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in Albania - Instituti i Shendetit Publik

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ALBANIAN MEDICAL JOURNAL SUPPLEMENTHaemoglob<strong>in</strong>opathies <strong>in</strong> <strong>Albania</strong>: A public healthchallengeManika Kreka 1,2 , Gentiana Qirjako 3 , Eleni Nastas 2 , Anila Godo 2 ,Bledi Kreka 41Faculty of Technical Medical Sciences, University of Medic<strong>in</strong>e, Tirana, <strong>Albania</strong>;2Service of Onco-Haematology Service, National Center of Haemoglob<strong>in</strong>opathies, University Hospital CenterMother Teresa , Tirana, <strong>Albania</strong>;3Faculty of Public Health, University of Medic<strong>in</strong>e, Tirana, <strong>Albania</strong>;4Oncology Service, University Hospital Center Mother Teresa , Tirana, <strong>Albania</strong>.Haemoglob<strong>in</strong>oapathies are part of a considerablegroup of chronic genetic diseases, which are always<strong>in</strong> focus of public health and are at a greaterimportance. About 7% of the world s populationis considered to be carrier of abnormal andpathological gene of hemoglob<strong>in</strong>.Our aim was to describe the register of haemoglob<strong>in</strong>opathicpatients data <strong>in</strong> the National Centerof Haemoglob<strong>in</strong>opathies <strong>in</strong> <strong>Albania</strong>.The mean age of <strong>in</strong>dividuals with haemoglob<strong>in</strong>opathiespatients studied was 17.3 years forfemales and 16.4 years for males. The mean age ofour patients is younger than <strong>in</strong> other countries. 65patients belong to the youngest age-group (1-10years old). About 97% of our patients were bornand live <strong>in</strong> the west area of <strong>Albania</strong> and only 3%live <strong>in</strong> North <strong>Albania</strong> (Fier: 68 patients; Tirana: 55patients; Kavaja: 40 patients; Vlora: 36 patients;Durrës: 23 patients; <strong>in</strong> cities of North <strong>Albania</strong>: 15patients).Patients diagnosed with Beta Thalassaeamia andIntermedia constitute 84.5% of the total, andpatients with Sickle Cell Disease constitute 15.5%.Patients over 18 years of age have a higher frequencyof thalassaemia compared to the Sickle Cell Disease.Haemoglob<strong>in</strong>oapathies are a great public healthproblem <strong>in</strong> <strong>Albania</strong>. Prevention policies related tobirth control of <strong>in</strong>dividuals with Haemoglob<strong>in</strong>opathiesis a serious challenge.Keywords: Haemoglob<strong>in</strong>oapathies, Sickle Cell Disease, thalasemia.22 ALBANIAN MEDICAL JOURNAL SUPPLEMENT

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