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Vietnam<br />

“States Parties recognise that a mentally or physically<br />

disabled child should enjoy a full <strong>and</strong> decent life, in<br />

conditions which ensure dignity, promote self-reliance<br />

<strong>and</strong> facilitate <strong>the</strong> child’s active participation in <strong>the</strong><br />

community.”<br />

– Article 23.1, Convention on <strong>the</strong> Rights of <strong>the</strong> Child, 1989<br />

“<strong>Children</strong> have traditionally been seen as objects of<br />

charity ra<strong>the</strong>r than subjects of rights. Politicians,<br />

professionals <strong>and</strong> of course parents, have cared for<br />

<strong>the</strong>ir well-being, but primarily in <strong>the</strong> spirit of protecting<br />

<strong>the</strong> vulnerable. It was not widely recognised that<br />

children are also capable, that <strong>the</strong>y have opinions, that<br />

<strong>the</strong>y deserve respect as all o<strong>the</strong>r human beings <strong>and</strong><br />

that <strong>the</strong>y ought to have ‘rights’ .”<br />

– Thomas Hammarberg, Vice-chair, UN Committee on <strong>the</strong> Rights of <strong>the</strong><br />

Child; Ambassador <strong>and</strong> special adviser to <strong>the</strong> Swedish Government on<br />

humanitarian issues, 1996<br />

Useful approaches to<br />

building disabled children’s<br />

participation<br />

The lives of children who have disabilities are<br />

constrained on many levels, <strong>and</strong> clearly, <strong>the</strong><br />

barriers to <strong>the</strong>ir participation in community life<br />

stem not only from <strong>the</strong>ir actual disabilities but<br />

also from o<strong>the</strong>rs’ attitudes to or underst<strong>and</strong>ing<br />

of <strong>the</strong>m. For this reason, programs need to<br />

work with those o<strong>the</strong>rs to ensure <strong>the</strong> inclusion<br />

of people with disability as a priority in social<br />

planning. Approaches found useful include:<br />

1. Provide various training activities to<br />

parents, volunteer CBR workers <strong>and</strong> local<br />

government officers. Approaches need to<br />

vary in style <strong>and</strong> content, <strong>and</strong> include<br />

h<strong>and</strong>s-on study tours. This increases<br />

knowledge <strong>and</strong> awareness, which can<br />

motivate <strong>the</strong>m to be more active in<br />

assisting children with disabilities.<br />

2. Use local (not foreign) trainers where<br />

possible – not only because of <strong>the</strong>ir<br />

underst<strong>and</strong>ing of culture <strong>and</strong> context, but<br />

because <strong>the</strong>ir experience <strong>and</strong> capacity<br />

needs to be recognised <strong>and</strong> to ensure that<br />

learning is applied <strong>and</strong> retained locally.<br />

3. Support <strong>the</strong> involvement of parents.<br />

Parents are often physically <strong>and</strong> mentally<br />

tired from constantly taking care of <strong>the</strong>ir<br />

children, <strong>and</strong> often give up hope that <strong>the</strong>ir<br />

children will improve.<br />

4. Involve volunteers – encourage <strong>the</strong>m to<br />

take leadership roles in <strong>the</strong> community.<br />

We should not just focus on families, as<br />

<strong>the</strong>re is a need to broaden ownership of<br />

issues <strong>and</strong> support available to both <strong>the</strong><br />

family <strong>and</strong> <strong>the</strong> child. The impact for <strong>the</strong><br />

child may be limited if program impacts<br />

stay within <strong>the</strong> family.<br />

5. Local authorities need to gain a good<br />

underst<strong>and</strong>ing of disability, as <strong>the</strong>ir<br />

cooperation on community initiatives is<br />

essential for any work to be done in<br />

Vietnam. Such support enables service<br />

development to take place that is in keeping<br />

with <strong>the</strong> Government’s policy commitments<br />

to children in difficult circumstances.<br />

Grassroots activities (in this case, for <strong>the</strong><br />

rights of children with disabilities) also have<br />

a much better chance when local, city <strong>and</strong><br />

national-level persons are supportive.<br />

6. With limited staff, agencies cannot be<br />

involved with each child. World Vision<br />

Vietnam highlighted what was possible by<br />

working with a few children who had<br />

potential to improve, <strong>the</strong>n sharing <strong>the</strong>se<br />

example/model cases with potential or<br />

actual CBR service providers. In this way,<br />

people can see <strong>the</strong> difference before <strong>and</strong><br />

after <strong>the</strong> intervention, <strong>and</strong> consider some<br />

practical ways of assisting children with<br />

disabilities. This also helps <strong>the</strong>m to see,<br />

not only in <strong>the</strong>ory but in practice, that<br />

conditions for such children can improve<br />

by an effort within <strong>the</strong> community.<br />

Cases – such as that of Huynh Tan Nghia<br />

in <strong>the</strong> text box – are written up <strong>and</strong><br />

(with permission from children <strong>and</strong> <strong>the</strong><br />

family) used as examples. Their stories<br />

<strong>and</strong> photographs are shared in target<br />

communities.<br />

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