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How to investigate levels of Adherence to antiretroviral ... - INRUD

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Appendix 6<br />

Complementary indica<strong>to</strong>rs <strong>of</strong> determinants <strong>of</strong> adherence<br />

Rationale<br />

Source <strong>of</strong> data<br />

Data collection<br />

Computation<br />

Comments<br />

The number <strong>of</strong> days <strong>of</strong> ARVs dispensed dictates how <strong>of</strong>ten the patient has <strong>to</strong><br />

return <strong>to</strong> the clinic. The more frequent, the more time is sacrificed <strong>to</strong><br />

treatment, but also the more contact the patient has with the clinic. Both <strong>of</strong><br />

these fac<strong>to</strong>rs may affect adherence.<br />

Facility Interview and Retrospective data form.<br />

While doing the facility interview ask whether the clinic has a normal pro<strong>to</strong>col<br />

for the numbers <strong>of</strong> days <strong>of</strong> ARVs dispensed <strong>to</strong> new and <strong>to</strong> experienced<br />

patients. Also observe the most frequent numbers when filling in the<br />

retrospective data form.<br />

New Patients—The stated average number <strong>of</strong> days <strong>of</strong> ARVs dispensed <strong>to</strong> new<br />

patients.<br />

Experienced Patients—The stated average number <strong>of</strong> days <strong>of</strong> ARVs dispensed<br />

<strong>to</strong> experienced patients.<br />

This information can be checked while filling in the retrospective dispensing<br />

data form. If there is a disagreement in the results, what is found on the<br />

dispensing data form will be more accurate.<br />

Facility services and contact with the community<br />

13. The percentage <strong>of</strong> facilities that provide food for patients.<br />

14. The percentage <strong>of</strong> facilities that have a formal system for linking patients with<br />

other persons living with HIV as support partners.<br />

15. The percentage <strong>of</strong> facilities that have connection with the local community, such as<br />

churches or other organizations.<br />

Rationale<br />

Source <strong>of</strong> data<br />

Data collection<br />

Computation<br />

Comments<br />

When poor patients start ART, their appetite improves and they start <strong>to</strong> put on<br />

weight. The increased appetite represents increased cost. This can be<br />

facilitated by the programme providing food <strong>to</strong> the patients during their first<br />

months <strong>of</strong> treatment. With chronic diseases by far the majority <strong>of</strong> the patient’s<br />

time is spent in the community rather than in the facility. Therefore community<br />

support and community linkages are key <strong>to</strong> helping the patient adhere.<br />

Facility interview.<br />

While doing the facility interview ask whether the clinic has a policy for giving<br />

food <strong>to</strong> patients; whether they have a formal system for linking patients with<br />

other persons living with HIV as support partners; and whether they have<br />

connection with the local community, such as churches or other organizations.<br />

Food—Does the facility provide food <strong>to</strong> patients?<br />

Linking patients with other persons living with HIV as support partners—Does<br />

the facility have a formal linking system?<br />

Linkage with the community—Does the facility have active links?<br />

This information can be checked for completeness by asking patients in the<br />

exit interviews.<br />

3. Complementary demographic indica<strong>to</strong>rs<br />

1. Tuberculosis status—Percentage <strong>of</strong> patients with TB comorbidity.<br />

2. WHO disease stage at initiation <strong>of</strong> ARVs: Percentage <strong>of</strong> patients diagnosed as stage I,<br />

II, III and IV at initiation.<br />

147

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