Women with Disabilities: Barriers and Facilitators to Accessing ...

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WOMEN WITH DISABILITIES: BARRIERS AND FACILITATORS TO ACCESSING SERVICES DURING PREGNANCY,CHILDBIRTH AND EARLY MOTHERHOODSchool of Nursing and Midwifery, Trinity College DublinTable of ContentsTABLE OF CONTENTS ..................................................................................... IACKNOWLEDGEMENTS ............................................................................... VIIIEXECUTIVE SUMMARY .................................................................................. IX1. Introduction ................................................................................................. ix2. Background ................................................................................................. ix3. Purpose of review ........................................................................................ x4. Outline of review .......................................................................................... x5. Key research findings ................................................................................. xi5.1. General findings ...................................................................................... xi5.2. Findings in relation to women with physical disabilities .......................... xii5.3. Findings in relation to women with sensory impairments ........................ xii5.4. Findings in relation to women with mental health difficulties .................. xiii5.5. Findings in relation to women with intellectual disabilities ...................... xv6. Key research gaps ..................................................................................... xv6.1. General maternity and health service care ............................................ xvi6.2. Research on the care of women with any of the disabilities duringpregnancy, childbirth and early motherhood ................................................. xvi6.3. Research on the care of women with specific disabilities duringpregnancy, childbirth and early motherhood ................................................. xvi6.4. Research on the care of women with intellectual disabilities duringpregnancy, childbirth and early motherhood ................................................ xvii7. Conclusion ................................................................................................ xviiSECTION ONE: INTRODUCTION, METHODOLOGY AND BACKGROUND OFREVIEW ............................................................................................................. 1CHAPTER ONE: INTRODUCTION ................................................................... 11.1. Definition of disability ............................................................................... 11.2. Purpose and aims ..................................................................................... 11.3. Methodology .............................................................................................. 31.4. Types of literature sourced ...................................................................... 4i
WOMEN WITH DISABILITIES: BARRIERS AND FACILITATORS TO ACCESSING SERVICES DURING PREGNANCY,CHILDBIRTH AND EARLY MOTHERHOODSchool of Nursing and Midwifery, Trinity College Dublin1.5. Inclusion criteria ....................................................................................... 51.5.1. Quality assessment .............................................................................. 51.5.2. Research domains included ................................................................. 51.5.3. Social and cultural appropriateness of research ................................... 61.6. Number and type of papers selected for use in each section ............... 61.7. Format of the review ................................................................................. 7CHAPTER TWO: BACKGROUND AND CONTEXT ......................................... 82.1. Introduction ............................................................................................... 82.2. Childbirth and motherhood in Ireland ..................................................... 82.3. Official statistics and definitions of disability in Ireland ..................... 102.3.1 Historical development of data collection............................................. 102.3.2. Inclusion of disability statistics in national Census .............................. 112.3.3. Development of expanded Census categories exploring disability ..... 122.3.4. The National Disability Survey ............................................................ 132.4. Limits of published research ................................................................. 182.5. Physical and sensory disability: pregnancy, childbirth, and earlymotherhood .................................................................................................... 192.5.1. Background and context ..................................................................... 192.5.2. Evolution of the concept of disability ................................................... 202.5.3. Society’s attitudes to women with disability ........................................ 212.5.4. Reproductive control ........................................................................... 222.5.5. The effect of physical disabilities on pregnancy .................................. 232.6. Mental health and illness: pregnancy, childbirth, and earlymotherhood .................................................................................................... 252.6.1. Historical perspective.......................................................................... 252.6.2. Mental health difficulties and pregnancy ............................................. 272.6.3. Motherhood and mental distress in context: social and personalcircumstances ............................................................................................... 322.6.4. Positive aspects of mothering for women with mental health difficulties..................................................................................................................... 342.6.5. Mothers with enduring mental health difficulties’ experience of themental health service .................................................................................... 362.7. Women with intellectual disabilities: pregnancy, childbirth, and earlymotherhood .................................................................................................... 392.7.1. Introduction ......................................................................................... 392.7.2. Labels, definitions and diagnostic criteria ........................................... 402.7.3. Historical perspective.......................................................................... 432.8. Summary .................................................................................................. 48ii
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