Women with Disabilities: Barriers and Facilitators to Accessing ...

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WOMEN WITH DISABILITIES: BARRIERS AND FACILITATORS TO ACCESSING SERVICES DURING PREGNANCY, CHILDBIRTH AND EARLY MOTHERHOODSchool of Nursing and Midwifery, Trinity College DublinTable 8: Studies describing barriers to accessing services among women with intellectual disabilities (ID)Author(s)& YearAger andLittler(1998)Barr et al(1999)Biswas etal (2005)Booth andBooth(1993,1994,1995)Booth andBooth(2002)Country Aim Methodology PopulationGroup/Sample SizeU.K. To increase Not research Not research article.awareness of article.sexual healthneeds of personswith ID.NorthernIrelandU.K.U.K.U.K.To highlight theneed to attend tothe health ofpeople with ID.To explore theuptake of breastand cervicalscreening bywomen with ID.To review theresearch literaturein order to drawout lessons forpractice.To examine therole of men in thelives of motherswho haveintellectualdisabilities.Retrospectivereview ofhealthscreening.Audit ofscreening.Literaturereview.Secondaryanalysis of 3qualitativestudies.373 persons withintellectualdisabilities.48 women withintellectualdisabilities.Literature review.Narrative study – 33parents, at least 1with ID (probablymild, but not stated)and 30 adult childrenwith a parent(s) whohad IDBarriers to accessing servicesLack of integration between services.Lack of integration between services.Lack of awareness of the health needs ofpersons with intellectual disabilities.Difficulty in obtaining compliance andcooperation from women with intellectualdisabilities.Presumptions about parental abilities.Public prejudice and attitudes effectivelyexclude persons with ID from usingservices, including maternity services.Social and economic disadvantages havenegative effects on ability of people with IDto achieve parental success.The removal of children from parents withintellectual disabilities is associated withintense hardship and grief.189
WOMEN WITH DISABILITIES: BARRIERS AND FACILITATORS TO ACCESSING SERVICES DURING PREGNANCY, CHILDBIRTH AND EARLY MOTHERHOODSchool of Nursing and Midwifery, Trinity College DublinBroughtonandThomson(2000)Cuskellyand Bride(2004)Ditchfieldand Burns(2004)Drummond(2006)Government ofIreland(1993)IASSIDSIRG(2008)U.K.AustraliaU.K.IrelandTo explorewomen with ID’sperspectives onthe cervicalsmear test.To examineattitudes aboutsexual expressionof persons with IDTo explorewomen’sexperience inrespect of theirmenstrual health.To explorecaregivers’ andparents’ views onQualitativeinterviews.Quantitativestudy usingattitudinalscale.Qualitativeresearch.Quantitativedescriptive.52 women withintellectual disabilitiesand 34 carers.43 parents of an adultwith ID; 62 supportstaff; 63 communityindividuals.11 women withintellectualdisabilities.Lack of knowledge and information on thepart of the women and service providers.Conservative and negative attitudes tosexuality and parenthood.Uncertainty and confusion with themenstrual cycle. Negative attitudes tomenstruation and, through this, to sexuality.45 primary carers. Relationship between attitudes to sexualityof people with intellectual disabilities isinfluenced by age and religious practice.sexuality.Ireland N/A Legal statute. Not research article. Defines sexual intercourse/or attemptedsexual intercourse with a person who is‘mentally impaired’ to be a criminal offence.InternationalTo set out aposition onparenting bypersons withintellectualdisabilities.Position paper Not research article.Sets out the position of the InternationalAssociation for the Scientific Study ofIntellectual Disabilities on parents andparenting by persons with intellectualdisabilities.190
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University of DublinTrinity College
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