Women with Disabilities: Barriers and Facilitators to Accessing ...

More documents

Recommendations

Info

WOMEN WITH DISABILITIES: BARRIERS AND FACILITATORS TO ACCESSING SERVICES DURING PREGNANCY, CHILDBIRTH AND EARLY MOTHERHOODSchool of Nursing and Midwifery, Trinity College DublinThomas(1997)Veltman(2001)WestbrookandU.K.CanadaAustraliasensory impairmentencounter whenthinking about havinga baby, duringpregnancy, whenthey accessmaternity and relatedservices and becomemothers.To explore keydimensions of thereproductiveexperiences ofwomen with adisability and/orsensory impairmentwho are or who arethinking aboutbecoming mothers.To examine extent,access to andsatisfaction withprimary health careservices for peoplewith physicaldisabilities living inthe Toronto region.To compare childbearingand earlyinterviews.Qualitative.Semistructuredinterviews.Quantitative.Questionnaire.Qualitative.Structuredsensoryimpairment.17 women witha physicaland/or sensoryimpairment.1026 peoplewith disabilities.201 completedquestionnaireswere returned.Response rate= 20%.70 women – 25women with aaccessible facilities and resources. Deficits inhealth information were common and anyinformation given was often contradictory.Practice and policies were inflexible and notwomen centred. Help was often inappropriateand women felt a burden. Fear of losingcustody common and women were afraid toask for help fearing this may be considered astheir inability to cope and care for their baby.Three themes: The first refers to medical riskdiscourse which women accepted. Geneticcounselling was viewed as the norm andtermination of pregnancy either an option orrecommendation. Women’s self belief that theycould fulfil mothering responsibilities wasimpaired. Second theme: mothering - womenfeared they were being judged and that theywould lose custody. Felt vulnerable andinsecure. Third theme: inappropriate help thathealth professionals offered to the detriment ofwomen’s self-esteem and confidence.Findings indicate that people with a disabilityhave difficulty locating a physician and wererefused treatment because of their disability.People experience difficulty in gaining physicalaccess to the built environment and themajority of people felt that the care theyreceived was inappropriate.Experienced barriers in prenatal educationclasses and within the maternity care setting.169
WOMEN WITH DISABILITIES: BARRIERS AND FACILITATORS TO ACCESSING SERVICES DURING PREGNANCY, CHILDBIRTH AND EARLY MOTHERHOODSchool of Nursing and Midwifery, Trinity College DublinChinnery(1995)Women’sHealthCouncil(WHC)(2004)Zitzelsberger(2005)IrelandCanadachildrearingexperiences ofmothers with andwithout physicaldisabilities. Tocompare the supportreceived.To identify issues tobe addressed whendeveloping a strategyfor the futurematernity services inthe Eastern RegionalHealth Authority.To explorerelationshipsbetweencontemporaryWestern culturalrepresentations ofbodies andexperiences ofwomen born with aphysical disability.interviews.Qualitative.FocusgroupsQualitative.Unstructuredinterviews.physicaldisability and 45women without.16 serviceproviders and10 servicesusers – 4women with adisability (3 deafand 1 with aphysicaldisability).14 women witha physicaldisability.Major obstacles encountered were negativeattitudes. Health professionals described asdomineering, displayed bullying behavioursand did not take account of women’s specialneeds. Prenatal classes unhelpful andinappropriate. Staff described as rude,unhelpful, and unsupportiveFindings framed within principles of the healthstrategy. Participants identified measures thatcould be taken to ensure maternity services areequitable, fair, women-centred andaccountable. Women expressed the desire tobe treated individually; requested reform ininformation provision, continuity of care andeffective communication. Women expect staffto be familiar with their needs and differenttypes of disability.Women perceived themselves to be bothvisible and invisible in society. The women’sbody was viewed as undesirable and deviatedfrom the norm. Women’s identities were deniedand their experiences and lives were seen asinsignificant. Others’ views impactedsignificantly on women’s ability to cope andtheir value was defined by their disability.170
Page 1 and 2:
University of DublinTrinity College
Page 3 and 4:
WOMEN WITH DISABILITIES: BARRIERS A
Page 5 and 6:
Page 7 and 8:
Page 9 and 10:
Page 11 and 12:
Page 13 and 14:
Page 15 and 16:
Page 17 and 18:
Page 19 and 20:
Page 21 and 22:
Page 23 and 24:
Page 25 and 26:
Page 27 and 28:
Page 29 and 30:
Page 31 and 32:
Page 33 and 34:
Page 35 and 36:
Page 37 and 38:
Page 39 and 40:
Page 41 and 42:
Page 43 and 44:
Page 45 and 46:
Page 47 and 48:
Page 49 and 50:
Page 51 and 52:
Page 53 and 54:
Page 55 and 56:
Page 57 and 58:
Page 59 and 60:
Page 61 and 62:
Page 63 and 64:
Page 65 and 66:
Page 67 and 68:
Page 69 and 70:
Page 71 and 72:
Page 73 and 74:
Page 75 and 76:
Page 77 and 78:
Page 79 and 80:
Page 81 and 82:
Page 83 and 84:
Page 85 and 86:
Page 87 and 88:
Page 89 and 90:
Page 91 and 92:
Page 93 and 94:
Page 95 and 96:
Page 97 and 98:
Page 99 and 100:
Page 101 and 102:
Page 103 and 104:
Page 105 and 106:
Page 107 and 108:
Page 109 and 110:
Page 111 and 112:
Page 113 and 114:
Page 115 and 116:
Page 117 and 118:
Page 119 and 120:
Page 121 and 122:
Page 123 and 124:
Page 125 and 126:
Page 127 and 128:
Page 129 and 130:
Page 131 and 132:
Page 133 and 134:
Page 135 and 136:
Page 137 and 138: WOMEN WITH DISABILITIES: BARRIERS A
Page 187: WOMEN WITH DISABILITIES: BARRIERS A
show all

Women with Disabilities: Barriers and Facilitators to Accessing ...

Create successful ePaper yourself

Delete template?

Save as template?