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Sappi Ideas that Matter - Book 7

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North America<br />

Who Asked Me?<br />

Fraser<br />

“As a mother of a child with a disability, I witnessed the<br />

range of emotions my other two children experienced<br />

growing up with a sibling with special needs – including<br />

feelings of isolation, guilt, resentment, perceived<br />

pressure to achieve, and concern for the future. Since<br />

about seven million children in the US have a brother or<br />

sister with a special need, I wanted to create a resource<br />

<strong>that</strong> lets these children explore the sometimes hard-todiscuss<br />

feelings they might have about their sibling, as<br />

well as share the unique bonds <strong>that</strong> develop between<br />

them and their sibling.”<br />

This is how Adele L Bergstrom, designer and editor at<br />

A Light Communications in Minneapolis, describes her<br />

motivation for producing a book ‘by and for’ siblings<br />

of children with special needs.<br />

The book itself takes the form of a journal ‘by and for’<br />

siblings of special needs children. The result is a book<br />

of striking honesty and candour, covering such topics<br />

as this is my life, what our siblings have taught us,<br />

sharing good times ... and hard times, and twenty years<br />

from now. The vibrant colour scheme, combined with<br />

splashy layouts <strong>that</strong> include family photos along with<br />

handwriting fonts, all contribute to a contemporary,<br />

youth-oriented piece.<br />

During spring 2007 alone, the book was presented<br />

at six conferences on special needs, followed by a<br />

book signing event with the authors in the summer<br />

and a significant promotional schedule including press<br />

releases, news articles, and disability newsletters set<br />

to continue for several years.<br />

92<br />

Adele chose to work with Fraser because of the<br />

agency’s focus on serving the total family – not just the<br />

individual child enrolled in their programme. Fraser also<br />

had the national credibility and distribution outlet<br />

(www.fraser.org) needed to get her book into as many<br />

hands as possible.<br />

Initial feedback has been positive and, with 2,000<br />

comment cards due to return from 2,000 copies in the<br />

first year, the enthusiastic reception of Adele’s book is<br />

sure to continue.

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