ACSIS: A Paediatric Haematology/Oncology study of the quality of life and wellbeing of childhood cancer survivors on New Zealand. I have read and understood the participant information sheet that was sent to me. I know I can ring the contact people listed on the participant information sheet at any time I want more information. I understand that taking part in the survey is entirely my choice. I understand that the questionnaire is confidential and anonymous. I understand that I will not be able to be identified from any reports arising from this research. I Accept I Don’t Accept This study has been approved by the Upper South B Regional Ethics Committee. Reference number: URB/09/05/017 90
Text version of the M-CASI questionnaire- Section: Emotional health Info: Emotional health We would now like to ask some questions about how you have been feeling. a) Who-5 Wellbeing Index Over the last two weeks... I have felt cheerful and in good spirits I have felt calm and relaxed I have felt active and vigorous I woke up feeling fresh and rested my daily life has been filled with things that interest me all of the time most of the time b) Strengths and Difficulties more than half of the time less than half of the time some of the time at no time For each of the following statements please mark the box for Not True, Somewhat True or Certainly True. It would help us if you answered all the questions as best you can even if you are not absolutely certain. Please give your answers on the basis of how things have been for you over the last six months Over the last six months... I try to be nice to people, I care about their feelings I am restless, I cannot stay still for long I get a lot of headaches, stomach-aches or sickness I usually share with others, for example CDs, games, food I get very angry and often lose my temper Over the last six months... I would rather be alone than with people of my age I usually do as I am told I worry a lot I am helpful if someone is hurt, upset or feeling ill I am constantly fidgeting or squirming not true not true somewhat true somewhat true certainly true certainly true 91
Page 1 and 2:
The Self Reported Psychosocial Well
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3.14 Confidentiality and right to p
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ATTESTATION OF AUTHORSHIP “I here
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ABSTRACT There has been increased r
Page 9 and 10:
CHAPTER 1 INTRODUCTION AND OVERVIEW
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psychosocial effects intersect with
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innovative multimedia (pictures, mu
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in Twombly, 2004). The NCCS was est
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2.1 Introduction CHAPTER 2 LITERATU
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demonstrate a higher likelihood of
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data from the Childhood Cancer Surv
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2.6.1 Internet surveys and studies
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Aotearoa/New Zealand. The following
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could also be reported as a nested
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Table 1. Childhood cancer survivor
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answered by touch screen action wit
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The final survey questionnaire was
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3.9 Standardized measures of psycho
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emotional, conduct problems, hypera
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programme without destabilizing exi
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approved in Crown Health Agencies
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questionnaire that was upsetting in
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4.1 Introduction CHAPTER 4 RESULTS
Page 47 and 48: Table 2. Socio-demographic and canc
Page 49 and 50: N 40 30 20 10 0 0 5 10 15 20 25 Sco
Page 51 and 52: 30 N 20 10 0 0 5 10 15 20 25 Score
Page 53 and 54: Table 4. WHO-5 score by demographic
Page 55 and 56: RT N Y Mod-severe Depression 9 1 7.
Page 57 and 58: Cancer characteristics Diagnosis CN
Page 59 and 60: Table 9. Hyperactivity by demograph
Page 61 and 62: Table 11. Prosocial Scale by demogr
Page 63 and 64: In summary, older age was associate
Page 65 and 66: 4.4.2 Comparison of depression in C
Page 67 and 68: Table 17. Comparison of SDQ prosoci
Page 69 and 70: Wells, & Scott., 2006), that report
Page 71 and 72: similar between both the study and
Page 73 and 74: 18years, when the protective factor
Page 75 and 76: parts of New Zealand have either li
Page 77 and 78: Key implications for practice inclu
Page 79 and 80: therapy do not plateau but increase
Page 81 and 82: Children's Oncology Group. (2006).
Page 83 and 84: Lusk, C., Delclos, G. L., Burau, K.
Page 85 and 86: Rosoff, P. M., Werner, C., Clipp, E
Page 87 and 88: APPENDICES 79
Page 91 and 92: Appendix B: Survey Participant Info
Page 93 and 94: Information Sheet A study of the qu
Page 95: How will I find out about the resul
Page 100 and 101: Over the last six months... I have
Page 102: d) MASC-10 We would like to ask you
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