Women with Disabilities: Barriers and Facilitators to Accessing ...

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WOMEN WITH DISABILITIES: BARRIERS AND FACILITATORS TO ACCESSING SERVICES DURING PREGNANCY,CHILDBIRTH AND EARLY MOTHERHOODSchool of Nursing and Midwifery, Trinity College Dublin7.1.1. Overview ........................................................................................... 1187.1.2. Barriers to accessing services for women with disabilities ................ 1197.1.3. Facilitators to improve access to services for women with disabilities................................................................................................................... 1227.2. Conclusion ............................................................................................. 123CHAPTER EIGHT: KEY RESEARCH FINDINGS AND RESEARCH GAPSIDENTIFIED ................................................................................................... 1258.1. Key research findings ........................................................................... 1258.1.2. Introductory findings ......................................................................... 1258.1.3. General findings ............................................................................... 1258.1.4. Findings in relation to women with physical disabilities .................... 1268.1.5. Findings in relation to women with sensory impairments .................. 1268.1.6. Findings in relation to women with mental health difficulties ............. 1278.1.7. Findings in relation to women with intellectual disabilities ................ 1298.2. Key research gaps ................................................................................ 1298.2.1. General maternity and health service care ....................................... 1308.2.2. Research on the care of women with any of the disabilities duringpregnancy, childbirth and early motherhood ............................................... 1308.2.3. Research on the care of women with specific disabilities duringpregnancy, childbirth and early motherhood ............................................... 1308.2.4. Research on the care of women with intellectual disabilities duringpregnancy, childbirth and early motherhood ............................................... 131REFERENCES ............................................................................................... 132APPENDICES ................................................................................................ 158APPENDIX 1 – DEFINITIONS OF DISABILITY ............................................ 158APPENDIX 2 – MAJOR ORGANISATIONS AND EXPERTS CONTACTED 160APPENDIX 3 – TABLES 2 AND 3 ................................................................. 161APPENDIX 4 – TABLES 4 AND 5 ................................................................. 173APPENDIX 5 – TABLES 6 AND 7 ................................................................. 179APPENDIX 6 – TABLES 8 AND 9 ................................................................. 188vii
WOMEN WITH DISABILITIES: BARRIERS AND FACILITATORS TO ACCESSING SERVICES DURING PREGNANCY,CHILDBIRTH AND EARLY MOTHERHOODSchool of Nursing and Midwifery, Trinity College DublinAcknowledgementsWe gratefully acknowledge the support of the National Disability Authority, whocommissioned this report. Thanks are due to Dr. Jo Murphy-Lawless, School ofNursing and Midwifery, Trinity College Dublin for assistance with early drafts ofthis review, and to Yulia Kartalova-O’Doherty of the Mental Health ResearchUnit in the Health Research Board, for data from the National PsychologicalWellbeing and Distress Survey. We also thank all those whose names are listedin Appendix 2 for their help and advice.While the National Disability Authority (NDA) has commissioned and funded thisresearch, this was a joint initiative between NDA and the National Women’sCouncil of Ireland (NWCI). A Steering Group composed of members from theNDA, the NWCI, the Health Service Executive and the Crisis Pregnancy Agencyprovided advice and guidance to the research team. Responsibility for theresearch (including any errors or omissions) remains with the School of Nursingand Midwifery, Trinity College Dublin. The views and opinions contained in thisreport are those of the authors and do not necessarily reflect the views oropinions of the NDA or the NWCI.viii
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