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Meeting-The-Challenge-Making-a-Difference-Practitioner-Guide

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PRACTICAL GUIDANCE<br />

It is extremely common for people with personality difficulties to<br />

struggle with problems of identity; many people find it impossible<br />

to hold onto a sense of who they are. As people progress through<br />

treatment this can become more pronounced; as past coping<br />

strategies are left behind, people often ask ‘what’s left?’‘Who am<br />

I if I’m no longer ‘a self harmer’ or ‘an alcoholic’ or ‘the crazy one?’<br />

Involvement activities can provide a space for people to begin to<br />

explore new roles and ways of relating to people. This uncertainty<br />

about identity is a core feature of the experience of personality<br />

disorder, so there is immense therapeutic potential in providing<br />

spaces where this can be experimented with.<br />

One of the most misunderstood aspects of personality disorder is<br />

that individuals who attract the diagnosis may be bright, articulate<br />

and have extremely high functioning sides alongside the poorer<br />

functioning and the complex emotional difficulties associated<br />

with their diagnosis. <strong>The</strong>se ‘opposites’ can pose a number of<br />

challenges for service users and practitioners alike. Sometimes<br />

there is surprise or shock at just how well someone can contribute:<br />

“I was invited to sit on a clinical improvement group for<br />

my community mental health team, chaired by the<br />

senior medical consultant of the team. At the end of<br />

my first meeting, the consultant turned his head to me<br />

and said ‘I’m surprised, you made a very valuable<br />

contribution to the meeting’, what did he expect a<br />

service user to do, sit and dribble in a corner? That<br />

comment made me realise that the expectations of<br />

service users were low and involvement was a tick box<br />

exercise… they genuinely didn't expect a service user<br />

could make a valuable contribution. I then went on to<br />

think, if this was the view of the head consultant, what<br />

sort of example was he setting for the rest of the<br />

team? And no wonder the service was poor. I felt his<br />

back-handed compliment was humiliating and<br />

disrespectful and subsequently lost all hope in the<br />

service to help or understand me or others like me.”<br />

Although the growth of<br />

authentic and meaningful<br />

service user involvement in the<br />

field of personality disorder has<br />

been problematic, there is<br />

nonetheless room for immense<br />

optimism when both the concepts<br />

of personality disorder and<br />

involvement are understood<br />

and worked with appropriately<br />

as Haigh et al (2007) describe:<br />

“Many users of services may have<br />

a complex history of abuse,<br />

neglect or rejection and the<br />

opportunity to embark upon<br />

activities that shape and direct<br />

the services they receive<br />

promotes inclusion and<br />

therapeutic growth in itself.<br />

Many service users exceed<br />

expectations, not only in terms<br />

of their individual recovery, but<br />

in their subsequent<br />

contributions to services and<br />

their ability to sustain work and<br />

meaningful activity in the<br />

future. <strong>The</strong> social implications<br />

are phenomenal and cover<br />

numerous areas: pathways back<br />

to work or education become<br />

realistic; appropriate use of<br />

other NHS services provides<br />

substantial financial saving;<br />

problems with housing and<br />

social services can be resolved;<br />

offending behaviour reduced or<br />

stopped; and most importantly<br />

the quality of life for the user<br />

improves dramatically, with newfound<br />

social inclusion and a life<br />

felt to be worth living.”<br />

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